Guest guest Posted October 26, 1998 Report Share Posted October 26, 1998 In a message dated 10/24/1998 8:29:40 PM, you wrote: <> When my dad was in the hospital, he had physical therapy--catching and throwing a ball, balance, walking, etc. They also had therapy for speech and memory. This lasted only four days because he was mostly comatose at that point. I hadn't thought about the therapy in a long time ... it really brings back terrible memories of my strong dad looking and acting so weak. Don in Atlanta Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 1998 Report Share Posted October 26, 1998 Robin, I misunderstood and thought you mentioned the person who changed the sheets. Again, I don't know how to answer as to legalities because for one I am not a lawyer and secondly, I do not know how her job description reads and how this would affect liability. We unfortunately live in a very litigous society. Debbie << This person that we had, I would consider more than housekeeping. If she was able to give a bath then she should be able to rub some lotion on a persons arms and legs and feet. Robin >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 1998 Report Share Posted October 26, 1998 Robin, I misunderstood and thought you mentioned the person who changed the sheets. Again, I don't know how to answer as to legalities because for one I am not a lawyer and secondly, I do not know how her job description reads and how this would affect liability. We unfortunately live in a very litigous society. Debbie << This person that we had, I would consider more than housekeeping. If she was able to give a bath then she should be able to rub some lotion on a persons arms and legs and feet. Robin >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 1998 Report Share Posted October 26, 1998 Robin, I misunderstood and thought you mentioned the person who changed the sheets. Again, I don't know how to answer as to legalities because for one I am not a lawyer and secondly, I do not know how her job description reads and how this would affect liability. We unfortunately live in a very litigous society. Debbie << This person that we had, I would consider more than housekeeping. If she was able to give a bath then she should be able to rub some lotion on a persons arms and legs and feet. Robin >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 1998 Report Share Posted October 26, 1998 DrJolyn37@... wrote: > > From: DrJolyn37@... > > My wife started to grab the covers of her bed with her least affected arm > early in her hospital stay - nurses said to give her something to hold - so a > relative gave her a small teddy bear-- she would drop it -so we tied it > loosely to her wrist with soft gauze---she would not look at it but seemed to > search for it and hold it most of the time--later we gave her a rolled up > wash cloth for the other hand--it seemed to help having something in both > hands---we put the bear in with her along with our wedding picture at her > service as we knew we could never stand to keep and look at that little > bear--- > > ------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 1998 Report Share Posted October 26, 1998 a, You are right. A lot IS done to cjd victims before they are properly diagnosed and not all is benifical. Pain is not always an early symptom. Lots of times it is loss of funcion, balance, muscle control, eyesight etc. >From my own experience with my mom, She was hosp. 3 weeks for diagnosis and as it was 96 there was no test reliable to diagnose cjd. Her neurologist thought she was psychotic. She had PT twice a day to help her use a walker as her balance was shot and her strength was going. Theoretically Pt will strengthen weak muscles, however if it is a control problem, use just makes them weaker. Everyone was trying their best. But the Dr. told mom she could go home if she would walk a certain length down the hall with her walker. As I realized what was wrong with her the cruelty of that statement, however well meaning, will never leave my mind and my soul. Dorothy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 1998 Report Share Posted October 26, 1998 PAT, I TOTALLY DISAGREE! MY FATHER HAS BEEN HAVING PHYSICAL THERAPY EVER SINCE HE HAD HIS FIRST SYMPTOM AND CONTINUES TO HAVE IT TWICE A WEEK. HIS BODY GETS SO STIFF AND RIGID AND THE PT IS GREAT, SHE MASSAGES AND RELAXES HIS MUSCLES SO HE CAN STRAIGHTEN OUT HIS ARM AND HIS LEGS. MAYBE THIS IS JUST SOMETHING THAT IS FOR EACH INDIVIDUAL TO DECIDE, BUT IN OUR