Introduction

[Guest guest]

Hi everyone

I have been suscribing to CJDvoice for several weeks but have not introduced

myself. I am sorry for the delay, but I have been very busy recently.

My name is Steve Griffiths and I live in South Wales UK.

The reason I joined this mailing list is because my mother Enid has recently

undergone tests to see if she has CJD. I have not had any results as yet but

after reading through the mail I have recieved, I find her symptoms are very

much like those I have read about.

Please read a brief description of my mothers recent symptoms.

Until last August Enid who is 70 yrs old was still working at a local opticians

1 day per week cleaning and generally helping out. Around this time she moved in

with one of my brothers while some renovation work was being done to her house,

this work went on for 3 months and during this time we (myself, 2 brothers and

sister) noticed that Enid was becoming slightly confused but we thought that it

was worry over her house and living in a different house.

However we convinced her to give up work and become a lady of lesiure to which

she agreed.

At the beginning of Dec we had decorated her house, had new carpets laid and she

moved back in. On the first day I noticed she had not locked her doors, this

being very unusual for my mother as she had always been very security concious.

But I later found out she did not know how to turn the key, this concerned me

and I always called in to make sure she was doing thing herself, but to my

dismay she was not only forgetting the basics but she did not seemed concerned.

Within a week she started hallucinating during the day, and soon she became

incontinent, by christmas she could not make conversation because she could not

remember anything.

On the 4th of Jan this year she was admitted to hospital for assesment, but the

docter still cannot diagnose her problem. Fluid from her spine has been sent for

testing to see if she has CJD and we awaiting the results.

I visited her tonight and her limit of conversation is yes and no answers to my

questions, she laughs at things said to her and I think she understands

everything but cannot answer because her memory is failing her. At present she

is happy and recieves plenty of love from her family.

Thanks for taking time to read this and when I recieve more information I will

write again.

Bye for now

Steve