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Re: Very limited foods

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In a message dated 11/5/98, 2:40:04 AM, eosinophilic gastroenteritis (AT) onelist (DOT) com writes:

<

and potatoes but now those don't work. What to do? No one seems to know.>>

Dawn,

Are you seeing a nutritionist for ? Our first one was terrible, she had

no idea of how to help us. Our current nutritionist is wonderful, she works

with alot of kids with EE/EG.

I can't remember, Is on Neocate?

Jen

( 11/7/95, eosinophilic esophagitis, food allergies, asthma)

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>

> I can't remember, Is on Neocate?

>

No, that seems to be the magic question for now, lol. Our GI doesn't seem

to think it is necessary. The doc we seen in Washington says is not

going to get better until we do it. is gaining weight or maintaining

it so far, we will see when we see the GI on Monday. But, even

seen how things are for him. The food runs through him and can be

recognized coming out. Our GI says this doesn't worrry him unless he

starts losing a lot of weight. And complains of tummy pain every

time he eats. And the smell of his stools, I can't even describe them.

They are the worst thing I have ever smelled.

Dawn(who will never catch up with her mail), mommy to Dakota, 6 and ,

3 (eosinophilic gastroenteritis, fundo 10/96)

>

> In a message dated 11/5/98, 2:40:04 AM, eosinophilic gastroenteritis (AT) onelist (DOT) com

writes:

> <

>and potatoes but now those don't work. What to do? No one seems to

know.>>

> Dawn,

>

> Are you seeing a nutritionist for ? Our first one was terrible, she

had

> no idea of how to help us. Our current nutritionist is wonderful, she

works

> with alot of kids with EE/EG.

> Jen

> ( 11/7/95, eosinophilic esophagitis, food allergies, asthma)

>

> ------------------------------------------------------------------------

>

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In a message dated 98-11-05 21:26:50 EST, you write:

<< I can vouch for the special scent of 's stools.. OMG. That child

could clear an entire county!

>>

Sounds (rather smells) like Clayton. We can always tell when Clayton poops

but then again it is not that often.

Love,

Sharon

mommy to Jake (5) and fraternal twins (34.5 weeks) (3/30/97) - Cole -(nda)

and Clayton (eosinophilic gastroenteritis, food allergies (milk, soy, eggs,

wheat), g-tube, Nissen and possible latex allergy, some DD, undiagnosed neuro

issues and sensory integration disorder)

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is exactly the opposite. Poops all the time. Last night, for the

first time in a long time, we left the kids with a babysitter to go to a

hockey game and dinner. We left for 8 hours and pooped 5 times. I

hope she will babysit for us again, LOL!

Dawn(who will never catch up with her mail), mommy to Dakota, 6 and ,

3 (eosinophilic gastroenteritis, fundo 10/96)

----------

> From: SDidinsky@...

> To: eosinophilic gastroenteritis (AT) onelist (DOT) com

> Subject: [eosinophilic gastroenteritis] Re: Very limited foods

> Date: Thursday, November 05, 1998 10:10 PM

>

> From: SDidinsky@...

>

> In a message dated 98-11-05 21:26:50 EST, you write:

>

> << I can vouch for the special scent of 's stools.. OMG. That child

> could clear an entire county!

> >>

> Sounds (rather smells) like Clayton. We can always tell when Clayton

poops

> but then again it is not that often.

>

>

> Love,

> Sharon

> mommy to Jake (5) and fraternal twins (34.5 weeks) (3/30/97) - Cole

-(nda)

> and Clayton (eosinophilic gastroenteritis, food allergies (milk, soy,

eggs,

> wheat), g-tube, Nissen and possible latex allergy, some DD, undiagnosed

neuro

> issues and sensory integration disorder)

>

> ------------------------------------------------------------------------

>

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I am glad someone sides with me. I have never smelt a child who smells

like .

Dawn(who will never catch up with her mail), mommy to Dakota, 6 and ,

3 (eosinophilic gastroenteritis, fundo 10/96)

----------

> From: SJHarlow@...

> To: eosinophilic gastroenteritis (AT) onelist (DOT) com

> Subject: [eosinophilic gastroenteritis] Re: Very limited foods

> Date: Thursday, November 05, 1998 8:23 PM

>

> From: SJHarlow@...

>

> I can vouch for the special scent of 's stools.. OMG. That child

> could clear an entire county!

>

> SJHarlow@...

> http://www.c4isr.com/harlow

>

>

> ------------------------------------------------------------------------

>

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