New Diagnosis

[Guest guest]

I have been struggling for diagnosis and treatment to return to my " old " healthy

self since 2006. First, I was diagnosed with sleep apnea, then Gastroparesis,

then Hashimoto's (which treatment reversed the Gastroparesis). then adrenal

fatique, then progesterone deficient and Growth Hormone. Two weeks ago I came

out of knee surgery on both knees for advanced arthritis!

The Dr asked if I had an accident prior to symptoms starting and I had where I

hit my head in a horse riding fall. She then diagnosed hypopituitary.

I was concerned because my FT3 was always high and I did not feel hyperthyroid

at all. If I tried to decrease to get the FT3 in range I became raging

hypothyroid.

I asked the Dr to test Ferritin to see if low ferritin was causing a problem

with T3 uptake.

The Ferritin test came back 595 with a range of 20-150!!!

New diagnosis Hemochromatosis a genetic disease that causes your body to absorb

too much Iron. It can damage your pituitary and cause advanced arthritis at an

early age (I have grade 4 arthritis at 45 yrs old) as well as damage the thyroid

and adrenal gland.

If you have a diagnosis of hypopituitary and early onset arthritis it is

recommended you test for Hemochromatosis. Not ONE doctor recommended this test.

When the ferritin level rises above 1000 it starts to damage your liver and

heart.

Undiagnosed death comes within 5-15 yrs. If diagnosed before damage it is

treatable by phlebotomy. Once damage occurs the damage is irreversible.

So relieved I got diagnosed before liver/heart damage!!! Many doctors do not

even think to check for Hemochromatosis.

I have been suffering from fatique and this is the number one symptom. I am

anxious to get into a Hematologist and start treatment, I am hoping this is the

last piece of the puzzle and I can live my life again