Di/ Good news/bad news??No News??

[Guest guest]

Di,

I'm sorry you didn't have a good visit with the neuros. I just plain don't go,

but I'm one of the very fortunate ones to be progressing very slowly. I hope

that

you'll level off now for a good long while.

Merry Christmas & Happy New Year anyway!!!

God bless,

Laurel

Good news/bad news??No News??

Hi dear friends!

Well, i should have known better than to see my neuro. just before

Christmas....but i wasn't really given a choice of dates.

Anyway...this time i saw not one, but TWO of those characters...both

very nice and very thorough. One was my usual neuro at Foothills

Neurological in Calgary...the other works with all ALS and some PLS

patients.

So.....i knew my prgression had really accelerated last 3

years....so no shocking news there. But one of the neuros ...who

works with PLS patients, said that he won't rule out the possibility

that I may have a type of PLS that accelerates and progresses much

more rapidly than normal. He said he didn't believe that PLS is

only 'lifestyle' threatening but, in a few cases, can be life

threatening too. Although he did point out that periods of more

rapid progression followed by a leveling off is common in PLS

So.....hmmmmmm. I am asking my self one very deep question.....'why

the heck did I go?!!!! " ha ha. I know it is getting worse.....but

seeing the neuros just TEMPORARILY pulled the sword out of my teeth

(see: Monty Python's Holy Grail). I will get it back though. It is

just that now i have to have that nasty EMG thing and an MRI more

frequently. Cuss!

Guess i am feeling a bit destabilized.

Hugs.

Love Di........PLS......Canada

[Guest guest]

Oh well thank you Laurel...how thoughtful of you. I am beginning to

think that the Neuro visits cause me more anguish than help.

But....I no way plan to give in to ANYTHING ha!

Merry/ comfortable Christmas Laurel!

Luv Di......Canada

>

> Di,

> I'm sorry you didn't have a good visit with the neuros. I just

plain don't go, but I'm one of the very fortunate ones to be

progressing very slowly. I hope that

> you'll level off now for a good long while.

> Merry Christmas & Happy New Year anyway!!!

> God bless,

> Laurel

> Good news/bad news??No News??

>

>

> Hi dear friends!

>

> Well, i should have known better than to see my neuro. just

before

> Christmas....but i wasn't really given a choice of dates.

>

> Anyway...this time i saw not one, but TWO of those

characters...both

> very nice and very thorough. One was my usual neuro at Foothills

> Neurological in Calgary...the other works with all ALS and some

PLS

> patients.

>

> So.....i knew my prgression had really accelerated last 3

> years....so no shocking news there. But one of the neuros ...who

> works with PLS patients, said that he won't rule out the

possibility

> that I may have a type of PLS that accelerates and progresses

much

> more rapidly than normal. He said he didn't believe that PLS is

> only 'lifestyle' threatening but, in a few cases, can be life

> threatening too. Although he did point out that periods of more

> rapid progression followed by a leveling off is common in PLS

>

> So.....hmmmmmm. I am asking my self one very deep

question.....'why

> the heck did I go?!!!! " ha ha. I know it is getting

worse.....but

> seeing the neuros just TEMPORARILY pulled the sword out of my

teeth

> (see: Monty Python's Holy Grail). I will get it back though. It

is

> just that now i have to have that nasty EMG thing and an MRI

more

> frequently. Cuss!

>

> Guess i am feeling a bit destabilized.

>

> Hugs.

>

> Love Di........PLS......Canada

>

>

>

>

>

>

>

>

>