Re: Advice needed on when to start TTC: UU/BU/SU- AMBER

[Guest guest]

Hi Amber,

Well I thought I would be pregnant by now...I told myself I wanted children

before 35 but here I am..... Not sure why the IVF didn't take...the nurse said

my cycle was perfect and ended up with a perfect 5 day blast but still a

negative...that why I did it a second time thinking it was just a fluke....but

still negative...

The Dr said he removed the partial septum but I'm still BU??? (the surgery pics

doesnt show a dip at the top of my uterus) also I have 2 copies of the MTHFR

gene. I've done a lot of research on immunology and I've read that with that

MTHFR genes and after having several m/c causes a body to make antibodies and

you will usually have failed IVF's....I bought a book (miscarriages what every

woman should know) havent read it yet, just skipped through, but it has some

important things in there..

With the MTHFR gene I now am taking B6, B12, folic acid, baby asprin, prenatal

and will be doing Lovenox so hopefully this time if I get pregnant it will stay.

The Mock Embryo transfer is where the do a ultrasound and pass a catheter into

you using saline....it determines where they will place the embryo on the real

transfer day.

I also thought IVF was easy and you would get pregnant on the first

time...WRONG....I was on this IVF group and many women have done it 5 or more

times...one woman did IUI 7 times. Everyone is different...I dont want to

discourage you...hey you might be the one who get pregnant on the first

time...some have....just want you to go into with a open mind....I was so sure

this would work...when the nurse called me with the results I was CRUSHED...i

cried for days....its emotional draining. There is a great IVF yahoo

group....just go to the group section and type IVF. I'm no longer with that

group but if you need help I'll gladly help you find it.

Best of luck

amber jason amberjason32@...> wrote:

Thank you so much. That is very helpful. I am sorry

that you started IVF at 32 and could not get preg.

It's good that your septum is removed now. Hopefully

that will help you at 35 years. I don't know how

strong I would be if I was still trying in a few

years, which could happen I guess. How do you feel

about that?

1) It's interesting that you could not get pregnat on

IVF. I wonder if this was because of the septum? I

also have a septum/wall down the middle of my uterus

that is the wall to a rudimentary horn. I wonder what

the blood supply would be like? Could this effect

embyro transfer? I guess I won't know until I try.

2) I didn't know about the " mock embroy transfer " . I

have heard of people getting pregnant with one try on

IVF - would that be in addition to the " mock

transfer " ?

3) Are there any IVF forums for MAs? Would you

recommend an IVF Forum to me?

Thanks so much.

Amber

--- susan_thomas6@...> wrote:

> Hi Amber,

>

> My story: after getting pregnant 4 times naturally

> and m/c my obg/yn referred me to a RE. I had a HSG=

> diagnosed as BU, then had a MRI= diagnosed as

> partial septum, then had the lap/hyst surgery to

> remove a partial septum. At age 32 we started IVF

> and before you start a IVF cycle you have to do a

> " mock Embryo transfer " which when I had it done

> still showed something wrong so I had to do another

> HSG which showed a partial septum but my RE thought

> it was enough room to start IVF which we did and it

> ended in a BFN (big fat negative) We tried IVF again

> and another BFN. Now at 35 and after having the

> septum removed we are going to try on our own.

>

> At 32 and getting pregnant on our own 4 times we

> thought IVF would be a success! I also have the

> MTHFR gene (a blood clotting gene) which now we

> think caused the m/c's.

>

> Just my opion If your going to do IVF...do it

> now....I know several people who have to try IVF

> several times....I also was a member of the IVF

> yahoo group which was very helpful. IVF isn't like

> what you see on the movies where the give you drugs

> and boom you get pregnant with twins or more....

>

> I hope this makes sense...my computer keeps shutting

> down and I wanted to hurry up and send this to you!

>

> Best of luck

>

>

> son amberjason32@...> wrote:

> I am newish to this site and have posted only once.

> I

> have learnt a lot from you all and am grateful to be

> able to hear your stories. I am looking for some

> advice. My DH and I are trying to decide when to

> start

> a family.

>

> I am 32.5 and DH has just turned 28. He would like

> to

> wait a few years but I am worried about how long it

> will take TTC and am worried about the

> miscarriage/premature labour risks associated with

> MUs

> and don't want to delay.

