Guest guest Posted May 1, 1999 Report Share Posted May 1, 1999 My child had this by the time he was 4 months old, and he was over it around 3 years old. If I can help, let me know. >From: timandtina@... >Reply-To: eosinophilic gastroenteritis (AT) onelist (DOT) com >To: eosinophilic gastroenteritis (AT) onelist (DOT) com >Subject: [eosinophilic gastroenteritis] e.g >Date: 1 May 1999 20:59:52 -0000 > >From: timandtina@... > >Can someone tell me how many children have this and how long it takes to >get over this? My daughter has this and I keep getting told that it is so >rare for young children to have this and that there is not enough research >to know what fixes it. (Alyssa will be three May 21) > >------------------------------------------------------------------------ >What does Public Radio's " Ask Dr. Science Show " know that you don't...? >http://www.onelist.com >...That ONElist hosts the largest free e-mail lists on the Internet today! _______________________________________________________________ Get Free Email and Do More On The Web. Visit http://www.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 1999 Report Share Posted May 1, 1999 Im 35 and have had this all my life... (idiopathic eosinophilic esophagitis, GT, former TPN'r) and mom to five boys, all with EE, three with GTs and one on TPN (kody) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 1999 Report Share Posted May 2, 1999 I am 19 and have had EG since 3 grade - as early as we know. I was told that I will have it for life but as I get older - 25 and up - It should start going into remission at times. Kind of like cancer. You never get rid of EG it just goes unnoticed as you get older. Thats what I was told. I hope its true because I can't wait till my 25 birthday! it will be a wonderful life with out EG. Hope this helps. _________________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 1999 Report Share Posted May 2, 1999 I hope this is the case . I am 36 and it has gotten worse and worse... (idiopathic eosinophilic esophagitis, GT, former TPN'r) and mom to five boys, all with EE, three with GTs and one on TPN (kody) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 1999 Report Share Posted May 2, 1999 yesterday, i thought you were 35?? it stuck out since i will be 35 in 26 short days. just curious. Phyllis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 1999 Report Share Posted May 2, 1999 My son was put on Gastrocrom and it did absolutely nothing for him. He is on Elemental formula and very high doses of Steroids. There is a new medication called Budesonide. It is not supposed to have any side effects and works just as well as the steroids do. The only problem is that it is found only in Canada. There are ways you can get it though. [eosinophilic gastroenteritis] e.g can someone tell me can if you can deal with e.g. without steroid treatment and the j tube?? I really need some anwers before Tuesday!!!!!!!!!!!!!!!!! ANY TYPE OF INPUT will be greatly appreciated. Are there any more meds besides gastrocrom? We are already on that, and elimination diet. Thanks Tina mother of Alyssa E.G. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 1999 Report Share Posted May 2, 1999 I heard pregnancy can make EG worse for women? Has anyone heard anytning about this? I also heard that you cannot take gastrocrom while pregnant because they do not know the effect it has on the child. Gastrocrom has been a lifesaver to me. If anyone knows anything please let me know! Thanks so much. _________________________________________________________ Quote Link to comment Share on other sites More sharing options...
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