Guest guest Posted June 13, 2005 Report Share Posted June 13, 2005 Hi . My name is too. I had a large septum too, but have had it removed. The HSG (hysterosalpingogram)will tell you and your Dr. if your tubes are clear, and you will probably be able to see a large separation inside your uterus, but the only way to tell for sure if your uterus really is septate or bicornate is to have the lap/hyst done because the Dr. will be able to see the inside and the outside of the uterus at the same time. The lap/hyst is very important so that the Dr. will know exactly what he/she is cutting into and there will be no chance of perforating the uterus. > Hello everyone--this is my 1st post. I need some help understanding > what is going on, and what I am about to endure. When I was a > teenager, I had an elective abortion and at the time was told that I > had a " double uterus " . Now that I am older and ready to try to > start a family, I mentioned this to my obgyn. My mother was told > the same thing (actually that she was bicornate, but this was in the > 70's)and had several miscarriages. My ob did a full 3-d ultrasound > on me and found what he thought was " a pretty large septation " . He > said that he was 99% sure that it was a septate rather than a > bicornate, and due to its size, said he recommended surgery before I > try to get pregnant. > Before this procedure, which he said would be done with a > hysterescope and possibly a laproscope, he would like me to have a > hysterosalpingogram--an x-ray with dye injected into the uterus--I > guess to be sure its septate and to check for potential tubal issues. > Does anyone know what I should expect from this xray? What about > the septum removal? What is the healing time for thse procedures? > How long will I have to wait before trying to get pg? > Please help if you have any knowledge or experience > Thanks! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2005 Report Share Posted June 13, 2005 hi amanda i'm gabi and i had been misdiagnosed as bicornuate uterus (BU) but after a preterm baby boy and 2 consecutive m/c i had a HSG and a laparoscopy/hysteroscopy and got the right diagnosis: septate uterus (SU). the dr was almost sure that my SU caused my son's preterm birth and both my m/c - maybe your mom has a SU too because of her losses ..... the HSG is like an xray of your uterus - they will inject a dye and will take pictures - you'll see the inside of your uterus in the screen and if you do have a septum you'll probably see a 'wall' separating 2 cavities - my HSG was not painful, just a little uncomfortable - my dr asked me to take 4 advils 1 hr before the procedure and it wasn't as bad - i didn;t bleed afterwards although apparently some women do and the whole thing lasted no more than 5 mins. in 1 hr i was in and out of the hospital - the lap/hyst is an outpatient surgical procedure - it allows the dr to see the outside of the uterus (lap) to rule out BU (heart shaped/uterus with a dip) and to see the septum in the inside (hyst). if at the time of the procedure the dr sees you're definitely SU he/she may perform the resection = get rid of the septum - i had all this done last march - i can send you the 'story' of my surgery if you're interested - i had to wait 2 cycles before ttc again (this is so your endometrium will heal and grow thicker). i also took estrogen for 30 days and progesterone for the last 10 days of those 30 - but i know some drs don't prescribe these .... i hope this helps good luck with your test and surgery and keep us posted gabi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2005 Report Share Posted June 14, 2005 , I just had my HSG (hysterosalpingogram) last Wed. June 8th. It was no big deal at all. I had it done because this is my 16th cycle trying to conceive with no luck at all. My doctor did it to find out if my tubes were blocked (which they're not) and found out that I have a septate uterus. The HSG was really easy. I had to go to the hospital, change into a gown, and then go into the X-Ray room. The Dr. then inserted a speculum, cleaned my cervix, and inserted the dye. Piece of cake. I felt no pain at all and it lasted about 5 minutes total. The worst part of it was my nervousness and the fact that the doctor was " down there " . ;-) I had heard from other women that it can be painful, so I took 800 mg. of ibuprofen about an hour before the procedure. That may have helped. I just went yesterday and had an ultrasound to confirm that what he saw was in fact a septate uterus. I am now waiting to find out when they can get me in to do the surgery. I want it done as soon as possible. From what I understand, the septum is not stopping me from getting pregnant (that is probably due to weak ovulation). The Dr. wants to put me on clomid to strenghthen my ovulation and increase my chances of getting pregnant, but thinks that if