Introduction

[Guest guest]

Crystal,

You and your precious boy can and will get through this.

My youngest daughter Sian (pronounced Sharn - Welsh - means " God is

gracious " ) was diagnosed with CF (double delta 508) when she was two months

old. (On her daddy's 30th birthday yet..)

Sian is now 5 1/2, in her first year in " big school " . She is reading

somewhere around an 8 year old level, writing well, bubbling over with

energy and joy in her life, keeping mummy and her teachers busy, and driving

her big sister up the wall! She has had her CF challenges - her

presentation so far is mostly intestinal. She takes enzymes, vitamin

supplements, and I'm supposed to get 60ml of paraffin oil into her every

day. (What a joke!) She has had one hospitalisation, for a partial bowel

blockage. Just like many little girls her age, Sian is going swimming,

doing ballet and hassling me to go to Brownies!

Sian is, in many respects, an exceptional child. We have recently had a

thread running on one of the CF lists about the fact that so many of our CF

children are exceptionally intelligent, strong willed, energetic, caring and

completely amazing! Adam will be too!!

Stay with us, we are all here for the ride.

Mum to Cate 9 1/2yrs wocf and Sian 5 1/2yrs wcf

Canberra Australia.

[Guest guest]

Crystal,

CF is not a death sentence but it will just take more work to keep him

healthy. They have so many new drugs out there and I can't tell you how many

times people say to me how healthy my girls look. They can go out side and

run and play and do anything they want to do it just that before they get

moving in the mornings and at night they have treatments. They don't have

crutches or a wheelchair that stops them from doing the things they want to

do they just have to do lots of hand washing and just plain be careful but

they can still be a kid. I hope this helps. Deb A

[Guest guest]

In a message dated 5/1/2002 10:43:48 AM Eastern Daylight Time,

gdattig5@... writes:

<< CF is not a death sentence but it will just take more work to keep him

healthy. They have so many new drugs out there and I can't tell you how many

times people say to me how healthy my girls look. They can go out side and

run and play and do anything they want to do it just that before they get

moving in the mornings and at night they have treatments. They don't have

crutches or a wheelchair that stops them from doing the things they want to

do they just have to do lots of hand washing and just plain be careful but

they can still be a kid. I hope this helps. >>

I agree - CF makes them wiser, stronger and better able to juggle and start

thinking ahead. i.e. if I have baseball I better breathe now.

It sucks but they know no different. Its US and our expectations. We just

have to be firm this is what you do end of story. Yes, it sucks but thats

life. I get mad when they say they are SICK because they have CF - no - they

have a disease but it doesn't make them sick!

Rosemary in New York with three children with CF - they are 11, 9, 5.......

I coined the phrase " BREATHE DAMMIT "

[Guest guest]

Hi Crystal, my name is Dawn. Pattimae, our little

cfer, is 18 months old. Except for being a tad small,

she is doing great.

I remember how much I mourned when Patti was first

diagnosed. It is normal and natural. In fact I think

that if you don't deal with all of the morbid feelings

that come you will end up missing all of the other

truely wonderful things about your son.

Yes, I hate cf. I hate even thinking about what it

can do to Patti in the future. But right now, my job

is to learn all I can and store it away for later, and

enjoy Patti to the fullest. We do albuterol nebs and

cpt twice a day and she also has reflux and is on

reglan and zantac.

Welcome, you've come to the right place...

Dawn mom of 4, 6 and under, the youngest wcf

--- illianisis illianisis@...> wrote:

> First let me say thank you to those who posted

> responses to my

> question about support groups.

>

> My name is Crystal and I just gave birth to my

> second child one day

> before my 31st birthday. He is beautiful and has so

> many wonderful

> facial expressions! Just yesterday he laughed and

> that made me laugh

> and then he laughed again!

