Guest guest Posted July 13, 2000 Report Share Posted July 13, 2000 new member >HI >MY NAME IS KATIE, I LIVE JUST OUTSIDE KNOXVILLE,TN. I'M 46 YEARS OLD, Hi, !! See ya made it here! LOL, yes I'm sure you will enjoy this nice group of people, they are helpful, kind, funny, and between all of us we have a lot of CMT information! Nice to see you here, ~>Becky M. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2000 Report Share Posted July 13, 2000 new member >HI >MY NAME IS KATIE, I LIVE JUST OUTSIDE KNOXVILLE,TN. I'M 46 YEARS OLD, Hi, !! See ya made it here! LOL, yes I'm sure you will enjoy this nice group of people, they are helpful, kind, funny, and between all of us we have a lot of CMT information! Nice to see you here, ~>Becky M. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2000 Report Share Posted July 13, 2000 new member >HI >MY NAME IS KATIE, I LIVE JUST OUTSIDE KNOXVILLE,TN. I'M 46 YEARS OLD, Hi, !! See ya made it here! LOL, yes I'm sure you will enjoy this nice group of people, they are helpful, kind, funny, and between all of us we have a lot of CMT information! Nice to see you here, ~>Becky M. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2000 Report Share Posted July 14, 2000 GLAD I FOUND OUT ABOUT THIS GROUP. I'M ENJOYING READING WHAT EVERYONE HAS TO SAY. I'M ALSO EXPERIENCING COLD, BUT ONLY IN MY LEFT LEG. HAVING A LOT OF TROUBLE WITH MY LEFT LEG, SCIATIC NERVE PAIN AND PAIN IN OUTER THIGH THAT HURTS WORSE THE MORE I WALK. DOCTORS SAY IT'S ALL BECAUSE OF CMT. I ALSO TAKE PROPRANOLOL FOR MY TREMORS. IT HELPS A LOT, BUT DOESN'T STOP THEM COMPLETELY. AS LONG AS IT SLOWS THE TREMORS, I'M SATISFIED. ANY SUGGESTIONS ON THE LEG PAIN, ANY ONE HAD SIMILAR PAIN? KATIE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2000 Report Share Posted July 14, 2000 MY CHILD WITH CMT IS DOING FINE. SHE IS 26 YRS. SHE NEVER HAD AS MUCH TROUBLE GROWING UP AS I DID. NEVER HAD THE SPRAINED ANKLES. ME, THAT'S ANOTHER STORY. I FELL OFF OF THE SCHOOL BUS SEVERAL TIMES, RIGHT ANKLE SPRAINED SO MANY TIMES I LOST COUNT. FELL AT SCHOOL, JUST WALKING FROM CLASS TO CLASS. I'VE HAD TRIPLE ARTHRODESIS ON RIGHT ANKLE IN 94. LAST DECEMBER HAD ANOTHER SURGERY TO REMOVE CALLOUS AND CORN CAUSED BY TOO MUCH PRESSURE. HANDS HURT A LOT. JUST PACE MYSELF, AM LEARNING WHEN TO QUIT INSTEAD OF JUST KEEP GOING LIKE I USED TO DO. ALSO HAVING A LOT OF MUSCLE SPASMS IN UPPER LEGS. KATIE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2000 Report Share Posted July 14, 2000 MY CHILD WITH CMT IS DOING FINE. SHE IS 26 YRS. SHE NEVER HAD AS MUCH TROUBLE GROWING UP AS I DID. NEVER HAD THE SPRAINED ANKLES. ME, THAT'S ANOTHER STORY. I FELL OFF OF THE SCHOOL BUS SEVERAL TIMES, RIGHT ANKLE SPRAINED SO MANY TIMES I LOST COUNT. FELL AT SCHOOL, JUST WALKING FROM CLASS TO CLASS. I'VE HAD TRIPLE ARTHRODESIS ON RIGHT ANKLE IN 94. LAST DECEMBER HAD ANOTHER SURGERY TO REMOVE CALLOUS AND CORN CAUSED BY TOO MUCH PRESSURE. HANDS HURT A LOT. JUST PACE MYSELF, AM LEARNING WHEN TO QUIT INSTEAD OF JUST KEEP GOING LIKE I USED TO DO. ALSO HAVING A LOT OF MUSCLE SPASMS IN UPPER LEGS. KATIE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2000 Report Share Posted July 14, 2000 I'M NOT FROM THE NASHVILLE AREA, I'M FROM KNOXVILLE AREA. BETWEEN KNOXVILLE AND THE SMOKY MOUNTAINS. AS FAR AS I KNOW I'M NOT RELATED TO ANY MCGILLS. NEITHER PARENT, SIBLINGS, AUNTS, UNCLES, OR COUSINS HAVE HIGH ARCHES OR ANY REASON TO BELIEVE THEY HAVE CMT. I KNOW PEOPLE CAN HAVE IT AND NOT SHOW ANY SYMPTOMS. BOY, DO I ENVY THEM. I WAS THE YOUNGEST OF 9 CHILDREN, THE ONLY ONE WITH ANY WEAKNESS OR HIGH ARCHES. I HAVE 2 CHILDREN, THE FIRST HAS CMT W/TREMORS, JUST LIKE ME. THE YOUNGEST DOES NOT. I WAS ALWAYS WEAK AS A CHILD, COULDN'T RUN, COULDN'T THROW A BALL. REMEMBER MONKEY BARS AT THE PLAYGROUND? I WANTED TO WALK THEM SO MUCH, BUT COULDN'T. ARMS JUST WOULDN'T LET ME. KATIE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2000 Report Share Posted July 14, 2000 Hello the House, Welcome my friend to the most knowledgeable group you