Guest guest Posted March 12, 2006 Report Share Posted March 12, 2006 Actually, that is a pretty standard cost for ABA schools. Anywhere from $50,000 to $70,000 is the norm, depending on the cost of living in your area. For that we get 6 hours of one-on-one therapy 5 days a week, 2 PhDs, a masters degree BCBS, speech therapy, and occupational therapy, and 5 hours of an ABA-trained aide with social skill support in his typical preschool setting. It's an excellent education, and my son is doing very well with it. By the time I accumulated all those different degrees myself, my son would be an adult. He needs it now. I don't have luxury of time to go back to school and get educated in all those specialty areas fast enough to teach him myself. It would be nice if I had what he needed, but I have an MBA, and the best thing that I can do for him now is to earn as much money as I can to pay for trained experts to educate him. His school is wonderful, and I couldn't ask for anything better for him. I'm happy to pay the price - and believe me, nobody at the school is getting rich. Even the director drives an old car and lives in a modest house. It just really costs that much to deliver this quality education for autistic children. What keeps me going is several support groups and being able to talk to other moms, like here. At least there are some people who understand what we're going through. We have an ARC support group, but the ARC doesn't provide respite care. At most of the support groups I attend though, there is childcare provided, and so at least there my son can be safely cared for and I can have an hour or two free to talk to other moms. I take my breaks where I can get them. Yesterday I drove 2 hours just to go to a biomed support group where there was childcare. It was heaven! We have thought about moving, and it continues to be an option, especially as I look for new jobs. But my husband now has, at long last, a wonderful job that provides a lot of flexibility - he is able to work from home when needed and help with driving my son to therapy, and that's difficult to find. Plus, he's an attorney, trained and licensed in Virginia, so it would be hard for him to move his practice to another state. We probably should consider enzymes. The ingredients and his allergies make it difficult to find one that's safe ... never mind one that's also SCD legal! Suzanne > > > " Convenience food " deserves a better name. How about " saving > mommy > > > from the loony bin " food? > > > > > > Off to cook, > > > Suzanne > > > > > Suzanne, > > I am going to just run the idea by you once more of hiring someone > or enlisting a friend > > for a day to prepare food in advance that can be portion packed in > Ziploc type containers > > and frozen. > > > > Assuming there was more convenience food, there couldn't be enough > to address all your > > needs. A helper can make your favorite SCD recipes and baked goods > that freeze well. > > > > Spending hours cooking must be daunting for you under the > circumstances. If you find the > > diet is working, it will get easier and be worth it. > > > > I don';t sleep well and sympathize with what a nightmare to also > have a husband and > > children to look after that need plenty of extra attention. > > > > Carol F. > > SCD, 6 years celiac > > > > > > > > > For information on the Specific Carbohydrate Diet, please read the book _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following websites: > http://www.breakingtheviciouscycle.info > and > http://www.pecanbread.com > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2006 Report Share Posted March 12, 2006 Actually, that is a pretty standard cost for ABA schools. Anywhere from $50,000 to $70,000 is the norm, depending on the cost of living in your area. For that we get 6 hours of one-on-one therapy 5 days a week, 2 PhDs, a masters degree BCBS, speech therapy, and occupational therapy, and 5 hours of an ABA-trained aide with social skill support in his typical preschool setting. It's an excellent education, and my son is doing very well with it. By the time I accumulated all those different degrees myself, my son would be an adult. He needs it now. I don't have luxury of time to go back to school and get educated in all those specialty areas fast enough to teach him myself. It would be nice if I had what he needed, but I have an MBA, and the best thing that I can do for him now is to earn as much money as I can to pay for trained experts to educate him. His school is wonderful, and I couldn't ask for anything better for him. I'm happy to pay the price - and believe me, nobody at the school is getting rich. Even the director drives an old car and lives in a modest house. It just really costs that much to deliver this quality education for autistic children. What keeps me going is several support groups and being able to talk to other moms, like here. At least there are some people who understand what we're going through. We