>

> Adam was born 2/23, he completes our family as we

> have a two-year old

> daughter (le -- sweat test last year was

> negative). He was

> about

> 3 weeks early and had a couple of complications

> during the first

> hours

> of life; heart murmur, hypospadia (his lower part of

> his penis is

> connected to his scrotum) and severe reflux. Our

> family doctor sent

> us

> to KCMO - The Children's Mercy Hospital where he

> spent the first

> month

> of his life. The murmur is normal for his age, the

> hypospadia will be

> taken care of at the end of the summer when he's

> circumcised, and the

> reflux -- well, that's an ordeal still at times, but

> he's on reglan,

> prilosec (his poor stomach was as acidic as an

> adults which I've now

> learned is a common problem for CF kids). Due to the

> multiple things

> " wrong " they did genetic testing and so my husband

> asked them to test

> him to see if is a carrier of CF. My husband is #4

> of 4 children, the

> oldest daughter died of CF in 1970 at age 10, my

> husband was only 3

> and so his memories are few other than what his

> mother talks about.

> I'm sure you can imagine that he did not take it

> well when they took

> us in the conference room and informed us that Adam

> HAS CF.

>

> Adam started the enzymes last Friday and we started

> the " clapping " to

> get him used to it. They say his lungs sound fine

> right now.

>

> I feel funny saying this but -- I NEED to hear from

> others that I/we

> can make it through this. That he can be " normal "

> and like the other

> kids as the CF clinic personnel keep telling us. I'm

> very interested

> in hearing from others the great and wonderful

> things your kids have

> done in life. I want to know that they aren't just

> telling us tales

> to make us feel better about this situation we've

> been dealt.

>

> Let me say thank you to any and all who comment on

> this now. I'm

> grateful for ANY kind of support and information I

> can find. I like

> to think of myself as a strong individual but Adam's

> life will surely

> test that belief!

>

> Crystal Holdeman

> mom to Adam (age 2 months, w/cf) and le (age 2

> 1/2, w/o cf)

>

>

__________________________________________________

[Guest guest]

Crystal,

My son was diagnosed at 4 months after becoming dehydrated. He is now two and

has had no other cf symptoms since. We are careful he gets plenty of salt and

fluids and he gets chest pts twice a day. But he has never had a chest cold and

he so far is pacreatic sufficient and does not need enzymes. There are lots of

variation in symptoms from very severe to mild. We got a scare after our last

clinic visit when the chest xray supposedly showed pneumonia. After the cf dr

looked at the xray it was determined that what the radialogist saw was not of

signifigance, but it was a wakeup call to us, of what we could be facing in the

future.

It was quite a shock to us when he was diagnosed. We have no known cf in the

family. My grandmother had several sibliing that died at birth or shortly after

in the early 1900. That could have been cf but I have no way of knowing now. My

husband and I both have lots of cousins and noone has it.

But he is a joy to be around, very loving and smart. I can't imagine life

without him. I feel blessed to have him just the way he is, cf and all.

Angie (mom to JC, 2, wcf)

Introduction

First let me say thank you to those who posted responses to my

question about support groups.

My name is Crystal and I just gave birth to my second child one day

before my 31st birthday. He is beautiful and has so many wonderful

facial expressions! Just yesterday he laughed and that made me laugh

and then he laughed again!

Adam was born 2/23, he completes our family as we have a two-year old

daughter (le -- sweat test last year was negative). He was

about

3 weeks early and had a couple of complications during the first

hours

of life; heart murmur, hypospadia (his lower part of his penis is

connected to his scrotum) and severe reflux. Our family doctor sent

us

to KCMO - The Children's Mercy Hospital where he spent the first

month

of his life. The murmur is normal for his age, the hypospadia will be

taken care of at the end of the summer when he's circumcised, and the

reflux -- well, that's an ordeal still at times, but he's on reglan,

prilosec (his poor stomach was as acidic as an adults which I've now

learned is a common problem for CF kids). Due to the multiple things

" wrong " they did genetic testing and so my husband asked them to test

him to see if is a carrier of CF. My husband is #4 of 4 children, the

oldest daughter died of CF in 1970 at age 10, my husband was only 3

and so his memories are few other than what his mother talks about.