CASE IT IS GREAT AND WE HAVE FOUGHT OUR INSURANCE COMPANY TOOTH AND NAIL TO KEEPT IT, BECAUSE AS YOU SHOULD KNOW, ONCE THEY HEAR, FATAL, NO TREATMENT THEY ARE READY TO WRITE YOU OFF AS IT IS. SUE Re: CJD and Physical Therapy >From: APE826@... > >From APE826@... > >Physical Therapy for CJD patients is cruel and unusual treatment. It does not >help them, it just adds to their pain.......................Pat > >------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 1998 Report Share Posted October 26, 1998 PAT, I TOTALLY DISAGREE! MY FATHER HAS BEEN HAVING PHYSICAL THERAPY EVER SINCE HE HAD HIS FIRST SYMPTOM AND CONTINUES TO HAVE IT TWICE A WEEK. HIS BODY GETS SO STIFF AND RIGID AND THE PT IS GREAT, SHE MASSAGES AND RELAXES HIS MUSCLES SO HE CAN STRAIGHTEN OUT HIS ARM AND HIS LEGS. MAYBE THIS IS JUST SOMETHING THAT IS FOR EACH INDIVIDUAL TO DECIDE, BUT IN OUR CASE IT IS GREAT AND WE HAVE FOUGHT OUR INSURANCE COMPANY TOOTH AND NAIL TO KEEPT IT, BECAUSE AS YOU SHOULD KNOW, ONCE THEY HEAR, FATAL, NO TREATMENT THEY ARE READY TO WRITE YOU OFF AS IT IS. SUE Re: CJD and Physical Therapy >From: APE826@... > >From APE826@... > >Physical Therapy for CJD patients is cruel and unusual treatment. It does not >help them, it just adds to their pain.......................Pat > >------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 1998 Report Share Posted October 26, 1998 PAT, I TOTALLY DISAGREE! MY FATHER HAS BEEN HAVING PHYSICAL THERAPY EVER SINCE HE HAD HIS FIRST SYMPTOM AND CONTINUES TO HAVE IT TWICE A WEEK. HIS BODY GETS SO STIFF AND RIGID AND THE PT IS GREAT, SHE MASSAGES AND RELAXES HIS MUSCLES SO HE CAN STRAIGHTEN OUT HIS ARM AND HIS LEGS. MAYBE THIS IS JUST SOMETHING THAT IS FOR EACH INDIVIDUAL TO DECIDE, BUT IN OUR CASE IT IS GREAT AND WE HAVE FOUGHT OUR INSURANCE COMPANY TOOTH AND NAIL TO KEEPT IT, BECAUSE AS YOU SHOULD KNOW, ONCE THEY HEAR, FATAL, NO TREATMENT THEY ARE READY TO WRITE YOU OFF AS IT IS. SUE Re: CJD and Physical Therapy >From: APE826@... > >From APE826@... > >Physical Therapy for CJD patients is cruel and unusual treatment. It does not >help them, it just adds to their pain.......................Pat > >------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 1998 Report Share Posted October 26, 1998 Sure, but there are also the aids who give the baths and change gowns. They are perfectly capable of giving arm and leg rubs too, if you ask them. We had very kind and helpful people who would have taken the time to do that. Robin ---------- > From: DebbieOney@... > To: cjdvoice (AT) onelist (DOT) com > Subject: Re: CJD and Physical Therapy > Date: Monday, October 26, 1998 10:27 AM > > From: DebbieOney@... > > Robin, > > Would PT be the profession to provide leg, arm and feet rubs for patients who, > unlike you mother, were not fortunate enough to have family members to do it? > > Debbie > > << Liz, > > I agree 100%. You cannot help people who are destined to keep losing their > abilities. I feel that rubdowns and just keeping their muscles as limber > as possible is the best therapy after they have gotten through the startle > phase of the disease. and I would do leg, arm and feet rubs with > lotions with Mom. It seemed to soothe her the most. Maybe to just know > that a loved-one was there with them. When she was at IUMC and wasn't > speaking just moving her limbs the PT were still coming in. We didn't > understand why, the doctor should have told them not to bother. He had > seen CJD before. They gave us cones to put in her hands so that her > fingernails would not go into her palms. They kept trying to talk to her, > " Jean, can you do this? " And her arms would just drop. It was > heartbreaking and and I would just look at each other in disbelief! > They had never seen this disease before. They asked " what can we do for > her " and we just shook our heads. The PT's definitely need educated. > > Robin >> > > ------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 1998 Report Share Posted October 26, 1998 Sure, but there are also the aids who give the baths and change gowns. They are perfectly capable of giving arm and leg rubs too, if you ask them. We had very kind and helpful people who would have taken the time to do that. Robin ---------- > From: DebbieOney@... > To: cjdvoice (AT) onelist (DOT) com > Subject: Re: CJD and Physical Therapy > Date: Monday, October 26, 1998 10:27 AM > > From: DebbieOney@... > > Robin, > > Would PT be the profession to provide leg, arm and feet rubs for patients who, > unlike you mother, were not