Guest guest Posted December 28, 2005 Report Share Posted December 28, 2005 Hi Friends! Hope everyone has enjoyed the Holiday Season! I sure would appreciate hearing from some of you who have experienced either 'rapid progression' PLS or at least several years in a row of rapid deterioration....particularly progression to the trunk.....and...ummmm...well pretty much everywhere else except my head! Really having a bad time right now. Neuro wants to add ...ummm...is it Zanaflex'?? to my meds...at bedtime. I just cannot lay diwn for more than 5 minutes without the muscles getting rigid and painful. I have a memory-foam bed...but it still doesn't help much. My legs and hands have really deteriorated over this last year and I have started drooling. So...anyone else that has really gone downhill rapidly...please let me know where you are at and what has helped you. However......my sense of humor is still in tact!! I warned my Neuro i have very jumpy reflexes! So...I am sitting on a chair...he squats in from of me to test my reflexes in my knees...........I WARNED HIM!! Ok....his voice is returning to normal now!! Ha ha. Oops. Hugs to all. Di...PLS.....Alberta, Canada Quote Link to comment Share on other sites More sharing options...
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