I'm sure you can imagine that he did not take it well when they took

us in the conference room and informed us that Adam HAS CF.

Adam started the enzymes last Friday and we started the " clapping " to

get him used to it. They say his lungs sound fine right now.

I feel funny saying this but -- I NEED to hear from others that I/we

can make it through this. That he can be " normal " and like the other

kids as the CF clinic personnel keep telling us. I'm very interested

in hearing from others the great and wonderful things your kids have

done in life. I want to know that they aren't just telling us tales

to make us feel better about this situation we've been dealt.

Let me say thank you to any and all who comment on this now. I'm

grateful for ANY kind of support and information I can find. I like

to think of myself as a strong individual but Adam's life will surely

test that belief!

Crystal Holdeman

mom to Adam (age 2 months, w/cf) and le (age 2 1/2, w/o cf)

[Guest guest]

Hello ,

> Here's where I would like some feedback:

> Since September 2001 I have been taking the following

> Lipoic Acid 50mg twice a day

I would suggest that you

stop this at once and do not take ANY more lipoic acid until

3 months after your LAST amalgam replacement. Lipoic acid

is a chelation agent. Taking it with amalgams present is

a very bad idea. This can pull mercury out of amalgams

and create more problems. I am not saying this has happened

to you, just saying it is a danger. You will also need to

take it on a more frequent schedule, but you can take your

time learning more about that.

> I have been reading a lot on the Lipoic Acid and I am so confused.

> If I don't take my lipoic I don't feel good. Also, I eat eggs

> (Sulfur) every morning and if I don't I don't feel so good either.

I

> am assuming this is because they both remove mercury.

no- ALA removes mercury (or redistributes it in some cases),

and eggs do not (but may redistribute it some). Sulfur still

confuses me LOL. Both ALA and eggs are high sulfur though,

so that may be connected to your reaction? You can read

the " sulfur " section here, if you wish:

http://groups.yahoo.com/group/Autism-Mercury/files/ANDY_INDEX

If it is the sulfur that makes you feel better, you can take

NAC or eat more sulfury foods.....

>But according

> to the stuff I have read isn't what I'm doing suppose to be harmful?

> If so, how come I feel better when I am doing it?

read the sulfur section. It is good for some people and bad for

others--- it is not " one way " -- it depends. Sounds like you

are one of the ones who need the sulfur!?

> I haven't done a search yet on this but has anyone had any

> experiences with the IV Vitamin C after removal??

oh, I probably took some orally--- hard to remember, I did

take a bunch of stuff LOL. But I didn't do it IV. I don't

THINK there would be a need to, but maybe I'm missing

something. One can take more C than one can tolerate quite

easily by swallowing pills. Still, there are IV's of it,

so I guess there must be some reason to do it that way that

is eluding me. (I did have a bitamin C IV once when I was

dreadfully ill.....)

> So much for keeping it short 8>)!! Thanks for your time in

answering

> my many questions.

oh, well, I only commented on a couple!

Moria

[Guest guest]

I have been reading a lot on the Lipoic Acid and I am so confused.

If I don't take my lipoic I don't feel good. Also, I eat eggs

(Sulfur) every morning and if I don't I don't feel so good either

[bMFB]

Eggs have many nutrients in them so it could be anything. Many mercury

patients do well on eggs, according to Huggins. The yolks have cholesterol

that is important for making hormones for energy. Raw foodists use raw eggs

for removing toxins, I don't know if chelation is technically the right

word.

[Guest guest]

hi wendy, i am also new to the group. my name is janelle ,and i am mom to

alex 6 w/cf. i am also glad i found the group because there is nothing here

in pa for support.i feel so thankful to know there are others feeling alot of

the same feelings. good luck to you and your new one coming. janelle

[Guest guest]

Wendi,

Welcome to the list. Congratulations on the soon to be newest member of your

family.

Mom to Elliot

16mths wcf

[Guest guest]

, wishing you the best of good fortune; your feelings are

entirely understandable!

Love to you all,

n wcf, Mom of 3 adults, 1 wcf; I am widowed; the one with cf was last!,

but not in my heart!