fortunate enough to have family members to do it? > > Debbie > > << Liz, > > I agree 100%. You cannot help people who are destined to keep losing their > abilities. I feel that rubdowns and just keeping their muscles as limber > as possible is the best therapy after they have gotten through the startle > phase of the disease. and I would do leg, arm and feet rubs with > lotions with Mom. It seemed to soothe her the most. Maybe to just know > that a loved-one was there with them. When she was at IUMC and wasn't > speaking just moving her limbs the PT were still coming in. We didn't > understand why, the doctor should have told them not to bother. He had > seen CJD before. They gave us cones to put in her hands so that her > fingernails would not go into her palms. They kept trying to talk to her, > " Jean, can you do this? " And her arms would just drop. It was > heartbreaking and and I would just look at each other in disbelief! > They had never seen this disease before. They asked " what can we do for > her " and we just shook our heads. The PT's definitely need educated. > > Robin >> > > ------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 1998 Report Share Posted October 26, 1998 Sure, but there are also the aids who give the baths and change gowns. They are perfectly capable of giving arm and leg rubs too, if you ask them. We had very kind and helpful people who would have taken the time to do that. Robin ---------- > From: DebbieOney@... > To: cjdvoice (AT) onelist (DOT) com > Subject: Re: CJD and Physical Therapy > Date: Monday, October 26, 1998 10:27 AM > > From: DebbieOney@... > > Robin, > > Would PT be the profession to provide leg, arm and feet rubs for patients who, > unlike you mother, were not fortunate enough to have family members to do it? > > Debbie > > << Liz, > > I agree 100%. You cannot help people who are destined to keep losing their > abilities. I feel that rubdowns and just keeping their muscles as limber > as possible is the best therapy after they have gotten through the startle > phase of the disease. and I would do leg, arm and feet rubs with > lotions with Mom. It seemed to soothe her the most. Maybe to just know > that a loved-one was there with them. When she was at IUMC and wasn't > speaking just moving her limbs the PT were still coming in. We didn't > understand why, the doctor should have told them not to bother. He had > seen CJD before. They gave us cones to put in her hands so that her > fingernails would not go into her palms. They kept trying to talk to her, > " Jean, can you do this? " And her arms would just drop. It was > heartbreaking and and I would just look at each other in disbelief! > They had never seen this disease before. They asked " what can we do for > her " and we just shook our heads. The PT's definitely need educated. > > Robin >> > > ------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 1998 Report Share Posted October 26, 1998 a, They may do massages but ours were more interested in rehabilitation. Probably the more they get educated on it then they will know what to do for cjd victims. In the initial stages Mom wasn't in pain, could be others are. Our doctor said that people are not really in pain with cjd. Maybe others could tell us if their loved one was? The disease just takes away their abilities. I know it sounds bad, but sometimes there is nothing to do. They gave her aspirin also to keep the blood thinner, to help prevent blood clots. It then helped with the aches too.CJD victims go through a stage that they are easily startled, very sensitive to light, to sound to touch. Each person has to be evaluated on what they can stand to have done to them. Robin ---------- > > To: cjdvoice (AT) onelist (DOT) com > Subject: Re: CJD and Physical Therapy > Date: Monday, October 26, 1998 1:34 PM > > > > Dear Robin; > > Thanks for helping me understand, I was just thinking that PT may be > helpful in the initial stages to help with the pain. I did not want it to > be that you do nothing for them as it is pointless. I thought whatever > could be done even in CJD's initial stages would be helpful to make people > more comfortable, I thought they did do muscle massages and rubs as such. > > a G. > > ---------- > > > > To: cjdvoice (AT) onelist (DOT) com > > Subject: Re: CJD and Physical Therapy > > Date: Monday, October 26, 1998 7:21 AM > > > > > > > > The aches and pains that I meant were from laying in bed for a long > period > > of time. Like a backache or such. Mom would get put