Guest guest Posted March 18, 1999 Report Share Posted March 18, 1999 Hi all: Last night I put some 3cc's into Clayton's button was loose and put him to bed. he got up around 2am and all was fine and put him back down. Then this morning when Barry got Clayton up around 8:30 Clayton's button was out, his clothes were soaking and the bed was wet. The balloon was broken and it came out. This was Clayton's first button -- he got it in September and so we did not know how to replace it at home so off to the hospital we went. Well, good thing we went to the hospital as the hole was starting to close and we would not have been able to put the button in at home and then again the surgeon is not even sure we can do it at home as Clayton struggles very hard. Well, they had to dilate the hole and this apparently hurts some but they gave him nothing to help the pain. The button is now in, lots of blood while the were putting it in and of course the first button they put in the balloon was broken so they had to take it out and put in another. All is well now but of course Clayton has not put anything in his mouth today and who knows what he got fed today so not great. And of course Jake was home from school today as he goes to a Jewish Day school and the canter of the synagogue died so no school. Love, Sharon mommy to Jake (5) and fraternal twins (34.5 weeks) (3/30/97) - Cole -(nda) and Clayton (eosinophilic gastroenteritis, food allergies (milk, soy, eggs, wheat), g-tube, Nissen, latex allergy, mild DD, undiagnosed neuro issues, sensory integration disorder and now tremors and suspected metabolic disorder, WHEN WILL THIS END) Quote Link to comment Share on other sites More sharing options...
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