[Guest guest]

-

I too had another child after my son was diagnosed with CF(not

necessarily planned:) )More so than Cory having feelings of not

having enough attention, I have always felt that I have had to give

the oldest and the youngest more attention due to the fact that Cory

required so much of my care. My daughter use to sit beside me when I

did BD on Cory and do the same to her dolls. I will always remember

being out with my daughter and for the first time she realized that

not all babies were like Cory. She turned and said " That mommy forgot

to give her baby pills first " In her eyes, all babies took enzymes

and she couldn't see it any other way. I have found that by Cory

being the middle child the other children have some very strong

qualities. Amber is very protective of all children with

disabilities. And I say VERY in a strong sense. Casey the youngest

is a sensitive child. He actually worries more about Cory when he is

sick than I do. Cf was always part of his life so he never seen it

any different. It became part of life to, go to grandma's when Cory

was sick. I think he can list all of Cory medication more so than

Cory can. Even though Casey, the youngest, stands taller than Cory

and wighs more than Cory, he has never mentioned it. Actually once

he realized that he weighed more than Cory, he once told Cory he

wighed less than he really did, so it wouldn't bother him. We are a

single parent household so sometimes that makes things rough but in

general it is best described like this...We are just a normal family

with some added extras and those extras make our family special. I

have always included all of the kids in Cory's care which I do

beleive helps. Casey at the age of 12 knows how to run Cory's IV,

Amber could do BD at the age of 7(Cory sometimes would ask his sister

to do it instead of me) and Amber recently is learning how to access

Cory's port. The hardest part comes on me. I try very hard to not

let CF direct our life. If Cory is in the hospital 3 hours away, I

will drive back home to get Amber ready for the dance, just so I can

be here to take pictures, When she was little I would call every

night just to read her bedtime story. CF affects one of my children

but it is a family disease. We have just decided to make it a part

that makes our family " special " . We do what we can and take the rest

one day at a time. I guess in this long story, we have the attitude

that we may have do some things different but we are not going to let

CF win

[Guest guest]

Welcome Wendi!!

You have joined a wonderful group, there is all kinds of great info that

floats around on here. My name is Deana, and I have a 5 1/2 year old son

wcf, and an 11 year old daughter no cf. How is -Marie doing now?

Congrats on your new edition ) It sounds like you have absolutely

wonderful doctor, I hope you are able to find one as good that you are

comfortable with.

Take care,

Deana

----Original Message Follows----

Reply-To: cfparents

To: cfparents

Subject: Introduction

Date: Tue, 04 Jun 2002 04:35:39 -0000

Hello...I am a Mom of two...and expecting my third, this month, a

girl, in which we will name Autumn-. My other two children are

a boy, whom is 13, and a daughter, 8. She is the one that has Cystic

Fibrosis. She is my baby...and well...I am experiencing a bit of

guilt for having one younger than she...she has been my focus for

so..many years now..and I often wonder if I am not cheating her in

some way. Our new baby..was planned...and I believe she will be good

for -Marie...she is excited pending her arrival. I must say.

I live in Oklahoma...we have a wonderful Pediatric Pulmonologist that

is currently 73 years old and retiring next year. I am in fear of

his retirement..he has literally saved her life

many..many ..times...Well..he credits God for allowing him to aide in

saving her life...and God has...many times.

I...myself ..am 32 and my husband is alot younger...he is my older

children's stepdad..and is very...very ...wonderful...to them...and

myself. He is 9 younger than I...but ...knowing him..he is actually

seeming to go on " 50 " .

I am very glad to have found this group...and hope to catch someone

online chatting...at sometime. I havent yet...so I thought that I

would post my story here and let you know " who " I am...in wish of

meeting you.

Thank you for your time..and Bless Each and Every One of you and your

families.

Wendi

PLEASE do not post religious emails to the list.