I do get pregnant, the septum will cause a miscarriage. I'm hoping to get the surgery done soon so I can heal, begin clomid, and start trying again. Good luck to you, Dawn > > Hello everyone--this is my 1st post. I need some help > understanding > > what is going on, and what I am about to endure. When I was a > > teenager, I had an elective abortion and at the time was told that > I > > had a " double uterus " . Now that I am older and ready to try to > > start a family, I mentioned this to my obgyn. My mother was told > > the same thing (actually that she was bicornate, but this was in > the > > 70's)and had several miscarriages. My ob did a full 3-d > ultrasound > > on me and found what he thought was " a pretty large septation " . > He > > said that he was 99% sure that it was a septate rather than a > > bicornate, and due to its size, said he recommended surgery before > I > > try to get pregnant. > > Before this procedure, which he said would be done with a > > hysterescope and possibly a laproscope, he would like me to have a > > hysterosalpingogram--an x-ray with dye injected into the uterus-- I > > guess to be sure its septate and to check for potential tubal > issues. > > Does anyone know what I should expect from this xray? What about > > the septum removal? What is the healing time for thse > procedures? > > How long will I have to wait before trying to get pg? > > Please help if you have any knowledge or experience > > Thanks! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2005 Report Share Posted June 14, 2005 , I just had my HSG (hysterosalpingogram) last Wed. June 8th. It was no big deal at all. I had it done because this is my 16th cycle trying to conceive with no luck at all. My doctor did it to find out if my tubes were blocked (which they're not) and found out that I have a septate uterus. The HSG was really easy. I had to go to the hospital, change into a gown, and then go into the X-Ray room. The Dr. then inserted a speculum, cleaned my cervix, and inserted the dye. Piece of cake. I felt no pain at all and it lasted about 5 minutes total. The worst part of it was my nervousness and the fact that the doctor was " down there " . ;-) I had heard from other women that it can be painful, so I took 800 mg. of ibuprofen about an hour before the procedure. That may have helped. I just went yesterday and had an ultrasound to confirm that what he saw was in fact a septate uterus. I am now waiting to find out when they can get me in to do the surgery. I want it done as soon as possible. From what I understand, the septum is not stopping me from getting pregnant (that is probably due to weak ovulation). The Dr. wants to put me on clomid to strenghthen my ovulation and increase my chances of getting pregnant, but thinks that if I do get pregnant, the septum will cause a miscarriage. I'm hoping to get the surgery done soon so I can heal, begin clomid, and start trying again. Good luck to you, Dawn > > Hello everyone--this is my 1st post. I need some help > understanding > > what is going on, and what I am about to endure. When I was a > > teenager, I had an elective abortion and at the time was told that > I > > had a " double uterus " . Now that I am older and ready to try to > > start a family, I mentioned this to my obgyn. My mother was told > > the same thing (actually that she was bicornate, but this was in > the > > 70's)and had several miscarriages. My ob did a full 3-d > ultrasound > > on me and found what he thought was " a pretty large septation " . > He > > said that he was 99% sure that it was a septate rather than a > > bicornate, and due to its size, said he recommended surgery before > I > > try to get pregnant. > > Before this procedure, which he said would be done with a > > hysterescope and possibly a laproscope, he would like me to have a > > hysterosalpingogram--an x-ray with dye injected into the uterus-- I > > guess to be sure its septate and to check for potential tubal > issues. > > Does anyone know what I should expect from this xray? What about > > the septum removal? What is the healing time for thse > procedures? > > How long will I have to wait before trying to get pg? > > Please help if you have any knowledge or experience > > Thanks! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2010 Report Share Posted July 15, 2010 I have just been tested. The hematologist is pretty sure, and is waiting for the Hemochromatosis lab results. I had two shoulder surgeries this year (arthritis), severe adrenal fatigue - high Ft3, but no hyper symptoms and a suppressed TSH. I requested a full iron panel because I also thought maybe the iron was low. What a surprise at 70% saturation. Ferritin was only 120. It does not rely on a diagnosis of hypopituitary, but early symptoms are adrenal problems, joint pain, hypothyroidism - all the good stuff the docs seem to have a hard time with treatment with to begin with.. I see the hematologist today and am anxious to begin treatment. Not anxious to have a liver biopsy if she wants that. > > I have been struggling for diagnosis and treatment to return to my " old " healthy self since 2006. First, I was diagnosed with sleep apnea, then Gastroparesis, then Hashimoto's (which treatment reversed the Gastroparesis). then adrenal fatique, then progesterone deficient and Growth Hormone. Two weeks ago I came out of knee surgery on both knees for advanced arthritis! > > The Dr asked if I had an accident prior to symptoms starting and I had where I hit my head in a horse riding fall. She then diagnosed hypopituitary. > > I was concerned because my FT3 was always high and I did not feel hyperthyroid at all. If I tried to decrease to get the FT3 in range I became raging hypothyroid. > > I asked the Dr to test Ferritin to see if low ferritin was causing a problem with T3 uptake. > > The Ferritin test came back 595 with a range of 20-150!!! > > New diagnosis Hemochromatosis a genetic disease that causes your body to absorb too much Iron. It can damage your pituitary and cause advanced arthritis at an early age (I have grade 4 arthritis at 45 yrs old) as well as damage the thyroid and adrenal gland. > > If you have a diagnosis of hypopituitary and early onset arthritis it is recommended you test for Hemochromatosis. Not ONE doctor recommended this test. > > When the ferritin level rises above 1000 it starts to damage your liver and heart. > > Undiagnosed death comes within 5-15 yrs. If diagnosed before damage it is treatable by phlebotomy. Once damage occurs the damage is irreversible. > > So relieved I got diagnosed before liver/heart damage!!! Many doctors do not even think to check for Hemochromatosis. > > I have been suffering from fatique and this is the number one symptom. I am anxious to get into a Hematologist and start treatment, I am hoping this is the last piece of the puzzle and I can live my life again > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2010 Report Share Posted July 15, 2010 wow...thank you for sharing. Sooo glad you found the correct diagnosis in time! Sharon Remember! Dolls are people, too....have you hugged your dolls today? Visit my website! http://ohyoubeautifuldoll.webs.com--- Subject: New DiagnosisTo: RT3_T3 Date: Wednesday, July 14, 2010, 10:13 PM I have been struggling for diagnosis and treatment to return to my "old" healthy self since 2006. First, I was diagnosed with sleep apnea, then Gastroparesis, then Hashimoto's (which treatment reversed the Gastroparesis). then adrenal fatique, then progesterone deficient and Growth Hormone. Two weeks ago I came out of knee surgery on both knees for advanced arthritis! The Dr asked if I had an accident prior to symptoms starting and I had where I hit my head in a horse riding fall. She then diagnosed hypopituitary.I was concerned because my FT3 was always high and I did not feel hyperthyroid at all. If I tried to decrease to get the FT3 in range I became raging hypothyroid.I asked the Dr to test Ferritin to see if low ferritin was causing a problem with T3 uptake. The Ferritin test came back 595 with a range of 20-150!!!New diagnosis Hemochromatosis a genetic disease that causes your body to absorb too much Iron. It can damage your pituitary and cause advanced arthritis at an early age (I have grade 4 arthritis at 45 yrs old) as well as damage the thyroid and adrenal gland.If you have a diagnosis of hypopituitary and early onset arthritis it is recommended you test for Hemochromatosis. Not ONE doctor recommended this test.When the ferritin level rises above 1000 it starts to damage your liver and heart. Undiagnosed death comes within 5-15 yrs. If diagnosed before damage it is treatable by phlebotomy. Once damage occurs the damage is irreversible.So relieved I got diagnosed before liver/heart damage!!! Many doctors do not even think to check for Hemochromatosis. I have been suffering from fatique and this is the number one symptom. I am anxious to get into a Hematologist and start treatment, I am hoping this is the last piece of the puzzle and I can live my life again Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2010 Report Share Posted July 16, 2010 Results are back and confirmed. I have hereditary hemochomatosis with two mutations. All children need tested now since it is hereditary and I begin weekly phlebotomies. Questions: The plan is to reduce my iron levels. What is the best ferritin level? We know too little iron plays into the ability to utilize T3, but does too much create a problem? As the iron goes down, will I need to adjust thyroid doses? > > > > I have been struggling for diagnosis and treatment to return to my " old " healthy self since 2006. First, I was diagnosed with sleep apnea, then Gastroparesis, then Hashimoto's (which treatment reversed