Guest guest Posted October 19, 1999 Report Share Posted October 19, 1999 This what I wondered too. I will give her a while though. I have to say I am curious especially due to the fact that his EOS count was the lowest it ever was on strictly Neocate and has since gone up since being on regular food. Dawn-KS, mommy to Dakota, 7, former 34 weeker and aka BJ, 4, former 32 weeker, (eosinophilic gastroenteritis, Nissen, asthma, reflux), and mommy to Mackenzie Marie (due December 24) BJ Hi, we saw our new doctor today. She believes that the blood eosinophil count does correlate with the flare ups of EG. I guess we will see. BJ's EOS count was 6% on the Neocate only, today back on regular food it is 8%. His stools have increased some and have started with the undigested food. She plans on having his blood drawn every Monday to see how his counts go. These are the lowest counts he has ever had. His first count, at just a few months age, was 10% and it has been higher than that ever since. She did say that she would like us to at least get BJ to drink 1-2 of the Neocate a day for vitamins and such. His sodium is close to being dangerously low, no one has ever mentioned this. She said diarrhea can cause this. We go see a dietician at the end of the week. Dawn-KS, mommy to Dakota, 7, former 34 weeker and aka BJ, 4, former 32 weeker, (eosinophilic gastroenteritis, Nissen, asthma, reflux), and mommy to Mackenzie Marie (due December 24) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 1999 Report Share Posted October 19, 1999 Dawn, it would be interesting if the blood eos count thing worked out. I would ask your doctor, however, what she is basing this belief on. We worked on it for almost two years with SIX (6) patients and it did not bear out. At one point my 12-y/o (then 10) had blood eos levels in the thousands!!!! He was also scoped the day that was drawn and the inflammation was not as severe as in the past. The problem is, that you can be having other allergic problems (like hayfever) that can cause those eos levels to go sky high and have NOTHING to do with the eos in the GI tract. Our allergists and GIs also tracked several other patients throughout the country and no one was able to correlate the two, finding the same thing we did. Steph. [eosinophilic gastroenteritis] Fw: BJ BJ Hi, we saw our new doctor today. She believes that the blood eosinophil count does correlate with the flare ups of EG. I guess we will see. BJ's EOS count was 6% on the Neocate only, today back on regular food it is 8%. His stools have increased some and have started with the undigested food. She plans on having his blood drawn every Monday to see how his counts go. These are the lowest counts he has ever had. His first count, at just a few months age, was 10% and it has been higher than that ever since. She did say that she would like us to at least get BJ to drink 1-2 of the Neocate a day for vitamins and such. His sodium is close to being dangerously low, no one has ever mentioned this. She said diarrhea can cause this. We go see a dietician at the end of the week. Dawn-KS, mommy to Dakota, 7, former 34 weeker and aka BJ, 4, former 32 weeker, (eosinophilic gastroenteritis, Nissen, asthma, reflux), and mommy to Mackenzie Marie (due December 24) Quote Link to comment Share on other sites More sharing options...
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