-------------------------------------------

The opinions and information exchanged on this list should

IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

--------------------------------------------------

[Guest guest]

In a message dated 6/4/2002 9:32:29 AM Central Standard Time,

lovnforever@... writes:

> -

> I too had another child after my son was diagnosed with CF(not

> necessarily planned:) )More so than Cory having feelings of not

> having enough attention, I have always felt that I have had to give

> the oldest and the youngest more attention due to the fact that Cory

> required so much of my care. My daughter use to sit beside me when I

> did BD on Cory and do the same to her dolls. I will always remember

> being out with my daughter and for the first time she realized that

> not all babies were like Cory. She turned and said " That mommy forgot

> to give her baby pills first " In her eyes, all babies took enzymes

> and she couldn't see it any other way. I have found that by Cory

> being the middle child the other children have some very strong

> qualities. Amber is very protective of all children with

> disabilities. And I say VERY in a strong sense. Casey the youngest

> is a sensitive child. He actually worries more about Cory when he is

> sick than I do. Cf was always part of his life so he never seen it

> any different. It became part of life to, go to grandma's when Cory

> was sick. I think he can list all of Cory medication more so than

> Cory can. Even though Casey, the youngest, stands taller than Cory

> and wighs more than Cory, he has never mentioned it. Actually once

> he realized that he weighed more than Cory, he once told Cory he

> wighed less than he really did, so it wouldn't bother him. We are a

> single parent household so sometimes that makes things rough but in

> general it is best described like this...We are just a normal family

> with some added extras and those extras make our family special. I

> have always included all of the kids in Cory's care which I do

> beleive helps. Casey at the age of 12 knows how to run Cory's IV,

> Amber could do BD at the age of 7(Cory sometimes would ask his sister

> to do it instead of me) and Amber recently is learning how to access

> Cory's port. The hardest part comes on me. I try very hard to not

> let CF direct our life. If Cory is in the hospital 3 hours away, I

> will drive back home to get Amber ready for the dance, just so I can

> be here to take pictures, When she was little I would call every

> night just to read her bedtime story. CF affects one of my children

> but it is a family disease. We have just decided to make it a part

> that makes our family " special " . We do what we can and take the rest

> one day at a time. I guess in this long story, we have the attitude

> that we may have do some things different but we are not going to let

> CF win

GOOD FOR YOU!! I believe that too We are not going to let CF win in our

family either! Deb A

[Guest guest]

Wendi,

Glad you found us, and look forward to hearing more about you and your

family.

I'm from Australia, and my youngest daughter Sian (pronounced Sharn) is the

CF member of our household. She is double D508, with more GI than

respiratory presentation. This said, she is currently sporting two crackly

lower lobes, a cough like a seal, and a temp of 38oC. And, she refuses to

take liquid or chewable paracetemol. YAY! (I in fact have just dosed her

with half an adult paracetemol tablet, and put her into my bed. I am not

seeing much sleep in my future tonight......)

GO DANNON!!!! We love you, we need you, we want you back (oh baby, oh

baby.. I've been watching too much " 10 things I hate about you " again.)

Much love to all

- Mum to Cate 9yrs wocf and Sian 5yrs wcf

Canberra Australia-

[Guest guest]

Dear and Amy,

Welcome to the list. I know you will find the info and support you need on

this list. We have a 16mth old son, Elliot, who was diagonosed at 5 weeks

old. He has 2 mutatations of delta 508. How did you find out about Madeline's

CF? How is she doing?

Mom to Elliot

16mth wcf

[Guest guest]

Dear Wendi,

Welcome to the group.When I discovered this group I was so glad

to find people who actually knew what I was talking about and how I was

feeling.I tried to talk to my family and friends about all the cf related

things but everyone would look at me like I was speaking another

language.(really I guess I was). My name is Joanne and I have an 8 yr old

daughter with cf also.She was diagnosed at age 4 after several doctors told

me all she had was a cough and it would go away on its own.Last August she

had a port and a g-tube put in and has gaines 18 lbs in just under 1 yr (this

is a miracle as far as we are concerned ). Today we go back to the clinic

because she has a bad cough and she is retracting a bit (she also has

asthma). I dont like clinic visits because it brings all the cf right in your

face again.Sometimes (even though we do all these treatments and medications)

it seems like we have a normal life.My husband and I both work and

goes to school,we got out for dinner,we go to the zoo,we play in the park and

we pretend that everything is ok.I LIKE THOSE TIMES. Today though,we will be

getting a huge dose of reality shoved in our faces.I wish it was over already.

