Guest guest Posted August 24, 2005 Report Share Posted August 24, 2005 Hi - I'm so sorry to hear about your losses. I know what you are going through - I had two early miscarriages and lost my daughter at 24 weeks due to a septum. I was misdiagnosed too...actually told to try again after I lost Olivia only to miscarry again at 8 weeks (went in for a routine visit and there was no heartbeat - that's when the peri saw the 'abnormal uterus'). So, I know what you are going through - the heartache, the frustration, the anger at everyone else, the deep sorrow over the loss of a child. It sounds truly cliche, but the only thing that lessened the loss of my daughter is time. Amazingly, each day that goes by - the grief becomes more manageable. Time doesn't heal loss - you just get used to the loss...it becomes part of you and the grief roller coaster becomes less and less dramatic as time goes on. It will get better. That said, I know it feels like eternity - especially after a loss as devastating as ours and a DESIRE to want a child as great as ours. But, I also believe that after an invasive procedure (even lap/hyst), your body needs time to heal. Because we want children so badly, we think we should be ready to go right away. It doesn't always work that way - physically, our bodies require time. I was told to wait 1 cycle after my resection which translated to 2 months. But, for some reason, 3 months is a magic number. I would suggest you really allow yourself the space to heal - physically and emotionally. You are still torn up over Fletcher and rightly so, but perhaps coming to a more emotionally stable place over that loss will allow you the space and energy to bring new life into this world. I hope I don't sound too preachy, but I know what you are going through. Here is my story: After my resection, I wanted so badly to just get pregnant - I mean odds were in my favor of a healthy pregnancy right? When I was told to wait, I felt very discouraged - just like you...basically, I wouldn't have a baby in 2004. I was upset, but then I took a step back (lots of yoga and meditation and acupuncture helped me) and told myself that I needed the time emotionally and physically to prepare for another baby. In the long run, for me, waiting the required amount of time was the least I could do to try to have a healthy baby. Also, I needed to be okay with a new life, not just a replacement for Olivia. I got pregnant the 2nd time we tried and I delivered a very healthy boy March 12 - one year after my resection and two years after my daughter died. The pregnancy was very uneventful, but I needed a c-section because Ely was 10 lbs...so, my uterus did work afterall. I was glad that I gave my body and mind time to heal a bit more and prepare for Ely's birth. It was full of emotions, but I believe that the time helped me to have a healthy pregnancy and a very open heart for this new life. I don't know if any of this helps you, but I wanted to share my thoughts and story because I could relate so much to your pain. Have you seen a grief counselor at all? It's not for everyone, but it helped me and my husband quite a bit. Seeing the pregnant people around you - especially those who are 'complaining' about the small stuff can be really frustrating and annoying...try to remember that people don't mean anything bad by the comments...people can be very insensitive - they just don't 'get' this kind of grief. I would try to surround myself with people who do or who are willing to try (e.g. support group, this board, counselor, family - sometimes can be helpful..not always). It is really sad to say but our society doesn't do death well, and doesn't do death of children well at all. I felt isolated ALOT of the time. On the plus side, you have a diagnosis...and after resections, your chances of a normal healthy - full term - pregnancy go way up...pretty much the same as those with 'normal' uteri. There are many women on this board with success stories after loss and tragedy. Get your strength from these stories and be kind to yourself...allow yourself the time to heal. I hope this helps and that you can get some peace and strength in the coming months. Best to you, Grazia SU - resected mom to Olivia and Ely megankwc megankwcampbell@...> wrote: Hi Ladies, I had my lap/hyst yesterday and they DID find a septum and removed it. So it turns out I was misdiagnosed with the HSG and SHG (I know, big surprise) and I'm glad that I insisted on the lap/hyst instead of an MRI. In the meantime though, I have to say I am absolutely at the end of my psychological rope. They discovered that I have a bicornuate fundus that is not that deep - my uterus does truly look like a cute-shaped heart from the outside...it doesn't dip down far. The septum was definitely sizable, but my doctor described it as " small " . The thing is, in the HSG and SHG, the angle of the horns was so wide that they said it was almost impossible to imagine that it was a septum. So in my mind, it seems like it would have been a really big septum, and I'm confused about how big my recovery site is. I have pictures, but of course, they don't mean a lot to me. So as for my psychological rope...I think I'm about ready to lose it. Both doctors who performed the procedure (OBs) say to wait three months/cycles before trying again. I'm sorry for being so dramatic, but this feels like a death sentence to me. After losing my son, I feel like I am lost without the joy of a child. I had a miscarriage in June (now attributed to the septum) and though that was heartbreaking to lose the pregnancy and the little life inside of me, the hardest part was how it made my grief over Fletcher so much worse. And now, after this resection and the three month wait that they've diagnosed, it feels just like the miscarriage, but even worse. Like this horrible setback. Please don't misunderstand...I am glad that they removed the septum and I know how much this will improve my chances of a healthy pregnancy, but it does not help me emotionally right now. I'm already trying so hard to get through each day...It really doesn't help to hear everybodys' Hallmark philosophies on how everything is going be okay, because they don't know how I feel. I even snapped at a nurse yesterday because she told me that this is " just how it's supposed to be " . I'm sorry, but has anyone ever been helped by a statement like that? I just can't stop crying. And my doctor was so sweet and called and tried to encourage me by saying that I could get pregnant in December and and have a baby in August. That's a year away. A YEAR. i already had a baby, and I have already had to endure five months of watching everyone else have their babies and complain about being fat and miserable and hating breastfeeding and everything. I don't know how I am going to do this. Especially if the septum regrows and I have to go through all of this again after they do an HSG in December. I am a Christian and I have faith that God is using this time for good, but I am just so sad right now. I'm sorry for the drama and for just complaining. I don't know what to do with myself. Trying to distract myself with work or other things is a fine idea but it never works. We are doing our foster care and adoption licensing and we are really trying to be excited about that, but there are still no guarantees that we'll get kids soon. Thanks for listening. Does everyone agree that three months is reasonable after a resection? I'm on an estrogen patch (and vicodin at the moment...I am sooore) and will be for the entire three months (on the estrogen, not the vicodin :-). There is no balloon. I appreciate all the support. Thank you. BU/SU resected yesterday DS Fletcher b 3/14/05 d 3/28/05 M/C 6/28/05 Share bookmarks: http://groups.yahoo.com/group/MullerianAnomalies/links/ Share files: http://groups.yahoo.com/group/MullerianAnomalies/files/ The Congenital Uterine Anomalies Home Page: http://www.wegrokit.com/uterineanomalies/ es/ The Congenital Uterine Anomalies Home Page: http://www.wegrokit.com/uterineanomalies/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2005 Report Share Posted August 24, 2005 Dear , I tried desperately to write something positive to you. But, in the end I realized that I just wanted you to know that I am grieving as well and I understand your words. After loosing a child the grief is so profound. I can feel your sadness and I relive my own loss when as I read your post. I lost Lucas at 32 weeks almost four months ago on 05.05.05. I never really knew sadness until I experienced this. I was resected just eight days ago. My SU dx was explanation #4 for Lucas' demise. From the pregnancy US I can now tell that he was in fact attached to the septum. I have my post op with the RE next week and I have a vague idea about what he will say regarding ttc. Distractions and " work " have yet to " help " me either. But, this MA board has been pivotal in helping me understand the process of waiting. There seems to be so many of us with loss, recently resected and waiting for our bodies to regain cyclic normalcy. I do hope that you have a good day tomorrow. Billie ds lucas (sb 05.05.05) mthfr homozygous waiting too Quote Link to comment Share on other sites More sharing options...
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