have ever encountered. If I may make a suggestion, lower case print is a lot easier to read then upper case, at least from my prospective. Again welcome aboard E Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2000 Report Share Posted July 14, 2000 hi.my name is Candi ,i also suffer from cmt.i have alot of pain in my legs.i take vicodin,doxipin,and ms contin if the pain is worse.and this summer heat just drains me!!!anyway im 44 and live in Ohio have 1son,28 and he also is having syptoms.im also hard of hearing and read lips.keep your chin up, well all get thru this together.write soon!!Candi Re: new member > GLAD I FOUND OUT ABOUT THIS GROUP. I'M ENJOYING READING WHAT EVERYONE HAS TO > SAY. I'M ALSO EXPERIENCING COLD, BUT ONLY IN MY LEFT LEG. HAVING A LOT OF > TROUBLE WITH MY LEFT LEG, SCIATIC NERVE PAIN AND PAIN IN OUTER THIGH THAT > HURTS WORSE THE MORE I WALK. DOCTORS SAY IT'S ALL BECAUSE OF CMT. > I ALSO TAKE PROPRANOLOL FOR MY TREMORS. IT HELPS A LOT, BUT DOESN'T STOP THEM > COMPLETELY. AS LONG AS IT SLOWS THE TREMORS, I'M SATISFIED. > ANY SUGGESTIONS ON THE LEG PAIN, ANY ONE HAD SIMILAR PAIN? > KATIE > > ------------------------------------------------------------------------ > To email plain text is conventional, to add graphics is divine. > We'll show you how at www.supersig.com. > http://click.egroups.com/1/6811/13/_/616793/_/963581401/ > ------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2000 Report Share Posted July 14, 2000 hi.my name is Candi ,i also suffer from cmt.i have alot of pain in my legs.i take vicodin,doxipin,and ms contin if the pain is worse.and this summer heat just drains me!!!anyway im 44 and live in Ohio have 1son,28 and he also is having syptoms.im also hard of hearing and read lips.keep your chin up, well all get thru this together.write soon!!Candi Re: new member > GLAD I FOUND OUT ABOUT THIS GROUP. I'M ENJOYING READING WHAT EVERYONE HAS TO > SAY. I'M ALSO EXPERIENCING COLD, BUT ONLY IN MY LEFT LEG. HAVING A LOT OF > TROUBLE WITH MY LEFT LEG, SCIATIC NERVE PAIN AND PAIN IN OUTER THIGH THAT > HURTS WORSE THE MORE I WALK. DOCTORS SAY IT'S ALL BECAUSE OF CMT. > I ALSO TAKE PROPRANOLOL FOR MY TREMORS. IT HELPS A LOT, BUT DOESN'T STOP THEM > COMPLETELY. AS LONG AS IT SLOWS THE TREMORS, I'M SATISFIED. > ANY SUGGESTIONS ON THE LEG PAIN, ANY ONE HAD SIMILAR PAIN? > KATIE > > ------------------------------------------------------------------------ > To email plain text is conventional, to add graphics is divine. > We'll show you how at www.supersig.com. > http://click.egroups.com/1/6811/13/_/616793/_/963581401/ > ------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2000 Report Share Posted July 14, 2000 OH I BET I CAN BRING BACK MORE MEMORIES IF I TRIED. I ALWAYS MADE A DRAMATIC ENTRY TO SOME OF MY CLASSES IN HIGH SCHOOL. WE HAD A BUILDING WITH 3 FLOORS. MOST OF THE TIME I FELL DOWN THE STAIRS. WHY IS IT EASIER TO READ LOWER CLASS SPELLING, JUST CURIOUS. IT'S EASIER FOR ME TO DO IT ALL THE SAME SINCE THE FINGERS DON'T WORK WELL. I CAN , OF COURSE NOT CAPITALIZE ANY WORDS. IF IT HELPS, I DON'T MIND. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2000 Report Share Posted July 14, 2000 Re: new member REMEMBER MONKEY BARS AT THE PLAYGROUND? >I WANTED TO WALK THEM SO MUCH, BUT COULDN'T. ARMS JUST WOULDN'T LET ME. >KATIE > OH WOW ! You just brought back a memory for me, the monkey bars at school! I could never play on them and I wanted to very much like the other children, but never could, I didn't have the strength for it. Now at least there was a reason for it (too little to late for hurt feelings as a child) ~>Becky M. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2000 Report Share Posted July 14, 2000 In a message dated 7/14/2000 2:46:52 PM Pacific Daylight Time, ktbugg54@... writes: << IT'S EASIER FOR ME TO DO IT ALL THE SAME SINCE THE FINGERS DON'T WORK WELL. I CAN , OF COURSE NOT CAPITALIZE ANY WORDS. IF IT HELPS, I DON'T MIND. >> For the same reason sometimes I don't use any caps. You do what you feel comfortable with. Welcome Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2000 Report Share Posted July 14, 2000 In a message dated 7/14/2000 2:46:52 PM Pacific Daylight Time, ktbugg54@... writes: << IT'S EASIER FOR ME TO DO IT ALL THE SAME SINCE THE FINGERS DON'T WORK WELL. I CAN , OF COURSE NOT CAPITALIZE ANY WORDS. IF IT HELPS, I DON'T MIND. >> For the same reason sometimes I don't use any caps. You do what you feel comfortable with. Welcome Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2000 Report Share Posted July 14, 2000 KTbugg54, Lamar here, It is well proven that lower case is kinder on the eyes. It takes much less eye strain than caps, with every letter the same size. In " computerese " all caps is considered to be SCREAMING as well. LOL Re: new member OH I BET I CAN BRING BACK MORE MEMORIES IF I TRIED. I ALWAYS MADE A DRAMATIC ENTRY TO SOME OF MY CLASSES IN HIGH SCHOOL. WE HAD A BUILDING WITH 3 FLOORS. MOST OF THE TIME I FELL DOWN THE STAIRS. WHY IS IT EASIER TO READ LOWER CLASS SPELLING, JUST CURIOUS. IT'S EASIER FOR ME TO DO IT ALL THE SAME SINCE THE FINGERS DON'T WORK WELL. I CAN , OF COURSE NOT CAPITALIZE ANY WORDS. IF IT HELPS, I DON'T MIND. ------------------------------------------------------------------------------ ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2000 Report Share Posted July 14, 2000 KTbugg54, Lamar here, It is well proven that lower case is kinder on the eyes. It takes much less eye strain than caps, with every letter the same size. In " computerese " all caps is considered to be SCREAMING as well. LOL Re: new member OH I BET I CAN BRING BACK MORE MEMORIES IF I TRIED. I ALWAYS MADE A DRAMATIC ENTRY TO SOME OF MY CLASSES IN HIGH SCHOOL. WE HAD A BUILDING WITH 3 FLOORS. MOST OF THE TIME I FELL DOWN THE STAIRS. WHY IS IT EASIER TO READ LOWER CLASS SPELLING, JUST CURIOUS. IT'S EASIER FOR ME TO DO IT ALL THE SAME SINCE THE FINGERS DON'T WORK WELL. I CAN , OF COURSE NOT CAPITALIZE ANY WORDS. IF IT HELPS, I DON'T MIND. ------------------------------------------------------------------------------ ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2000 Report Share Posted July 14, 2000 Hi , nice to meet you.... I am I dream of Jeanie age 39. I've had CMT since age 5. I'm married with 2 kids and a cat. I've also had triple arthodesis on both feet plus heal chords lengthed, right lower leg straightened and right ankle fused solid. I wear an AFO on my left foot and use 1 to 2 arm crutches to get around. I also have an electric Wheelchair with a lift seat that has changed my life. I now can cook and clean. I take Welbutrin for my depression and vicodin for my pain. My hands are also affected, they get weak quickly and if I over use they will hurt and I won't be able to grip anything. hey are not deformed though. I also see a Therapeutic Massage Specialist that has changed my life. I went from very very sever pain to pain. By the way..... Thank-you to everyone on this list for always being there when I fall apart. Jeanie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2000 Report Share Posted July 14, 2000 Hi , nice to meet you.... I am I dream of Jeanie age 39. I've had CMT since age 5. I'm married with 2 kids and a cat. I've also had triple arthodesis on both feet plus heal chords lengthed, right lower leg straightened and right ankle fused solid. I wear an AFO on my left foot and use 1 to 2 arm crutches to get around. I also have an electric Wheelchair with a lift seat that has changed my life. I now can cook and clean. I take Welbutrin for my depression and vicodin for my pain. My hands are also affected, they get weak quickly and if I over use they will hurt and I won't be able to grip anything. hey are not deformed though. I also see a Therapeutic Massage Specialist that has changed my life. I went from very very sever pain to pain. By the way..... Thank-you to everyone on this list for always being there when I fall apart. Jeanie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2000 Report Share Posted July 14, 2000 sorry lamar, is this better. now i have to put on my glasses. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2000 Report Share Posted July 14, 2000 sorry lamar, is this better. now i have to put on my glasses. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2000 Report Share Posted July 14, 2000 Re: new member >OH I BET I CAN BRING BACK MORE MEMORIES IF I TRIED. I ALWAYS MADE A DRAMATIC >ENTRY TO SOME OF MY CLASSES IN HIGH SCHOOL. WE HAD A BUILDING WITH 3 FLOORS. >MOST OF THE TIME I FELL DOWN THE STAIRS. > >I was the tallest in my class at the time, hum, coming to think of it maybe I was the tallest in school at that time! So I was tagged, The jolly green giant. Well, that makes one feel good about them selves right? NOT! Then to top it off, I was so clumsy, and sports were out, as I never could manage to keep from tripping over my own feet. And I loved to play tennis, but was very very bad at it! I too had those wonderful lets see the school from this angle? The floor? Rolling down the slope from the school entrance!!! Yikes! And I had to wear dress's or skirts back then eons ago. What fun! Gee am I glad those days are over, (school) LOL, ~>Becky M. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2000 Report Share Posted July 14, 2000 Re: new member >OH I BET I CAN BRING BACK MORE MEMORIES IF I TRIED. I ALWAYS MADE A DRAMATIC >ENTRY TO SOME OF MY CLASSES IN HIGH SCHOOL. WE HAD A BUILDING WITH 3 FLOORS. >MOST OF THE TIME I FELL DOWN THE STAIRS. > >I was the tallest in my class at the time, hum, coming to think of it maybe I was the tallest in school at that time! So I was tagged, The jolly green giant. Well, that makes one feel good about them selves right? NOT! Then to top it off, I was so clumsy, and sports were out, as I never could manage to keep from tripping over my own feet. And I loved to play tennis, but was very very bad at it! I too had those wonderful lets see the school from this angle? The floor? Rolling down the slope from the school entrance!!! Yikes! And I had to wear dress's or skirts back then eons ago. What fun! Gee am I glad those days are over, (school) LOL, ~>Becky M. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2000 Report Share Posted July 14, 2000 Re: new member >OH I BET I CAN BRING BACK MORE MEMORIES IF I TRIED. I ALWAYS MADE A DRAMATIC >ENTRY TO SOME OF MY CLASSES IN HIGH SCHOOL. WE HAD A BUILDING WITH 3 FLOORS. >MOST OF THE TIME I FELL DOWN THE STAIRS. > >I was the tallest in my class at the time, hum, coming to think of it maybe I was the tallest in school at that time! So I was tagged, The jolly green giant. Well, that makes one feel good about them selves right? NOT! Then to top it off, I was so clumsy, and sports were out, as I never could manage to keep from tripping over my own feet. And I loved to play tennis, but was very very bad at it! I too had those wonderful lets see the school from this angle? The floor? Rolling down the slope from the school entrance!!! Yikes! And I had to wear dress's or skirts back then eons ago. What fun! Gee am I glad those days are over, (school) LOL, ~>Becky M. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2000 Report Share Posted July 14, 2000 Re: new member >KTbugg54, Lamar here, > >It is well proven that lower case is kinder on the eyes. It takes much less eye strain than caps, with every letter the same size. In " computerese " all caps is considered to be SCREAMING as well. LOL > ----- So Lamar, quit screaming your laughter, Ha-Ha, gotcha, lol~>Becky M. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2000 Report Share Posted July 14, 2000 Re: new member >KTbugg54, Lamar here, > >It is well proven that lower case is kinder on the eyes. It takes much less eye strain than caps, with every letter the same size. In " computerese " all caps is considered to be SCREAMING as well. LOL > ----- So Lamar, quit screaming your laughter, Ha-Ha, gotcha, lol~>Becky M. Quote Link to comment Share on other sites More sharing options...
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