If you want to contact me I am at tdbear962@...

Joanne

mother of 8 wcf

[Guest guest]

Hi ,

Day Care......is not an issue as we are Canadians living in the States. My

Husband can work here but I can't. My Visa allows me to come and go but not

to work. The company Jacques works for is a Canadian company that has offices

internationally so we were transferred here......Colorado.

It is really amazing that your Peditrician was so concerned to order a sweat

test. I have read many stories about children being diagnosed very late even

with all the so called " warning signs. " That is amazing that she gained that

much weight so quickly. I hope she continues to pack on the pounds.

Mom to Elliot

16mths wcf

[Guest guest]

Dear ,

Maddie kept getting ear infection, so then we had ear tubes put in which

seem to solve that problem. Soon after that she starting getting bronchitis

and pneumonia. We discussed with our pediatrician about her bowl movement

too, many and bulky. Our pediatrician thought we should have a sweat test

done, just to make sure, little did we know. Which of course was positive,

twice. We are still in the process of doing the genetics, the lab messed up

her blood (left it out in the light). She's actually doing very well.

After just two weeks of using the enzymes she has gained 1.5 pounds. She is

still just below the growth chart, but now that my wife and I are off work

for the summer(teachers). We can stay home with her and get her happy and

healthy. What have you done about Day-Care?

Re: Introduction

> Dear and Amy,

>

> Welcome to the list. I know you will find the info and support you need on

> this list. We have a 16mth old son, Elliot, who was diagonosed at 5 weeks

> old. He has 2 mutatations of delta 508. How did you find out about

Madeline's

> CF? How is she doing?

>

>

> Mom to Elliot

> 16mth wcf

>

>

>

[Guest guest]

> I am a newbie to the group and want to get some opinions on my

> current treatment. I will try and keep this as short as possible.

> Dxs: Fibromyalgia/CFS, Sleep Apnea, Candida overgrowth and allergy,

> Polycystic Ovary Syndrome, Hyperinsulinemia, Episodes-?seizures

> (waiting on results of EEG)and probably others I've forgotten

Gee, fancy that! You have all the things mercury can cause!

> I am so nervous. Nervous because I know about detox

> reactions and I don't want mine to be really bad.

The only real reason for detox reactions is inappropriate care.

People who do things properly don't have them.

See my book Amalgam Illness, described at www.noamalgam.com.

>I just need to

> remember that things will get better, right??

>

> Here's where I would like some feedback:

> Since September 2001 I have been taking the following

> Lipoic Acid 50mg twice a day

You must stop this. Doing this is very dangerous. It will make you

much sicker over the next several months.

> Taurine 500mg three times a day

> Conjugated Linoleic Acid 4000mg per day

> Biotin 20mg per day

> Indole-3-carbinol 500mg per day

> Natural Progesterone drops 14 days a month

> Bitters and Butternut root extract (to ensure 2-3 BM's a day)

> Candida Allergy drops

you need to take vitamin C 4 times a day, B complex 4 times a day, and

100-200 mg of Magnesium in any form other than oxide or carbonate 2-4

times a day. 50-100 mg of zinc is also very helpful.

You also need to rigorously exclude hydrogenated fats and oils from

your diet.

> I have been reading a lot on the Lipoic Acid and I am so confused.

> If I don't take my lipoic I don't feel good. Also, I eat eggs

> (Sulfur) every morning and if I don't I don't feel so good either.

I

> am assuming this is because they both remove mercury. But according

> to the stuff I have read isn't what I'm doing suppose to be harmful?

> If so, how come I feel better when I am doing it?

It is helpful for some and harmful for others.