on her side and she > > must not have liked that because in no more than 15 minutes time she > would > > have herself moved on her back again. She knew what she wanted but was > > just trapped in that body. Robin > > > > ---------- > > > > > > To: cjdvoice (AT) onelist (DOT) com > > > Subject: Re: CJD and Physical Therapy > > > Date: Monday, October 26, 1998 10:10 AM > > > > > > > > > > > > Hi a, > > > > > > I am not sure that people are really in pain in the beginning. They > are > > > still walking and moving about. That is the best therapy to just let > > them > > > be able to move on their own. That eventually just disappears. One > > thing > > > at IU is our Doctor didn't want to give any kind of sedative, just > asprin > > > for the aches and pains, because Mom was very active moving her arms > and > > > legs and he didn't want to stop that. If the patient is able to move > > their > > > limbs then all the better. Robin > > > > > > ---------- > > > > > > > > To: cjdvoice (AT) onelist (DOT) com > > > > Subject: Re: CJD and Physical Therapy > > > > Date: Monday, October 26, 1998 1:02 PM > > > > > > > > > > > > > > > > Pat; > > > > > > > > I know what you say may be true but upon reading alot of the case > > > histories > > > > it seems alot of people are given PT in the beginning before > diagnosis > > to > > > > help with their muscle tone. I feel alot is done for these people > > before > > > > their diagnosis. As we all know some do not get their diagnosis > until > > it > > > > is too late. Couldn't some of the PT be helpful in some of the > initial > > > > pains that people go thru? Does anyone have a personal situation on > > this > > > > where it did help in the beginning? > > > > > > > > a G. > > > > > > > > ---------- > > > > > From: APE826@... > > > > > To: cjdvoice (AT) onelist (DOT) com > > > > > Subject: Re: CJD and Physical Therapy > > > > > Date: Monday, October 26, 1998 6:43 AM > > > > > > > > > > From: APE826@... > > > > > > > > > > >From APE826@... > > > > > > > > > > Physical Therapy for CJD patients is cruel and unusual treatment. > It > > > > does not > > > > > help them, it just adds to their pain.......................Pat > > > > > > > > > > > > > > ------------------------------------------------------------------------ > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 1998 Report Share Posted October 26, 1998 Thats great that your physical therapist does massages. That is what a cjd victim needs. I think we all have differing ideas of what physical therapy is. Robin ---------- > > To: cjdvoice (AT) onelist (DOT) com > Subject: Re: CJD and Physical Therapy > Date: Monday, October 26, 1998 11:57 AM > > > > PAT, > I TOTALLY DISAGREE! MY FATHER HAS BEEN HAVING > PHYSICAL THERAPY EVER SINCE HE HAD HIS FIRST > SYMPTOM AND CONTINUES TO HAVE IT TWICE A WEEK. > HIS BODY GETS SO STIFF AND RIGID AND THE PT IS > GREAT, SHE MASSAGES AND RELAXES HIS MUSCLES > SO HE CAN STRAIGHTEN OUT HIS ARM AND HIS LEGS. > MAYBE THIS IS JUST SOMETHING THAT IS FOR EACH > INDIVIDUAL TO DECIDE, BUT IN OUR CASE IT IS GREAT > AND WE HAVE FOUGHT OUR INSURANCE COMPANY > TOOTH AND NAIL TO KEEPT IT, BECAUSE AS YOU > SHOULD KNOW, ONCE THEY HEAR, FATAL, NO TREATMENT > THEY ARE READY TO WRITE YOU OFF AS IT IS. > SUE > > Re: CJD and Physical Therapy > > > >From: APE826@... > > > >From APE826@... > > > >Physical Therapy for CJD patients is cruel and unusual treatment. It does > not > >help them, it just adds to their pain.......................Pat > > > >------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 1998 Report Share Posted October 26, 1998 Boy Debbie, I have no answer for this one. Only thing I would think that the person is covered since they work in the hospital. Surely they would say something if they were not able to do a massage. I know nurses can do them too if they have the time too. Robin ---------- > From: DebbieOney@... > To: cjdvoice (AT) onelist (DOT) com > Subject: Re: CJD and Physical Therapy > Date: Monday, October 26, 1998 12:56 PM > > From: DebbieOney@... > > Robin, > > Your mother and other members of CJD Voice were fortunate to have family > members and friends who were able to give massages and do the holding things > in their hands with them . Often family and friends are unable to do this for > one reason or another. Also, some CJD victims may not have families and > friends. We don't find out about them because they don't have loved ones who > would join a group like CJD Voice. They're the victims that we have trouble > tracking. Maybe these people need a physical therapist to do the things > members of CJD Voice mentioned they did for their family members and for the > doctor to order this the doctor would have to write an order for a PT or > whoever the professional is to do this even though other non-professionals > could do it. I am not sure about liability but if a person for some strange > reason were to get hurt when an aide gave them a massage I don't know what the > legal consequences would be. Does anyone know this? > > << > > Sure, but there are also the aids who give the baths and change gowns. > They are perfectly capable of giving arm and leg rubs too, if you ask them. > > We had very kind and helpful people who would have taken the time to do > that. > > Robin >> > > ------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 1998 Report Share Posted October 26, 1998 When is the last time you heard of a nurse giving a message. I can tell you that here in RI and southern MASS they do not give messages. If you want you loved one to get a message you either do it yourself or ask a CNA Jackie Laplante ext.309 Re: CJD and Physical Therapy > Date: Monday, October 26, 1998 12:56 PM > > From: DebbieOney@... > > Robin, > > Your mother and other members of CJD Voice were fortunate to have family > members and friends who were able to give massages and do the holding things > in their hands with them . Often family and friends are unable to do this for > one reason or another. Also, some CJD victims may not have families and > friends. We don't find out about them because they don't have loved ones who > would join a group like CJD Voice. They're the victims that we have trouble > tracking. Maybe these people need a physical therapist to do the things > members of CJD Voice mentioned they did for their family members and for the > doctor to order this the doctor would have to write an order for a PT or > whoever the professional is to do this even though other non-professionals > could do it. I am not sure about liability but if a person for some strange > reason were to get hurt when an aide gave them a massage I don't know what the > legal consequences would be. Does anyone know this? > > << > > Sure, but there are also the aids who give the baths and change gowns. > They are perfectly capable of giving arm and leg rubs too, if you ask them. > > We had very kind and helpful people who would have taken the time to do > that. > > Robin >> > > ------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 1998 Report Share Posted October 26, 1998 We had nurses, especially the night ones who would take the time with Mom and go out of their way to help her. I don't know if this is the norm, I am just going by my own experience. Robin ---------- > > To: cjdvoice (AT) onelist (DOT) com' > Subject: Re: CJD and Physical Therapy > Date: Monday, October 26, 1998 1:30 PM > > > > When is the last time you heard of a nurse giving a message. I can tell you > that here in RI and southern MASS they do not give messages. If you want > you loved one to get a message you either do it yourself or ask a CNA > > Jackie Laplante > ext.309 > > > Re: CJD and Physical Therapy > > Date: Monday, October 26, 1998 12:56 PM > > > > From: DebbieOney@... > > > > Robin, > > > > Your mother and other members of CJD Voice were fortunate to have family > > members and friends who were able to give massages and do the holding > things > > in their hands with them . Often family and friends are unable to do this > for > > one reason or another. Also, some CJD victims may not have families and > > friends. We don't find out about them because they don't have loved ones > who > > would join a group like CJD Voice. They're the victims that we have > trouble > > tracking. Maybe these people need a physical therapist to do the things > > members of CJD Voice mentioned they did for their family members and for > the > > doctor to order this the doctor would have to write an order for a PT or > > whoever the professional is to do this even though other > non-professionals > > could do it. I am not sure about liability but if a person for some > strange > > reason were to get hurt when an aide gave them a massage I don't know > what the > > legal consequences would be. Does anyone know this? > > > > << > > > > Sure, but there are also the aids who give the baths and change gowns. > > They are perfectly capable of giving arm and leg rubs too, if you ask > them. > > > > We had very kind and helpful people who would