>

> This is my story: I was diagnosed with an SU/BU on

> ultrasound at 21 years. At 30 years, the diagnoses

> changed after a saline unfusion ultrasound (via

> catheter through the cervix) revealed an almost

> complete septum down the middle but with only one

> side

> of the uterus filling up with saline injected into

> the

> cervix. At 31 years, after a laproscopy/hyst, I was

> diagnosed with a BU/UU. The uterus looks normal on

> the

> outside but is split on the inside by a thick wall.

> The " good " side is connected to the cervix and the

> other side is a rudimentary horn - smaller and

> completely sealed off from the cervix. If a

> pregnancy

> were to occur in the rudimentary horn, it would

> rupture at 18 weeks. The " good " side is connected to

> 1

> ovary and 1 tube. I have also had a past history of

> endometriosis (level 5) and PCOS.

>

> My RE's proposed treatment regime is as follows: IVF

> to implant the embryo into the " good side " and avoid

> a

> rupture of the bad side. IVF has also been suggested

> because of past history of PCOS and because I am on

> the pill with no breaks because of endrometriosis

> arising from the rudimentary horn - there is no

> outlet

> at the cervix so it goes back up and out the tube.

> When I get pregnant, I have been advised to have a

> cervical stitch at 12 weeks, weekly monitoring and

> to

> finish work at 29 weeks because my RE says the

> median

> (not average) term for people with my uterus is 31

> weeks!?

>

> Given that I know all of the above, I think my DH

> and

> I should start IVF now. Based on your experiences,

> what do you all advise? I would like to pass on some

> information to my DH.

>

> Thanks for reading. Hope to hear from as many of you

> as possible.

>

> Amber

>

>

>

>

>

>

> __________________________________________________

>

[Guest guest]

Thanks for your response. Much appreciated. You

and Gabi have been so helpful.

I might check out the IVF Group that you mention.

All the best

Amber

--- susan_thomas6@...> wrote:

> Hi Amber,

>

> Well I thought I would be pregnant by now...I told

> myself I wanted children before 35 but here I

> am..... Not sure why the IVF didn't take...the nurse

> said my cycle was perfect and ended up with a

> perfect 5 day blast but still a negative...that why

> I did it a second time thinking it was just a

> fluke....but still negative...

>

> The Dr said he removed the partial septum but I'm

> still BU??? (the surgery pics doesnt show a dip at

> the top of my uterus) also I have 2 copies of the

> MTHFR gene. I've done a lot of research on

> immunology and I've read that with that MTHFR genes

> and after having several m/c causes a body to make

> antibodies and you will usually have failed

> IVF's....I bought a book (miscarriages what every

> woman should know) havent read it yet, just skipped

> through, but it has some important things in there..

>

>

> With the MTHFR gene I now am taking B6, B12, folic

> acid, baby asprin, prenatal and will be doing

> Lovenox so hopefully this time if I get pregnant it

> will stay.

>

> The Mock Embryo transfer is where the do a

> ultrasound and pass a catheter into you using

> saline....it determines where they will place the

> embryo on the real transfer day.

> I also thought IVF was easy and you would get

> pregnant on the first time...WRONG....I was on this

> IVF group and many women have done it 5 or more

> times...one woman did IUI 7 times. Everyone is

> different...I dont want to discourage you...hey you

> might be the one who get pregnant on the first

> time...some have....just want you to go into with a

> open mind....I was so sure this would work...when

> the nurse called me with the results I was

> CRUSHED...i cried for days....its emotional

> draining. There is a great IVF yahoo group....just

> go to the group section and type IVF. I'm no longer

> with that group but if you need help I'll gladly

> help you find it.

>

> Best of luck

>

>

> amber jason amberjason32@...> wrote:

>

>

> Thank you so much. That is very helpful. I am sorry

> that you started IVF at 32 and could not get preg.

> It's good that your septum is removed now. Hopefully

> that will help you at 35 years. I don't know how

> strong I would be if I was still trying in a few

> years, which could happen I guess. How do you feel

> about that?