have an ARC support group, but the ARC doesn't provide respite care. At most of the support groups I attend though, there is childcare provided, and so at least there my son can be safely cared for and I can have an hour or two free to talk to other moms. I take my breaks where I can get them. Yesterday I drove 2 hours just to go to a biomed support group where there was childcare. It was heaven! We have thought about moving, and it continues to be an option, especially as I look for new jobs. But my husband now has, at long last, a wonderful job that provides a lot of flexibility - he is able to work from home when needed and help with driving my son to therapy, and that's difficult to find. Plus, he's an attorney, trained and licensed in Virginia, so it would be hard for him to move his practice to another state. We probably should consider enzymes. The ingredients and his allergies make it difficult to find one that's safe ... never mind one that's also SCD legal! Suzanne > > > " Convenience food " deserves a better name. How about " saving > mommy > > > from the loony bin " food? > > > > > > Off to cook, > > > Suzanne > > > > > Suzanne, > > I am going to just run the idea by you once more of hiring someone > or enlisting a friend > > for a day to prepare food in advance that can be portion packed in > Ziploc type containers > > and frozen. > > > > Assuming there was more convenience food, there couldn't be enough > to address all your > > needs. A helper can make your favorite SCD recipes and baked goods > that freeze well. > > > > Spending hours cooking must be daunting for you under the > circumstances. If you find the > > diet is working, it will get easier and be worth it. > > > > I don';t sleep well and sympathize with what a nightmare to also > have a husband and > > children to look after that need plenty of extra attention. > > > > Carol F. > > SCD, 6 years celiac > > > > > > > > > For information on the Specific Carbohydrate Diet, please read the book _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following websites: > http://www.breakingtheviciouscycle.info > and > http://www.pecanbread.com > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2006 Report Share Posted March 12, 2006 {{{Suzanne}}} I don't have any suggestions for you, just wanted to say, i hear ya!! I was personally quite offended by the suggestion that we parents should whine less and cook more. I am a single mom with a spinal cord injury, trying to balance the ongoing cooking for SCD with the challanges of raising a young child with autism and CP, and the daily rigors of the therapy etc that that entails. I don't complain about about the task, but would it be helpful to be able to buy applesauce once in a while, you bet! I would hope that we can support one another here, without the judgements, and realize that we all have different situations, but that we are all doing our best. Cindy, IBD,SCD 10 months Brady 5, ASD, CP, SCD 10 months Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2006 Report Share Posted March 12, 2006 {{{Suzanne}}} I don't have any suggestions for you, just wanted to say, i hear ya!! I was personally quite offended by the suggestion that we parents should whine less and cook more. I am a single mom with a spinal cord injury, trying to balance the ongoing cooking for SCD with the challanges of raising a young child with autism and CP, and the daily rigors of the therapy etc that that entails. I don't complain about about the task, but would it be helpful to be able to buy applesauce once in a while, you bet! I would hope that we can support one another here, without the judgements, and realize that we all have different situations, but that we are all doing our best. Cindy, IBD,SCD 10 months Brady 5, ASD, CP, SCD 10 months Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2006 Report Share Posted March 12, 2006 {{{Suzanne}}} I don't have any suggestions for you, just wanted to say, i hear ya!! I was personally quite offended by the suggestion that we parents should whine less and cook more. I am a single mom with a spinal cord injury, trying to balance the ongoing cooking for SCD with the challanges of raising a young child with autism and CP, and the daily rigors of the therapy etc that that entails. I don't complain about about the task, but would it be helpful to be able to buy applesauce once in a while, you bet! I would hope that we can support one another here, without the judgements, and realize that we all have different situations, but that we are all doing our best. Cindy, IBD,SCD 10 months Brady 5, ASD, CP, SCD 10 months Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2006 Report Share Posted March 12, 2006 Let's not get into ABA bashing here, or telling parents they should choose one therapy over another. I really don't want to get into the ABA vs. Biomed/diet debate. For most of our kids, it's a combination of approaches, not just one thing, that helps them. Keep in mind that