Guest guest Posted February 8, 1999 Report Share Posted February 8, 1999 Has anyone had a response from the lady named Marie that had some posts on the CJD Voice web page. She was trying to get in touch with us, but left no email address. I haven't been in the web page for a while and had just saw it the other night. I heard from Don today and he is trying to get her to respond to us. He says that she lives in Chattanooga. Does anyone know how to get in touch with her? I have heard from a lady in Baton Rouge that saw the newspaper article there. She was saddened when she read it, because her father had died of CJD two years ago. I asked her to go to the web page and join the support group. My son-in-law said that a lady that works with him said her father passed away two years ago with it. And I have heard of two other men that have died of it in Florida in the last couple of years. I really don't think that the numbers are right on this disease. If I can find out who these people are I will let you all know. But right now, I just don't have a lot of time to spend with research on it. We still have a battle to fight with CJD and every moment of our time with Ken is precious. But if anyone knows how with " Marie " , I will try to help support her. God only knows, it's hard enough with support, but being alone and with no answers, it's very hard. We were there at one time. We all were. Keep us in your prayers. Our Thanks go to all of you. Friends Forever Frances Suzie, Becky and Bubba Quote Link to comment Share on other sites More sharing options...
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