Guest guest Posted September 20, 1999 Report Share Posted September 20, 1999 In a message dated 9/20/99 12:29:25 PM Pacific Daylight Time, andrea.allred@... writes: << Hey y'all, Off to Cincinnati to figure this blood problem with Spencer......wish us luck. >> good luck and prayers Cathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 1999 Report Share Posted September 21, 1999 In a message dated 9/20/99 3:29:21 PM Eastern Daylight Time, andrea.allred@... writes: << Off to Cincinnati to figure this blood problem with Spencer......wish us luck. >> GOOD LUCK - WHAT ARE THEY LOOKING FOR?????? Love, Sharon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 1999 Report Share Posted October 1, 1999 Well everyone, It looks like Spencer has gotten his first site infection. Either Yeast or Staph. Not sure. Low grade fever. I have a question......can it get into his track? He has one open wound from his other line that is right next to the new one. That is really where my concern is. He is itching it like mad. For those on the Eos's list it is around his CVL line. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2000 Report Share Posted January 19, 2000 This is an update on Spencer.........Please pray for him. Spencer > He currently has a temp now of 101.3 under his arm so that would be 102.3. > Seems like an infection of his blood. I think I pushed in a clot yesterday > as it was really hard to flush his IV line. > > We are scheduled for Spencer to go to Cincinnati on Feb 2nd. He will be put > under and they will do and endoscopy and Colonoscopy as well as put a few > probes down his nose for motility testing and also have a surgeon there to > evaluate on whether to move his G-tube up or do a complicated surgery called > the Roux en Y which is where they make a permante track in the small bowel > for a tube for him to be fed by. > > Depending on the results will depend on how long we are there. It could be > a few weeks to a couple of months. Please pray for him as now he may be > infected as well with bacteria in his blood. > > Love, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2000 Report Share Posted January 21, 2000 In a message dated 1/21/00 11:21:44 AM Pacific Standard Time, andrea.allred@... writes: << Well, we were already and packed to get transferred to Cinci this morning and now this morning the doc's come running in saying that all of the cultures have come back positive. So, we are going to get transferred, but it is going to be more difficult on either end here so we won't leave until tomorrow first thing. >> We'll keep praying. How about the Mc house? Do they have a room for you? Cathy mom to 12, AS, EE, allergic to soy, nuts, peanuts, tomato, rice, carrot, string bean, kidney bean, orange, pear, onion, mustard seed, grape Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2000 Report Share Posted January 21, 2000 Cathy, You just caught me online for a second. Unfortunately they don't at this time. BUT the town place suites of Marriott (has full kitchen) is putting us up for 14 days for free. One person who contributes to Spencer's enormous amount of medical costs pleaded with them and they willingly accepted the plea. It will save us about $1000.00 in housing for that time. Thank you for your prayers. Love, Re: [eosinophilic gastroenteritis] Spencer > From: Dcjatben@... > > In a message dated 1/21/00 11:21:44 AM Pacific Standard Time, > andrea.allred@... writes: > > << > Well, we were already and packed to get transferred to Cinci this morning > and now this morning the doc's come running in saying that all of the > cultures have come back positive. > > So, we are going to get transferred, but it is going to be more difficult on > either end here so we won't leave until tomorrow first thing. > >> > > We'll keep praying. How about the Mc house? Do they have a room for > you? > > Cathy > > mom to 12, AS, EE, allergic to soy, nuts, peanuts, tomato, rice, > carrot, string bean, kidney bean, orange, pear, onion, mustard seed, grape > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2000 Report Share Posted January 22, 2000 <> Isn't this the one they call Red Death? If it's the same drug, you bet, it's the most powerful one they have. I'm praying for you sweetie! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2000 Report Share Posted February 16, 2000 , This all must be so tiring for you. We will keep Spencer in our prayers. Thanks for the update. Cathy mom to 12, AS, EE, allergic to soy, nuts, peanuts, tomato, rice, carrot, string bean, kidney bean, orange, pear, onion, mustard seed, grape Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2000 Report Share Posted February 16, 2000 , Thanks for the update on Spencer. I actually tried calling you at the hospital a few weeks ago and he was down for tests. After that, I kept hoping to hear something online. You all have been through so much!!! Hang in there and bless little Spencer's heart!!! As far as I'm concerned no child anywhere deserves any illness of any type, and it's the hardest thing in the world to see I hope those ulcer's go away and I hope he isn't in pain. Kathy (Luke's mom) Allred wrote: > > > > Hi everyone, > > Quick update on Spencer. Well its been a long 6 weeks this year. Spencer > has been admitted to the hospital 4 times. The last two times were into the > step down ICU unit. Actually was more like a PICU. One nurse to one > patient. He was admitted to the hospital these last to times for severe GI > bleeds. He lost about 20-25% of his blood. > > Since Spencer and I had been at the Mc house in Cincinnati for > 4 weeks now we really wanted to come home for a couple of days. We also > felt that if we did come home that either he would end up with an infection, > GJ tube come out, or his bleeding would start up. Well he GJ tube just came > out!!! I am pissed to say the least. We just can't seem to keep this darn > tube in. > > After his biopsies last week they found tons of ulcers and gastritis in his > stomach and one of the options was to take the tube out and let his stomach > heal. We decided to go with some medication instead because we switched to > Elecare (which seems to be doing much better for Spencer than Vivonex). But > I am really considering having the thing heal up!! I am at my whit's end!!! > > Spencer has a MRA scheduled next week to see if there are any good chest > veins for access left for the next time we have to replace his line. We are > drawing full labs every two weeks and seeing his doctor 1 time a > week........thus we really need to stay in Cincinnati. Also because this > like what happened today happen all of the time!!! > > Thanks for the listening (reading) ears!!!! > > > > --------------------------- Quote Link to comment Share on other sites More sharing options...
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