ABA is the ONE therapy that has absolutely been scientifically proven (in study after study) to remediate autism. That's something no other therapy, including SCD, can claim. Yesterday I went to an NAA meeting and several of the parents there were doing SCD. ALL of them were also providing ABA for their children. Most parents I know do both biomed and therapy. For us, we see that our kids need the biomed to address the myriad health problems that contribute to their ASD, but biomed alone won't teach the skills they need. Biomed won't teach them to talk, as it's doing for my son. If the schools would provide these therapies, as they're legally required to do, and if insurance companies would pay for biomed treatments then families like ours wouldn't have to go bankrupt. There's where we could be putting our efforts, not fruitlessly wasting our breaths arguing with each other over whether families should choose biomed OR therapy. Suzanne > Summer I was afraid to speak up but you did it for me. ABA although not to be discounted, > is behavioral training and does not address the cause (or a suspected cause) of the > problem, Last year I cried as I watched a documentary on a major network about a family > that went bankrupt and the parents divorced because all their money went to ABA. My > objection was they never heard of or tried SCD. I tried to contact them but never got a > response. > > A one month SCD trial might have given them positive results and hopes for the future. > Worst of all the ABA rewards were candy and cookies. > > Carol F. > SCD 6 years, celiac > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2006 Report Share Posted March 12, 2006 Let's not get into ABA bashing here, or telling parents they should choose one therapy over another. I really don't want to get into the ABA vs. Biomed/diet debate. For most of our kids, it's a combination of approaches, not just one thing, that helps them. Keep in mind that ABA is the ONE therapy that has absolutely been scientifically proven (in study after study) to remediate autism. That's something no other therapy, including SCD, can claim. Yesterday I went to an NAA meeting and several of the parents there were doing SCD. ALL of them were also providing ABA for their children. Most parents I know do both biomed and therapy. For us, we see that our kids need the biomed to address the myriad health problems that contribute to their ASD, but biomed alone won't teach the skills they need. Biomed won't teach them to talk, as it's doing for my son. If the schools would provide these therapies, as they're legally required to do, and if insurance companies would pay for biomed treatments then families like ours wouldn't have to go bankrupt. There's where we could be putting our efforts, not fruitlessly wasting our breaths arguing with each other over whether families should choose biomed OR therapy. Suzanne > Summer I was afraid to speak up but you did it for me. ABA although not to be discounted, > is behavioral training and does not address the cause (or a suspected cause) of the > problem, Last year I cried as I watched a documentary on a major network about a family > that went bankrupt and the parents divorced because all their money went to ABA. My > objection was they never heard of or tried SCD. I tried to contact them but never got a > response. > > A one month SCD trial might have given them positive results and hopes for the future. > Worst of all the ABA rewards were candy and cookies. > > Carol F. > SCD 6 years, celiac > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2006 Report Share Posted March 12, 2006 Thanks Marina. :-) None of us have it easy ... the hardest part sometimes is the choices and knowing if you're doing the right thing. ABA is teaching my son to talk ... it's working, and it's amazing to watch his language unfold. SCD is giving him the ability to learn, without that, the ABA wouldn't make much progress. For us, it's not one or the other, it's both in combination. Suzanne : > > All of us who have special needs children have to make choices among a myriad of educational and biomedical methods. I think it's unfair to categorize any of these as bad choices -- the research will show that there are some kids who are strong responders to just about every therapy out there. So, it's just as legitimate for Suzanne to fund an ABA program as it is to try SCD, or GFCF, or Floortime, or enzymes, or Pivotal Response Training, or whatever. Speaking personally as a mom of two ASD kids, I think it's not fair to say " you're wasting your time doing ABA, you should just be doing SCD. " (By the way, I don't do ABA with mine.) Only time and experimentation will show which therapy or diet or supplement will make a difference for a particular child. I'd say most parents spend a lot of time researching the alternatives out there, and make the choices that make sense for their families -- and they should be respected for that. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2006 Report Share Posted March 12, 2006 Thanks Marina. :-) None of us have it easy ... the hardest part sometimes is the choices and knowing if you're doing the right thing. ABA is teaching my son to talk ... it's working, and it's amazing to watch his language unfold. SCD is giving him the ability to learn, without that, the ABA wouldn't make much progress. For us, it's not one or the other, it's both in combination. Suzanne : > > All of us who have special needs children have to make choices among a myriad of educational and biomedical methods. I think it's unfair to categorize any of these as bad choices -- the research will show that there are some kids who are strong responders to just about every therapy out there. So, it's just as legitimate for Suzanne to fund an ABA program as it is to try SCD, or GFCF, or Floortime, or enzymes, or Pivotal Response Training, or whatever. Speaking personally as a mom of two ASD kids, I think it's not fair to say " you're wasting your time doing ABA, you should just be doing SCD. " (By the way, I don't do ABA with mine.) Only time and experimentation will show which therapy or diet or supplement will make a difference for a particular child. I'd say most parents spend a lot of time researching the alternatives out there, and make the choices that make sense for their families -- and they should be respected for that. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2006 Report Share Posted March 12, 2006 Thanks Marina. :-) None of us have it easy ... the hardest part sometimes is the choices and knowing if you're doing the right thing. ABA is teaching my son to talk ... it's working, and it's amazing to watch his language unfold. SCD is giving him the ability to learn, without that, the ABA wouldn't make much progress. For us, it's not one or the other, it's both in combination. Suzanne : > > All of us who have special needs children have to make choices among a myriad of educational and biomedical methods. I think it's unfair to categorize any of these as bad choices -- the research will show that there are some kids who are strong responders to just about every therapy out there. So, it's just as legitimate for Suzanne to fund an ABA program as it is to try SCD, or GFCF, or Floortime, or enzymes, or Pivotal Response Training, or whatever. Speaking personally as a mom of two ASD kids, I think it's not fair to say " you're wasting your time doing ABA, you should just be doing SCD. " (By the way, I don't do ABA with mine.) Only time and experimentation will show which therapy or diet or supplement will make a difference for a particular child. I'd say most parents spend a lot of time researching the alternatives out there, and make the choices that make sense for their families -- and they should be respected for that. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2006 Report Share Posted March 12, 2006 > > We use the microwave a lot, which helps shorten veggie cooking > time. I gave mine away, I wasn't happy with the way it jiggled the molecules from the inside. I also learned many years ago that vegetables that have been cooked and refrigerated lose nutrients. I realize with your schedule and burdens this stuff is secondary. Also all the suggestions I gave do not revolve around nuts. Carol F. SCD 6 years, celiac Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2006 Report Share Posted March 12, 2006 > > We use the microwave a lot, which helps shorten veggie cooking > time. I gave mine away, I wasn't happy with the way it jiggled the molecules from the inside. I also learned many years ago that vegetables that have been cooked and refrigerated lose nutrients. I realize with your schedule and burdens this stuff is secondary. Also all the suggestions I gave do not revolve around nuts. Carol F. SCD 6 years, celiac Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2006 Report Share Posted March 12, 2006 > > {{{Suzanne}}} I don't have any suggestions for you, just wanted to > say, i hear ya!! I was personally quite offended by the suggestion > that we parents should whine less and cook more. Who said that? My suggestion was to address the suspected internal cause. All the training in the world doesn't eliminate gut pain. I said try SCD, not DO ONLY SCD. I also never accused anyone of whining so I am going to assume you are referring to someone else. Autism parents simply can't have a normal life and have a perfect right to feel frustrated and cheated and cursed. Fortunately in the past five years SCD was found to help and fill in another piece to the puzzle. Again I don't know who used the word " whining, " but be clear it wasn't I. When my puppy is sick for two days I am frantic and on edge the whole time and sure can relate!. We have to cook to eat. Actually a lot of raw foodists say their food takes longer to prepare than cooking. How many of us existed mostly on convenience food before? How did it help your health? Time is money but health means more. I tried to make a few suggestions for some quick SCD foods. Not all can be made quickly that is obvious. Commiting to major lifestyles often requires a gigantic effort but when you succeed and look back it sure was worth it. I just came from the supermarket with salad greens, chicken breasts, peppers, tangerines, berries, cheese, honey, prosciutto, salmon, goat's milk ginger, pears, blanched almonds and a few dates. The woman in front had white bread, Mac 'n Cheese boxes, cartons of juice drinks, donuts, Minute Rice and breaded fish sticks. One wonders what she will do with the time she is going to save. carol F. