Not Sure what I have!

December 27, 2005

Hello,

My name is Darleen. I am new to this site. I am 30 years old and

was told of my problem at age 19 with my first exam. First off, it

is disappointing to hear everyone say, I have BU, SU, because i just

dont know and no one seems to be able to tell me. I live in the

sticks ~ my doctors did not explain, did not know. I had an MRI at

age 19 and didnt go back to get ridiculed until I met my husband at

age 22. At 22 my doc said, someday I would have surgery to remove my

vaginal septum. All I knew at that point was that they were calling

this double vagina, double cervix. i thought that was the extent of

it and no one could offer an explanation or any help. I got married

in 2004 and we definatley want children and i knew i was going to

have some sort of surgery to remove my vaginal septum but wasnt sure

about much else.

I called my OB for yearly and was planning to inquire then about what

the next step was. My doctor of 6 years had up and left and never

told her patients! SO... here I was afraid of anyone examining me

because I had HORRIFIC experiences with doctors/nurse remarks from my

first exam and now I have to find a new doctor. I went to another

doctor who examined me once & told me, no ~ he would not recommend

surgery. ok ~ after 6 years of being told i needed surg, then one

guy sees me once and says no surgery i demanded a specialist. I was

referred to MFM (maternal fetal medicine) specialist. My first trip

there I asked my doctor what the name of this mysterious

birth defect is. she instantly says Mullerian Anomalies and hands me

a booklet. I felt much relief having a name and being able to do

research. I have had MRI's, transvaginal US and regular US. I am

scheduled to go back to my doctors 01/13/06. HOpefully they can tell

me more about the surgery they propose to determine if i have one

uterus split in half or 2 whole different uterus'. This is all new

to me and scary. Anyone heard of a surgery where they do a little

incision at your belly and look down, if they see " something " they

will know it is one uterus split in half and if they see nothing, 2

seperate uterus'? Doc told me if one split in half then right then

and there they would remove the septum and reshape. I am also a

bigger person and was told to lose weight before i can have surgery.

Any insight? Thanks for being here for me to read and relate!

December 29, 2005

--- First off, it > is disappointing to hear everyone say, I have BU,

SU, because i just > dont know and no one seems to be able to tell

me... I was afraid of anyone examining me > because I had HORRIFIC

experiences with doctors/nurse remarks > I have had MRI's,

transvaginal US and regular US. I am > scheduled to go back to my

doctors 01/13/06. >

Hi, I am also relatively new to this site (and can't keep up with all

the posts!). The women here have been absolutely wonderful and will

help coach you through this journey. You are not alone. I also had

terrible experiences with doctors & have been treated like a freak. I

also have an appt. in Jan. to get some answers. I am getting copies

of my records and MRI films to take to my new Dr. He is a RE

(reproductive endocrinologist)who I found in the files section here.

I also made a list of questions to take with me. I recommend that you

do the same and insist upon going over the MRI films with your Dr.

Learn as much as you can before your appt. There is a lot of

confusion about MA's and lots of misdiagnosis. You might need to

drive a distance to find the right Dr. but in my opinion, it would be

worth it. I have suffered several miscarriages and a recently lost my

daughter at 21 wks. That does happen but many women with MAs do have

normal births. Hopefully you will be able to get the info. you need

to avoid future heartbreak. Best of luck to you.

Star

December 29, 2005