Guest guest Posted December 26, 2005 Report Share Posted December 26, 2005 Barbara, I have PLS and I take Baclofen and Neurontin as well as 1000 mg. of Magnesium daily to help with cramps in the back of my legs. I am also on multi-vitamins, B12 and A&D since I previously had a gastric Bypass. S. SusieQ susieq2828@...> wrote: Barbara, you may be the only one on PLS Friends (I don't know) but not the only one in the UK with PLS. I saw a doc at Oxford and he said he knew of 70 cases in the UK and he saw 12 of them. Susieq barbaradurkacz barbaradurkacz@...> wrote: Hi eveyone - Am I going to be the only one from the UK? I am sitting here with cold feet - agreeing with everyone wholeheartedly who says that the cold makes the spasticity worse! As you appreciate - I'm new here. 56 year old woman - still working, walking with a crutch (falling over a fair bit). About 3 years since sympton onset. My consultant neurologist says PLS, but I get confused by this as I do get some fasciculations in my legs (? - anybody else get this and wonder if what they've got is just a slow variant of ALS?). I am a cancer research academic, and have read the literature on PLS and associated diseases fairly extensively. I am interested in what drugs and " nutriceuticals " other people with PLS are prescribed. I currently take Riluzole (aka rilutek) and high dose vitamin C and E. I've recently added in zinc. Do people in the US take riluzole or is expense/insurance a problem? Look forward to getting to know y'aal! Barbara Quote Link to comment Share on other sites More sharing options...
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