the Gastroparesis). then adrenal fatique, then progesterone deficient and Growth Hormone. Two weeks ago I came out of knee surgery on both knees for advanced arthritis! > > > > The Dr asked if I had an accident prior to symptoms starting and I had where I hit my head in a horse riding fall. She then diagnosed hypopituitary. > > > > I was concerned because my FT3 was always high and I did not feel hyperthyroid at all. If I tried to decrease to get the FT3 in range I became raging hypothyroid. > > > > I asked the Dr to test Ferritin to see if low ferritin was causing a problem with T3 uptake. > > > > The Ferritin test came back 595 with a range of 20-150!!! > > > > New diagnosis Hemochromatosis a genetic disease that causes your body to absorb too much Iron. It can damage your pituitary and cause advanced arthritis at an early age (I have grade 4 arthritis at 45 yrs old) as well as damage the thyroid and adrenal gland. > > > > If you have a diagnosis of hypopituitary and early onset arthritis it is recommended you test for Hemochromatosis. Not ONE doctor recommended this test. > > > > When the ferritin level rises above 1000 it starts to damage your liver and heart. > > > > Undiagnosed death comes within 5-15 yrs. If diagnosed before damage it is treatable by phlebotomy. Once damage occurs the damage is irreversible. > > > > So relieved I got diagnosed before liver/heart damage!!! Many doctors do not even think to check for Hemochromatosis. > > > > I have been suffering from fatique and this is the number one symptom. I am anxious to get into a Hematologist and start treatment, I am hoping this is the last piece of the puzzle and I can live my life again > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2010 Report Share Posted July 16, 2010 Sorry but i am not qualified to help wiht this issue but do a post and address it TO Lethal Lee who has also dealt wiht this and done alot of research on it. She may be able to answer your quesitons as I really have not ever seemn anyoen else wiht this issue, >> >> >> http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/ >> http://faqhelp.webs.com/ >> >> http://health.groups.yahoo.com/group/RT3_T3/ >> http://www.thyroid-rt3.com/ >> > Results are back and confirmed. I have hereditary hemochomatosis with two mutations. All children need tested now since it is hereditary and I begin weekly phlebotomies. > > Questions: > The plan is to reduce my iron levels. What is the best ferritin level? > > We know too little iron plays into the ability to utilize T3, but does too much create a problem? > > As the iron goes down, will I need to adjust thyroid doses? > > >> >>> I have been struggling for diagnosis and treatment to return to my " old " healthy self since 2006. First, I was diagnosed with sleep apnea, then Gastroparesis, then Hashimoto's (which treatment reversed the Gastroparesis). then adrenal fatique, then progesterone deficient and Growth Hormone. Two weeks ago I came out of knee surgery on both knees for advanced arthritis! >>> >>> The Dr asked if I had an accident prior to symptoms starting and I had where I hit my head in a horse riding fall. She then diagnosed hypopituitary. >>> >>> I was concerned because my FT3 was always high and I did not feel hyperthyroid at all. If I tried to decrease to get the FT3 in range I became raging hypothyroid. >>> >>> I asked the Dr to test Ferritin to see if low ferritin was causing a problem with T3 uptake. >>> >>> The Ferritin test came back 595 with a range of 20-150!!! >>> >>> New diagnosis Hemochromatosis a genetic disease that causes your body to absorb too much Iron. It can damage your pituitary and cause advanced arthritis at an early age (I have grade 4 arthritis at 45 yrs old) as well as damage the thyroid and adrenal gland. >>> >>> If you have a diagnosis of hypopituitary and early onset arthritis it is recommended you test for Hemochromatosis. Not ONE doctor recommended this test. >>> >>> When the ferritin level rises above 1000 it starts to damage your liver and heart. >>> >>> Undiagnosed death comes within 5-15 yrs. If diagnosed before damage it is treatable by phlebotomy. Once damage occurs the damage is irreversible. >>> >>> So relieved I got diagnosed before liver/heart damage!!! Many doctors do not even think to check for Hemochromatosis. >>> >>> I have been suffering from fatique and this is the number one symptom. I am anxious to get into a Hematologist and start treatment, I am hoping this is the last piece of the puzzle and I can live my life again >>> >>> >> > > > > ------------------------------------ > > We are not medical professionals here, just patients sharing our experiences. Please use this information with the help of a competent doctor. Yahoo! Groups Links > > > > > Quote Link to comment Share on other sites More sharing options...
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