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2006 Report Share Posted March 12, 2006 > > {{{Suzanne}}} I don't have any suggestions for you, just wanted to > say, i hear ya!! I was personally quite offended by the suggestion > that we parents should whine less and cook more. Who said that? My suggestion was to address the suspected internal cause. All the training in the world doesn't eliminate gut pain. I said try SCD, not DO ONLY SCD. I also never accused anyone of whining so I am going to assume you are referring to someone else. Autism parents simply can't have a normal life and have a perfect right to feel frustrated and cheated and cursed. Fortunately in the past five years SCD was found to help and fill in another piece to the puzzle. Again I don't know who used the word " whining, " but be clear it wasn't I. When my puppy is sick for two days I am frantic and on edge the whole time and sure can relate!. We have to cook to eat. Actually a lot of raw foodists say their food takes longer to prepare than cooking. How many of us existed mostly on convenience food before? How did it help your health? Time is money but health means more. I tried to make a few suggestions for some quick SCD foods. Not all can be made quickly that is obvious. Commiting to major lifestyles often requires a gigantic effort but when you succeed and look back it sure was worth it. I just came from the supermarket with salad greens, chicken breasts, peppers, tangerines, berries, cheese, honey, prosciutto, salmon, goat's milk ginger, pears, blanched almonds and a few dates. The woman in front had white bread, Mac 'n Cheese boxes, cartons of juice drinks, donuts, Minute Rice and breaded fish sticks. One wonders what she will do with the time she is going to save. carol F. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2006 Report Share Posted March 12, 2006 Not once did I, or anyone else's post I read bash ABA. Not once did I say choose one therapy over another. My comment was about the price and unfortunate lack or resources. I share things that work for my family. Where have I ever picked apart therapies? I do whole heartedly mention that my son's language had non-existant progress with therapies, and after my sons brains cleared up being on SCD, and use of digestive enzymes (it is theorized and some reseach has shown a correlation between unbroken peptides affecting the nervous system) they were able to speak spontaneously. I homeschool them, and work on speech therapy with them myself. It takes time for the healing on SCD, and I am grateful for it. The first year, especially the first 6 months are the roughest. Life is different for us with children that have autism. In discussion, I naturally question everything. In sharing and hearing different viewpoints, different paths people take, this is all important. People do take different paths. There is not one doctor or professional I do not question throughly, from a school teacher to a therapist, a car mechanic to a surgeon. It is not bashing to question what one is doing. I have done this myself, every step of the way. It is unfortunate where you live it does cost so much. I only mention an idea, living by a huge science university, like OHSU, and perhaps this is true for the other ones too in other areas, they offer ABA and a whole list of therapies through the school system. In other words, what was offered to us, we started public school, their therapists came and tested us, and offered their services directly for these items, so they can compile data. Directly through the University on the campus! There is no Biomed/Diet Debate. That is somewhere else. When I post what works for us, I only do so to share. I read with rapture what others who have recovering kids are doing. I question what they do, I question what I do, and if something seems necessary to add, I add it to our protocol. Below, besides resource talk, a show was mentionned that highlights our realities only too closely, and it is not right. That is not ABA bashing, when parents in this society have no societal and financial support for their special needs kids. This is society bashing. lol My own children are recovering from SCD, as well as this mom here from some pretty vicious autoimmune problems. We owe alot to SCD, and things like digestive enzymes. Summer Suzanne szmidford@...