have taken the time to do > > that. > > > > Robin >> > > > > ------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 1998 Report Share Posted October 26, 1998 We had nurses, especially the night ones who would take the time with Mom and go out of their way to help her. I don't know if this is the norm, I am just going by my own experience. Robin ---------- > > To: cjdvoice (AT) onelist (DOT) com' > Subject: Re: CJD and Physical Therapy > Date: Monday, October 26, 1998 1:30 PM > > > > When is the last time you heard of a nurse giving a message. I can tell you > that here in RI and southern MASS they do not give messages. If you want > you loved one to get a message you either do it yourself or ask a CNA > > Jackie Laplante > ext.309 > > > Re: CJD and Physical Therapy > > Date: Monday, October 26, 1998 12:56 PM > > > > From: DebbieOney@... > > > > Robin, > > > > Your mother and other members of CJD Voice were fortunate to have family > > members and friends who were able to give massages and do the holding > things > > in their hands with them . Often family and friends are unable to do this > for > > one reason or another. Also, some CJD victims may not have families and > > friends. We don't find out about them because they don't have loved ones > who > > would join a group like CJD Voice. They're the victims that we have > trouble > > tracking. Maybe these people need a physical therapist to do the things > > members of CJD Voice mentioned they did for their family members and for > the > > doctor to order this the doctor would have to write an order for a PT or > > whoever the professional is to do this even though other > non-professionals > > could do it. I am not sure about liability but if a person for some > strange > > reason were to get hurt when an aide gave them a massage I don't know > what the > > legal consequences would be. Does anyone know this? > > > > << > > > > Sure, but there are also the aids who give the baths and change gowns. > > They are perfectly capable of giving arm and leg rubs too, if you ask > them. > > > > We had very kind and helpful people who would have taken the time to do > > that. > > > > Robin >> > > > > ------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 1998 Report Share Posted October 26, 1998 We had nurses, especially the night ones who would take the time with Mom and go out of their way to help her. I don't know if this is the norm, I am just going by my own experience. Robin ---------- > > To: cjdvoice (AT) onelist (DOT) com' > Subject: Re: CJD and Physical Therapy > Date: Monday, October 26, 1998 1:30 PM > > > > When is the last time you heard of a nurse giving a message. I can tell you > that here in RI and southern MASS they do not give messages. If you want > you loved one to get a message you either do it yourself or ask a CNA > > Jackie Laplante > ext.309 > > > Re: CJD and Physical Therapy > > Date: Monday, October 26, 1998 12:56 PM > > > > From: DebbieOney@... > > > > Robin, > > > > Your mother and other members of CJD Voice were fortunate to have family > > members and friends who were able to give massages and do the holding > things > > in their hands with them . Often family and friends are unable to do this > for > > one reason or another. Also, some CJD victims may not have families and > > friends. We don't find out about them because they don't have loved ones > who > > would join a group like CJD Voice. They're the victims that we have > trouble > > tracking. Maybe these people need a physical therapist to do the things > > members of CJD Voice mentioned they did for their family members and for > the > > doctor to order this the doctor would have to write an order for a PT or > > whoever the professional is to do this even though other > non-professionals > > could do it. I am not sure about liability but if a person for some > strange > > reason were to get hurt when an aide gave them a massage I don't know > what the > > legal consequences would be. Does anyone know this? > > > > << > > > > Sure, but there are also the aids who give the baths and change gowns. > > They are perfectly capable of giving arm and leg rubs too, if you ask > them. > > > > We had very kind and helpful people who would have taken the time to do > > that. > > > > Robin >> > > > > ------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 1998 Report Share Posted October 26, 1998 This person that we had, I would consider more than housekeeping. If she was able to give a bath then she should be able