If it is hurting you the first thing you get when eating it is an hour

or two of imrpoved well being, which if you eat enough can be

euphoric. Then 4 days of depressed crashing. Since you eat sulfury

stuff at most meals this is almost impossible to sort out without

doing a blood test for Plasma Cysteine, which Great Smokies labs

offers.

>

> Next question:

> I had my BioEnergetic Assessment done to find compatable materials

> for replacement. I had this done through a Naturopath. He gave me

> some homeopathic rememdies that are to help me right before removal.

> I began those a few weeks ago. They are:

> Hepata-Chord (to strengthen the liver)

> Metal-Chord (to get the metal to start moving)

> Lymph-Chord II ( to open up the lymph system)

> These are produced by a company called Elysia. Has anyone had any

> experinces with these remedies?

> He also gave me White Fish capsules for the omega 3 fatty acids.

> According to the dentist doing my removal, these remedies before and

> the IV Vitamin C after, which I will be getting, have made the whole

> process a lot smoother for her patients.

This is reasonable.

> I haven't done a search yet on this but has anyone had any

> experiences with the IV Vitamin C after removal??

I didn't personally use it but I did collect reports of MANY people,

including a few who did it only some times but not others. All

reports are very positive. . .. .

>

> So much for keeping it short 8>)!! Thanks for your time in

answering

> my many questions.

>

You could have a much more extensive supplement list if you wanted but

I didn't want to overwhelm you or get tired typing ;-) . Let me know

if you are willing to eat alot more pills since it would make you

feel a LOT better.

If so, repeat your diagno

[Guest guest]

Stan,

Welcome to our group. What is the name of the pancreas specialist who oversaw

your care while in the hospital in Lynnwood, WA?

stantak7 stantak@...> wrote: My name is Stan Takemoto, and I'm from

Lynnwood, WA (just north of

Seattle), and a new member of the Pancreatitis eGroup.

I had an attack of Gallstone Pancreatitis, septic shock and

respiratory failure in November 1998 and missed 7 months of work. A

doctor who was identified as the current expert of Pancreatitis on the

West Coast told me that it was the worst case he'd ever seen, so I

feel particularly lucky that I'm typing these words today.

I work in Seattle as a Software QA Engineer. I'm still fascinated by

what happened to me and probably dwell on it way too much :-)

Thanks for this forum where we can exchange our experiences.

-stan

PANCREATITIS Association, Intl.

Online e-mail group

To reply to this message hit " reply " or send an e-mail to:

Pancreatitis (AT) Yahoo

To subscribe to this e-mail group, simply send an e-mail to:

Pancreatitis-subscribe (AT) Yahoo

[Guest guest]

Stan,

welcome to our group. We are like a very big family here. No

matter what, we're there for you. Pancreatitis is major life

stopping incident. Nothing compares to the pain, so I can

see why you dwell on it. Anything that threatens our life is

something we tend to dwell on, don't worry about it. Hope to

here more from you.

Kimber

--

Kimber

hominid2@...

Southwest Representative

Pancreatitis Association, International

[Guest guest]

Hi ,

Actually, I was at Swedish Hospital in Seattle.

I can't remember the name of the specialist as I was pretty much out

of it at the time, but I do remember he was working out of the

University of Washington Hospital.

I hope this helps you. I'll see if I can find notes that ID the

doctor.

Best,

-stan

--- In pancreatitis@y..., Frisby asked:

>

> Stan,

> Welcome to our group. What is the name of the pancreas specialist

who oversaw your care while in the hospital in Lynnwood, WA?

[Guest guest]

Hi Kimber,

Thank you for the welcome.

I also hope to provide information about the " Pancreatitis Experience "

for others.

-stan

[Guest guest]

Welcome to the group Stan!

{{{HUGZ}}}

__________________________________________________

[Guest guest]

Welcome !

I am sorry that you have to deal with this terrible

problem. I hope you get some relief soon. In the

meantime, feel free to browse through the posts and

educate yourself and add to the wealth of information

here on the forum!

Many, Many {{{HUGZ and Prayers}}}

__________________________________________________