> wrote: Let's not get into ABA bashing here, or telling parents they should choose one therapy over another. I really don't want to get into the ABA vs. Biomed/diet debate. For most of our kids, it's a combination of approaches, not just one thing, that helps them. Keep in mind that ABA is the ONE therapy that has absolutely been scientifically proven (in study after study) to remediate autism. That's something no other therapy, including SCD, can claim. Yesterday I went to an NAA meeting and several of the parents there were doing SCD. ALL of them were also providing ABA for their children. Most parents I know do both biomed and therapy. For us, we see that our kids need the biomed to address the myriad health problems that contribute to their ASD, but biomed alone won't teach the skills they need. Biomed won't teach them to talk, as it's doing for my son. If the schools would provide these therapies, as they're legally required to do, and if insurance companies would pay for biomed treatments then families like ours wouldn't have to go bankrupt. There's where we could be putting our efforts, not fruitlessly wasting our breaths arguing with each other over whether families should choose biomed OR therapy. Suzanne > Summer I was afraid to speak up but you did it for me. ABA although not to be discounted, > is behavioral training and does not address the cause (or a suspected cause) of the > problem, Last year I cried as I watched a documentary on a major network about a family > that went bankrupt and the parents divorced because all their money went to ABA. My > objection was they never heard of or tried SCD. I tried to contact them but never got a > response. > > A one month SCD trial might have given them positive results and hopes for the future. > Worst of all the ABA rewards were candy and cookies. > > Carol F. > SCD 6 years, celiac > For information on the Specific Carbohydrate Diet, please read the book _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following websites: http://www.breakingtheviciouscycle.info and http://www.pecanbread.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2006 Report Share Posted March 12, 2006 Not once did I, or anyone else's post I read bash ABA. Not once did I say choose one therapy over another. My comment was about the price and unfortunate lack or resources. I share things that work for my family. Where have I ever picked apart therapies? I do whole heartedly mention that my son's language had non-existant progress with therapies, and after my sons brains cleared up being on SCD, and use of digestive enzymes (it is theorized and some reseach has shown a correlation between unbroken peptides affecting the nervous system) they were able to speak spontaneously. I homeschool them, and work on speech therapy with them myself. It takes time for the healing on SCD, and I am grateful for it. The first year, especially the first 6 months are the roughest. Life is different for us with children that have autism. In discussion, I naturally question everything. In sharing and hearing different viewpoints, different paths people take, this is all important. People do take different paths. There is not one doctor or professional I do not question throughly, from a school teacher to a therapist, a car mechanic to a surgeon. It is not bashing to question what one is doing. I have done this myself, every step of the way. It is unfortunate where you live it does cost so much. I only mention an idea, living by a huge science university, like OHSU, and perhaps this is true for the other ones too in other areas, they offer ABA and a whole list of therapies through the school system. In other words, what was offered to us, we started public school, their therapists came and tested us, and offered their services directly for these items, so they can compile data. Directly through the University on the campus! There is no Biomed/Diet Debate. That is somewhere else. When I post what works for us, I only do so to share. I read with rapture what others who have recovering kids are doing. I question what they do, I question what I do, and if something seems necessary to add, I add it to our protocol. Below, besides resource talk, a show was mentionned that highlights our realities only too closely, and it is not right. That is not ABA bashing, when parents in this society have no societal and financial support for their special needs kids. This is society bashing. lol My own children are recovering from SCD, as well as this mom here from some pretty vicious autoimmune problems. We owe alot to SCD, and things like digestive enzymes. Summer Suzanne szmidford@...