Re: Fw: your letter to Enquirer

[Guest guest]

a, I spoke to a reporter for the National Enquirer Saturday about the

article. This reporter knew my wife. He said he would try to get their medical

reporter to contact me.

Lets hope this happens. Mel in SLC

a Grau wrote:

>

>

> To All,

>

> After 2 letters to The National Enquirer I finally got a response, what I

> actually wanted was a retraction in their magazine with a more detailed

> article describing what we do know about CJD I doubt they will further

> their story but I tried.

> I will further my discussions with them to see if I can get a correct story

> published on CJD

> a G

>

> > Date: Tuesday, October 20, 1998 2:02 PM

> >

> > Dear Ms. Grau:

> > I'm sorry if our story caused you additional anxiety. You are quite

> right

> > to say the risk is 'theoretical,' and that's precisely how we put it in

> the

> > story.

> > In the article we said of the disease: 'a brain infection thought to

> be

> > spread by a virus-like agent through infected blood products.' In other

> words,

> > scientists aren't sure how the virus is spread, but they think it may be

> > through the agent in blood products. That is the reason for the recall

> your

> > refer to in your letter.

> > The article does not imply that people who receive possibly infected

> blood

> > products are sure to die. I'm sorry if you interpreted it that way.

> > Sincerely, Reg Fitz

>

> ------------------------------------------------------------------------

>

[Guest guest]

a if you hear from him again, make sure he also understands that CJD is

not only spread through blood products. I know for a fact that my dad never

received blood transfusions nor did many other CJD patients. I wish the

Enquirer would have at least said that " there are thought to be many ways to

contract CJD, one possible way is through blood products. " We don't want

people thinking that if they haven't received blood products, they are " safe " .

Maybe Mel can get them to tell the entire story!!

Beverly G.

[Guest guest]

Not only is CJD not " only " spread through blood products. There have been no

documented cases of its being spread this way.

<< From: BevAlso@...

a if you hear from him again, make sure he also understands that CJD is

not only spread through blood products. I know for a fact that my dad never

received blood transfusions nor did many other CJD patients. I wish the

Enquirer would have at least said that " there are thought to be many ways to

contract CJD, one possible way is through blood products. " We don't want

people thinking that if they haven't received blood products, they are

" safe " .

Maybe Mel can get them to tell the entire story!!

Beverly G. >>

[Guest guest]

Not only is CJD not " only " spread through blood products. There have been no

documented cases of its being spread this way.

<< From: BevAlso@...

a if you hear from him again, make sure he also understands that CJD is

not only spread through blood products. I know for a fact that my dad never

received blood transfusions nor did many other CJD patients. I wish the

Enquirer would have at least said that " there are thought to be many ways to

contract CJD, one possible way is through blood products. " We don't want

people thinking that if they haven't received blood products, they are

" safe " .

Maybe Mel can get them to tell the entire story!!

Beverly G. >>

[Guest guest]

From: DebbieOney@...

<

>

Yes, Debbie, I thought the same thing when I read the article. Makes me

wonder if they know something we don't...I can't remember the name of the

" expert " they quoted, but it sounded as though this was a direct quote from

the person (I think he was with WHO).

Beverly G.

[Guest guest]

From: DebbieOney@...

<

>

Yes, Debbie, I thought the same thing when I read the article. Makes me

wonder if they know something we don't...I can't remember the name of the

" expert " they quoted, but it sounded as though this was a direct quote from

the person (I think he was with WHO).

Beverly G.

[Guest guest]

<

>

Good for you! Hopefully, you set them straight and maybe it will pique their

interest enough to do another story; however, there is always the chance that

they will mess up again. When Mel Massey (DrJolyn37) was quoted in the Dallas

Times Herald newspaper last summer, he was misquoted which caused (or rather I

should say forced) the Texas Health Dept. to make a public statement about the

number of CJD cases in Texas. The story was then picked up by the Houston

Chronicle. This probably helped us in the long run to make CJD reportable in

Texas. So, I guess even bad news or wrong news can get positive attention.

Beverly G.

[Guest guest]

Bev in both my letters to them and the third one I sent definite ways of

transmission not just the theoretical way.

a G.

----------

> From: BevAlso@...

> To: cjdvoice (AT) onelist (DOT) com

> Subject: Re: Fw: your letter to Enquirer

> Date: Wednesday, October 21, 1998 7:20 AM

>

> From: BevAlso@...

>

> a if you hear from him again, make sure he also understands that CJD

is

> not only spread through blood products. I know for a fact that my dad

never

> received blood transfusions nor did many other CJD patients. I wish the

> Enquirer would have at least said that " there are thought to be many ways

to

> contract CJD, one possible way is through blood products. " We don't want

> people thinking that if they haven't received blood products, they are

" safe " .

> Maybe Mel can get them to tell the entire story!!

> Beverly G.

>

> ------------------------------------------------------------------------

>

[Guest guest]

FYI;

The man they got the info from was Dr. Heymann of WHO, I can't

believe that this was given to them for info, or they wanted it to be

" sensationalized " by saying " thought to be spread by a virus-like agent

through infected blood products and possibly through infected beef. It is

a rare, fatal disorder... " making it a mystery disease. This was why I

felt it was improper journalism and wanted a proper article printed.

a G.

----------

> From: BevAlso@...

> To: cjdvoice (AT) onelist (DOT) com

> Subject: Re: Fw: your letter to Enquirer

> Date: Wednesday, October 21, 1998 7:45 AM

>

> From: BevAlso@...

>

> From: DebbieOney@...

>

> <

no

> documented cases of its being spread this way.>>

>

> Yes, Debbie, I thought the same thing when I read the article. Makes me

> wonder if they know something we don't...I can't remember the name of the

> " expert " they quoted, but it sounded as though this was a direct quote

from

> the person (I think he was with WHO).

> Beverly G.

>

> ------------------------------------------------------------------------

>

[Guest guest]

FYI;

The man they got the info from was Dr. Heymann of WHO, I can't

believe that this was given to them for info, or they wanted it to be

" sensationalized " by saying " thought to be spread by a virus-like agent

through infected blood products and possibly through infected beef. It is

a rare, fatal disorder... " making it a mystery disease. This was why I

felt it was improper journalism and wanted a proper article printed.

a G.

----------

> From: BevAlso@...

> To: cjdvoice (AT) onelist (DOT) com

> Subject: Re: Fw: your letter to Enquirer

> Date: Wednesday, October 21, 1998 7:45 AM

>

> From: BevAlso@...

>

> From: DebbieOney@...

>

> <

no

> documented cases of its being spread this way.>>

>

> Yes, Debbie, I thought the same thing when I read the article. Makes me

> wonder if they know something we don't...I can't remember the name of the

> " expert " they quoted, but it sounded as though this was a direct quote

from

> the person (I think he was with WHO).

> Beverly G.

>

> ------------------------------------------------------------------------

>