Guest guest Posted October 19, 1999 Report Share Posted October 19, 1999 Hi Dawn, I just came across mention of Hereditary eosinophilia. It is just a blurb in a medical Journal article I have but wondered if BJ might fall into this. I know he has EG, but wondered if something like this could go hand in hand and account for his higher Eosin levels? I also read that Asthma can cause higher levels. " Subjects with hereditary eosinophilia, who are reported to have eosinophilia through out life, are apparently healthy - but their total Eosinophil count never rises above 300/mm. " This was in an article in Hospital Practice, 1971, written by Dorthea Zucker-lin. At that time she was an associate professor of medicine, New York University School of Medicine. JUDY (ADULT GE) BJ Hi, we saw our new doctor today. She believes that the blood eosinophil count does correlate with the flare ups of EG. I guess we will see. BJ's EOS count was 6% on the Neocate only, today back on regular food it is 8%. His stools have increased some and have started with the undigested food. She plans on having his blood drawn every Monday to see how his counts go. These are the lowest counts he has ever had. His first count, at just a few months age, was 10% and it has been higher than that ever since. She did say that she would like us to at least get BJ to drink 1-2 of the Neocate a day for vitamins and such. His sodium is close to being dangerously low, no one has ever mentioned this. She said diarrhea can cause this. We go see a dietician at the end of the week. Dawn-KS, mommy to Dakota, 7, former 34 weeker and aka BJ, 4, former 32 weeker, (eosinophilic gastroenteritis, Nissen, asthma, reflux), and mommy to Mackenzie Marie (due December 24) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 1999 Report Share Posted October 19, 1999 Hi Dawn, I just came across mention of Hereditary eosinophilia. It is just a blurb in a medical Journal article I have but wondered if BJ might fall into this. I know he has EG, but wondered if something like this could go hand in hand and account for his higher Eosin levels? I also read that Asthma can cause higher levels. " Subjects with hereditary eosinophilia, who are reported to have eosinophilia through out life, are apparently healthy - but their total Eosinophil count never rises above 300/mm. " This was in an article in Hospital Practice, 1971, written by Dorthea Zucker-lin. At that time she was an associate professor of medicine, New York University School of Medicine. JUDY (ADULT GE) BJ Hi, we saw our new doctor today. She believes that the blood eosinophil count does correlate with the flare ups of EG. I guess we will see. BJ's EOS count was 6% on the Neocate only, today back on regular food it is 8%. His stools have increased some and have started with the undigested food. She plans on having his blood drawn every Monday to see how his counts go. These are the lowest counts he has ever had. His first count, at just a few months age, was 10% and it has been higher than that ever since. She did say that she would like us to at least get BJ to drink 1-2 of the Neocate a day for vitamins and such. His sodium is close to being dangerously low, no one has ever mentioned this. She said diarrhea can cause this. We go see a dietician at the end of the week. Dawn-KS, mommy to Dakota, 7, former 34 weeker and aka BJ, 4, former 32 weeker, (eosinophilic gastroenteritis, Nissen, asthma, reflux), and mommy to Mackenzie Marie (due December 24) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 1999 Report Share Posted October 19, 1999 Hi Dawn, I just came across mention of Hereditary eosinophilia. It is just a blurb in a medical Journal article I have but wondered if BJ might fall into this. I know he has EG, but wondered if something like this could go hand in hand and account for his higher Eosin levels? I also read that Asthma can cause higher levels. " Subjects with hereditary eosinophilia, who are reported to have eosinophilia through out life, are apparently healthy - but their total Eosinophil count never rises above 300/mm. " This was in an article in Hospital Practice, 1971, written by Dorthea Zucker-lin. At that time she was an associate professor of medicine, New York University School of Medicine. JUDY (ADULT GE) BJ Hi, we saw our new doctor today. She believes that the blood eosinophil count does correlate with the flare ups of EG. I guess we will see. BJ's EOS count was 6% on the Neocate only, today back on regular food it is 8%. His stools have increased some and have started with the undigested food. She plans on having his blood drawn every Monday to see how his counts go. These are the lowest counts he has ever had. His first count, at just a few months age, was 10% and it has been higher than that ever since. She did say that she would like us to at least get BJ to drink 1-2 of the Neocate a day for vitamins and such. His sodium is close to being dangerously low, no one has ever mentioned this. She said diarrhea can cause this. We go see a dietician at the end of the week. Dawn-KS, mommy to Dakota, 7, former 34 weeker and aka BJ, 4, former 32 weeker, (eosinophilic gastroenteritis, Nissen, asthma, reflux), and mommy to Mackenzie Marie (due December 24) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2000 Report Share Posted February 8, 2000 Well we talked to the ped (who is kinda dense) and she said that sending us to BAMC or WR would be what she wants to do but she said that it doesn't solve any long term issues for BJ. She said that BJ needs to be followed on a monthly basis by a GI and there is no way we could go to BAMC or WR once a month. She said we should either consider going back to our old GI doctor who despite his one stupid mistake, always took BJ's general quality of life into effect or we should consider applying for a compassionate reassignment (which she would back up) to be closer to BAMC or WR. We tried the compassionate reassignment once and weren't successful and now I would say our chances are even slimmer considering dh is on assignment for Korea in June. She said I could move there before he left and stay there by myself and then he could request to come to the base after Korea (which they would probably grant) but I can't imagine being ALL alone in a strange state with no one and 3 kids so now I don't know what we are going to do but I think we will probably go to one of the places soon considering BJ's weight and very poor eating. Dawn Quote Link to comment Share on other sites More sharing options...
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