> wrote: Let's not get into ABA bashing here, or telling parents they should choose one therapy over another. I really don't want to get into the ABA vs. Biomed/diet debate. For most of our kids, it's a combination of approaches, not just one thing, that helps them. Keep in mind that ABA is the ONE therapy that has absolutely been scientifically proven (in study after study) to remediate autism. That's something no other therapy, including SCD, can claim. Yesterday I went to an NAA meeting and several of the parents there were doing SCD. ALL of them were also providing ABA for their children. Most parents I know do both biomed and therapy. For us, we see that our kids need the biomed to address the myriad health problems that contribute to their ASD, but biomed alone won't teach the skills they need. Biomed won't teach them to talk, as it's doing for my son. If the schools would provide these therapies, as they're legally required to do, and if insurance companies would pay for biomed treatments then families like ours wouldn't have to go bankrupt. There's where we could be putting our efforts, not fruitlessly wasting our breaths arguing with each other over whether families should choose biomed OR therapy. Suzanne > Summer I was afraid to speak up but you did it for me. ABA although not to be discounted, > is behavioral training and does not address the cause (or a suspected cause) of the > problem, Last year I cried as I watched a documentary on a major network about a family > that went bankrupt and the parents divorced because all their money went to ABA. My > objection was they never heard of or tried SCD. I tried to contact them but never got a > response. > > A one month SCD trial might have given them positive results and hopes for the future. > Worst of all the ABA rewards were candy and cookies. > > Carol F. > SCD 6 years, celiac > For information on the Specific Carbohydrate Diet, please read the book _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following websites: http://www.breakingtheviciouscycle.info and http://www.pecanbread.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2006 Report Share Posted March 12, 2006 Hi Suzanne; I agree with you wholeheartedly - it is a combination of approaches that will recover our ASD children. And yes, I too spend over $40,000 a year for different treatments for my child (including ABA) - you're right, it is the norm. You're not alone... you're doing a great job Mommy!! Kim :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2006 Report Share Posted March 12, 2006 Hi Suzanne; I agree with you wholeheartedly - it is a combination of approaches that will recover our ASD children. And yes, I too spend over $40,000 a year for different treatments for my child (including ABA) - you're right, it is the norm. You're not alone... you're doing a great job Mommy!! Kim :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2006 Report Share Posted March 12, 2006 Hi Suzanne; I agree with you wholeheartedly - it is a combination of approaches that will recover our ASD children. And yes, I too spend over $40,000 a year for different treatments for my child (including ABA) - you're right, it is the norm. You're not alone... you're doing a great job Mommy!! Kim :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2006 Report Share Posted March 14, 2006 Please consider looking into RDI instead of ABA. You could be the one to teach your child what they were unable to learn prior to 2 years of age - to learn from your example. Instead of rushing to make our children functional and appear typical we could teach our children flexible thinking and problem solving through RDI at the low cost of about $250.00 a month to consult with an RDI consultant. www. rdiconnect.com Convinced that RDI and SCD can truly make my child " typical " again Re: cheating? Boy, it sure would be great if that were an option. We could use the help. Hiring someone is out of the question. We're paying $60,000 a year for Tom's ABA therapy, and I just lost my job. Our old friends don't understand our life AT ALL and we rarely see them. We've asked for help from our family and they just think we're complaining. Our new friends, the ones who get it, are parents of autistic kids of their own, and of course they already have their hands full. We live in a state that provides no respite care funding. I wish it were easy to get help, but we sure have tried in the past and we've never found any. Suzanne > > " Convenience food " deserves a better name. How about " saving mommy > > from the loony bin " food? > > > > Off to cook, > > Suzanne > > > Suzanne, > I am going to just run the idea by you once more of hiring someone or enlisting a friend > for a day to prepare food in advance that can be portion packed in Ziploc type containers > and frozen. > > Assuming there was more convenience food, there couldn't be enough to address all your > needs. A helper can make your favorite SCD recipes and baked goods that freeze well. > > Spending hours cooking must be daunting for you under the circumstances. If you find the > diet is working, it will get easier and be worth it. > > I don';t sleep well and sympathize with what a nightmare to also have a husband and > children to look after that need plenty of extra attention. > > Carol F. > SCD, 6 years celiac > For information on the Specific Carbohydrate Diet, please read the book _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following websites: http://www.breakingtheviciouscycle.info and http://www.pecanbread.