to rub some lotion on a persons arms and legs and feet. Robin ---------- > From: DebbieOney@... > To: cjdvoice (AT) onelist (DOT) com > Subject: Re: CJD and Physical Therapy > Date: Monday, October 26, 1998 1:30 PM > > From: DebbieOney@... > > Robin, > > I was reading over what Judy said about teaching other staff. I imagine in > that case it is covered. I am no expert and am not a lawyer but I do remember > covering in a law class about people doing things within their job description > affecting how it would be reviewed for malpractice were something to occur. I > think what happens in the real world is people don't always think about their > job descriptions if they even know them and all is ok unless something > happens. While a member of the housekeeping staff may do it to be nice, I > can't imagine it being part of their job description. Any lawyers here? > > << > > Boy Debbie, I have no answer for this one. Only thing I would think that > the person is covered since they work in the hospital. Surely they would > say something if they were not able to do a massage. I know nurses can do > them too if they have the time too. > > Robin >> > > ------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 1998 Report Share Posted October 26, 1998 This person that we had, I would consider more than housekeeping. If she was able to give a bath then she should be able to rub some lotion on a persons arms and legs and feet. Robin ---------- > From: DebbieOney@... > To: cjdvoice (AT) onelist (DOT) com > Subject: Re: CJD and Physical Therapy > Date: Monday, October 26, 1998 1:30 PM > > From: DebbieOney@... > > Robin, > > I was reading over what Judy said about teaching other staff. I imagine in > that case it is covered. I am no expert and am not a lawyer but I do remember > covering in a law class about people doing things within their job description > affecting how it would be reviewed for malpractice were something to occur. I > think what happens in the real world is people don't always think about their > job descriptions if they even know them and all is ok unless something > happens. While a member of the housekeeping staff may do it to be nice, I > can't imagine it being part of their job description. Any lawyers here? > > << > > Boy Debbie, I have no answer for this one. Only thing I would think that > the person is covered since they work in the hospital. Surely they would > say something if they were not able to do a massage. I know nurses can do > them too if they have the time too. > > Robin >> > > ------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 1998 Report Share Posted October 26, 1998 This person that we had, I would consider more than housekeeping. If she was able to give a bath then she should be able to rub some lotion on a persons arms and legs and feet. Robin ---------- > From: DebbieOney@... > To: cjdvoice (AT) onelist (DOT) com > Subject: Re: CJD and Physical Therapy > Date: Monday, October 26, 1998 1:30 PM > > From: DebbieOney@... > > Robin, > > I was reading over what Judy said about teaching other staff. I imagine in > that case it is covered. I am no expert and am not a lawyer but I do remember > covering in a law class about people doing things within their job description > affecting how it would be reviewed for malpractice were something to occur. I > think what happens in the real world is people don't always think about their > job descriptions if they even know them and all is ok unless something > happens. While a member of the housekeeping staff may do it to be nice, I > can't imagine it being part of their job description. Any lawyers here? > > << > > Boy Debbie, I have no answer for this one. Only thing I would think that > the person is covered since they work in the hospital. Surely they would > say something if they were not able to do a massage. I know nurses can do > them too if they have the time too. > > Robin >> > > ------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 1998 Report Share Posted October 26, 1998 Boy this really has opened a kettle of worms. Discussion is good for the soul and education. Lotion on the body after a shower or sponge bath is considered part of shin care so that driness does not occur. If the skin becomes too dry, there may be a tendency for open areas which then could lead to further breakdown and many more problems. Judy robtom wrote: > > > > This person that we had, I would consider more than housekeeping. If she > was able to give a bath then she should be able