>

> 1) It's interesting that you could not get pregnat

> on

> IVF. I wonder if this was because of the septum? I

> also have a septum/wall down the middle of my uterus

> that is the wall to a rudimentary horn. I wonder

> what

> the blood supply would be like? Could this effect

> embyro transfer? I guess I won't know until I try.

>

> 2) I didn't know about the " mock embroy transfer " . I

> have heard of people getting pregnant with one try

> on

> IVF - would that be in addition to the " mock

> transfer " ?

>

> 3) Are there any IVF forums for MAs? Would you

> recommend an IVF Forum to me?

>

> Thanks so much.

>

> Amber

>

>

>

> --- susan_thomas6@...> wrote:

>

> > Hi Amber,

> >

> > My story: after getting pregnant 4 times

> naturally

> > and m/c my obg/yn referred me to a RE. I had a

> HSG=

> > diagnosed as BU, then had a MRI= diagnosed as

> > partial septum, then had the lap/hyst surgery to

> > remove a partial septum. At age 32 we started IVF

> > and before you start a IVF cycle you have to do a

> > " mock Embryo transfer " which when I had it done

> > still showed something wrong so I had to do

> another

> > HSG which showed a partial septum but my RE

> thought

> > it was enough room to start IVF which we did and

> it

> > ended in a BFN (big fat negative) We tried IVF

> again

> > and another BFN. Now at 35 and after having the

> > septum removed we are going to try on our own.

> >

> > At 32 and getting pregnant on our own 4 times we

> > thought IVF would be a success! I also have the

> > MTHFR gene (a blood clotting gene) which now we

> > think caused the m/c's.

> >

> > Just my opion If your going to do IVF...do it

> > now....I know several people who have to try IVF

> > several times....I also was a member of the IVF

> > yahoo group which was very helpful. IVF isn't

> like

> > what you see on the movies where the give you

> drugs

> > and boom you get pregnant with twins or more....

> >

> > I hope this makes sense...my computer keeps

> shutting

> > down and I wanted to hurry up and send this to

> you!

> >

> > Best of luck

> >

> >

> > son amberjason32@...> wrote:

> > I am newish to this site and have posted only

> once.

> > I

> > have learnt a lot from you all and am grateful to

> be

> > able to hear your stories. I am looking for some

> > advice. My DH and I are trying to decide when to

> > start

> > a family.

> >

> > I am 32.5 and DH has just turned 28. He would like

> > to

> > wait a few years but I am worried about how long

> it

> > will take TTC and am worried about the

> > miscarriage/premature labour risks associated with

> > MUs

> > and don't want to delay.

> >

> > This is my story: I was diagnosed with an SU/BU on

> > ultrasound at 21 years. At 30 years, the diagnoses

> > changed after a saline unfusion ultrasound (via

> > catheter through the cervix) revealed an almost

> > complete septum down the middle but with only one

> > side

> > of the uterus filling up with saline injected into

> > the

> > cervix. At 31 years, after a laproscopy/hyst, I

> was

> > diagnosed with a BU/UU. The uterus looks normal on

> > the

> > outside but is split on the inside by a thick

> wall.

> > The " good " side is connected to the cervix and the

> > other side is a rudimentary horn - smaller and

> > completely sealed off from the cervix. If a

> > pregnancy

> > were to occur in the rudimentary horn, it would

> > rupture at 18 weeks. The " good " side is connected

> to

> > 1

> > ovary and 1 tube. I have also had a past history

> of

> > endometriosis (level 5) and PCOS.

> >

> > My RE's proposed treatment regime is as follows:

> IVF

> > to implant the embryo into the " good side " and

> avoid

> > a

> > rupture of the bad side. IVF has also been

> suggested

> > because of past history of PCOS and because I am

> on

> > the pill with no breaks because of endrometriosis

> > arising from the rudimentary horn - there is no

> > outlet

> > at the cervix so it goes back up and out the tube.

> > When I get pregnant, I have been advised to have a

> > cervical stitch at 12 weeks, weekly monitoring and

> > to

> > finish work at 29 weeks because my RE says the

> > median

> > (not average) term for people with my uterus is 31

> > weeks!?

> >

> > Given that I know all of the above, I think my DH

> > and

> > I should start IVF now. Based on your experiences,

> > what do you all advise? I would like to pass on

> some

>

=== message truncated ===

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