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2006 Report Share Posted March 14, 2006 Please consider looking into RDI instead of ABA. You could be the one to teach your child what they were unable to learn prior to 2 years of age - to learn from your example. Instead of rushing to make our children functional and appear typical we could teach our children flexible thinking and problem solving through RDI at the low cost of about $250.00 a month to consult with an RDI consultant. www. rdiconnect.com Convinced that RDI and SCD can truly make my child " typical " again Re: cheating? Boy, it sure would be great if that were an option. We could use the help. Hiring someone is out of the question. We're paying $60,000 a year for Tom's ABA therapy, and I just lost my job. Our old friends don't understand our life AT ALL and we rarely see them. We've asked for help from our family and they just think we're complaining. Our new friends, the ones who get it, are parents of autistic kids of their own, and of course they already have their hands full. We live in a state that provides no respite care funding. I wish it were easy to get help, but we sure have tried in the past and we've never found any. Suzanne > > " Convenience food " deserves a better name. How about " saving mommy > > from the loony bin " food? > > > > Off to cook, > > Suzanne > > > Suzanne, > I am going to just run the idea by you once more of hiring someone or enlisting a friend > for a day to prepare food in advance that can be portion packed in Ziploc type containers > and frozen. > > Assuming there was more convenience food, there couldn't be enough to address all your > needs. A helper can make your favorite SCD recipes and baked goods that freeze well. > > Spending hours cooking must be daunting for you under the circumstances. If you find the > diet is working, it will get easier and be worth it. > > I don';t sleep well and sympathize with what a nightmare to also have a husband and > children to look after that need plenty of extra attention. > > Carol F. > SCD, 6 years celiac > For information on the Specific Carbohydrate Diet, please read the book _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following websites: http://www.breakingtheviciouscycle.info and http://www.pecanbread.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2006 Report Share Posted March 14, 2006 Please consider looking into RDI instead of ABA. You could be the one to teach your child what they were unable to learn prior to 2 years of age - to learn from your example. Instead of rushing to make our children functional and appear typical we could teach our children flexible thinking and problem solving through RDI at the low cost of about $250.00 a month to consult with an RDI consultant. www. rdiconnect.com Convinced that RDI and SCD can truly make my child " typical " again Re: cheating? Boy, it sure would be great if that were an option. We could use the help. Hiring someone is out of the question. We're paying $60,000 a year for Tom's ABA therapy, and I just lost my job. Our old friends don't understand our life AT ALL and we rarely see them. We've asked for help from our family and they just think we're complaining. Our new friends, the ones who get it, are parents of autistic kids of their own, and of course they already have their hands full. We live in a state that provides no respite care funding. I wish it were easy to get help, but we sure have tried in the past and we've never found any. Suzanne > > " Convenience food " deserves a better name. How about " saving mommy > > from the loony bin " food? > > > > Off to cook, > > Suzanne > > > Suzanne, > I am going to just run the idea by you once more of hiring someone or enlisting a friend > for a day to prepare food in advance that can be portion packed in Ziploc type containers > and frozen. > > Assuming there was more convenience food, there couldn't be enough to address all your > needs. A helper can make your favorite SCD recipes and baked goods that freeze well. > > Spending hours cooking must be daunting for you under the circumstances. If you find the > diet is working, it will get easier and be worth it. > > I don';t sleep well and sympathize with what a nightmare to also have a husband and > children to look after that need plenty of extra attention. > > Carol F. > SCD, 6 years celiac > For information on the Specific Carbohydrate Diet, please read the book _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following websites: http://www.breakingtheviciouscycle.info and http://www.pecanbread.com Quote Link to comment Share on other sites More sharing options...
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