to rub some lotion on a > persons arms and legs and feet. > > Robin > > ---------- > > From: DebbieOney@... > > To: cjdvoice (AT) onelist (DOT) com > > Subject: Re: CJD and Physical Therapy > > Date: Monday, October 26, 1998 1:30 PM > > > > From: DebbieOney@... > > > > Robin, > > > > I was reading over what Judy said about teaching other staff. I imagine > in > > that case it is covered. I am no expert and am not a lawyer but I do > remember > > covering in a law class about people doing things within their job > description > > affecting how it would be reviewed for malpractice were something to > occur. I > > think what happens in the real world is people don't always think about > their > > job descriptions if they even know them and all is ok unless something > > happens. While a member of the housekeeping staff may do it to be nice, > I > > can't imagine it being part of their job description. Any lawyers here? > > > > << > > > > Boy Debbie, I have no answer for this one. Only thing I would think > that > > the person is covered since they work in the hospital. Surely they > would > > say something if they were not able to do a massage. I know nurses can > do > > them too if they have the time too. > > > > Robin >> > > > > ------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 1998 Report Share Posted October 27, 1998 Judy: It has opened a good discussion forum as we have seen with many instances with CJD each person has a varied story of what works and what doesn't. I have learned alot about it! a G. ---------- > From: i4jod@... > To: cjdvoice (AT) onelist (DOT) com > Subject: Re: CJD and Physical Therapy > Date: Monday, October 26, 1998 6:15 PM > > From: i4jod@... > > Boy this really has opened a kettle of worms. Discussion is good for > the soul and education. > Lotion on the body after a shower or sponge bath is considered part of > shin care so that driness does not occur. If the skin becomes too dry, > there may be a tendency for open areas which then could lead to further > breakdown and many more problems. > Judy > > robtom wrote: > > > > > > > > This person that we had, I would consider more than housekeeping. If she > > was able to give a bath then she should be able to rub some lotion on a > > persons arms and legs and feet. > > > > Robin > > > > ---------- > > > From: DebbieOney@... > > > To: cjdvoice (AT) onelist (DOT) com > > > Subject: Re: CJD and Physical Therapy > > > Date: Monday, October 26, 1998 1:30 PM > > > > > > From: DebbieOney@... > > > > > > Robin, > > > > > > I was reading over what Judy said about teaching other staff. I imagine > > in > > > that case it is covered. I am no expert and am not a lawyer but I do > > remember > > > covering in a law class about people doing things within their job > > description > > > affecting how it would be reviewed for malpractice were something to > > occur. I > > > think what happens in the real world is people don't always think about > > their > > > job descriptions if they even know them and all is ok unless something > > > happens. While a member of the housekeeping staff may do it to be nice, > > I > > > can't imagine it being part of their job description. Any lawyers here? > > > > > > << > > > > > > Boy Debbie, I have no answer for this one. Only thing I would think > > that > > > the person is covered since they work in the hospital. Surely they > > would > > > say something if they were not able to do a massage. I know nurses can > > do > > > them too if they have the time too. > > > > > > Robin >> > > > > > > ------------------------------------------------------------------------ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 1998 Report Share Posted November 13, 1998 Sorry for the delay in responding. As some of you know, I have been away several times in the last two weeks. Physical therapists can help in various ways depending on the stage of the disease and the extent of the disability. I recommend that they do any one or all of the following if it seems to help the patient: - Gentle stretching of the limbs to reduce the contractures - Massage of the limbs and body to relax and decrease the myoclonic movements - Active or passive exercises to maintain functioning as long as possible One must always rememmber that the therapy should be adapted to the individual patient. What is good for one patient may not be beneficial for another. Marie Quote Link to comment Share on other sites More sharing options...
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