Guest guest Posted December 3, 1999 Report Share Posted December 3, 1999 I totally agree with you. I was just wondering do you have any hope of your kid getting better? possible being able to eat food one day with out getting sick or being on sooo many meds? Tim and I were talking about this I don't really think Alyssa will completely grow out of this. I know that the skin test are accurate but with Alyssa they just tested her for the foods that we were feeding her and that is how we knew she was allergic to the stuff, Also We forgot to mention if you have been takeing prednisone it will mask your diag. It even covers up the EOS in biopies. Just thought I 'd add that . Tina mom to Alyssa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 1999 Report Share Posted December 3, 1999 I totally agree with you. I was just wondering do you have any hope of your kid getting better? possible being able to eat food one day with out getting sick or being on sooo many meds? Tim and I were talking about this I don't really think Alyssa will completely grow out of this. I know that the skin test are accurate but with Alyssa they just tested her for the foods that we were feeding her and that is how we knew she was allergic to the stuff, Also We forgot to mention if you have been takeing prednisone it will mask your diag. It even covers up the EOS in biopies. Just thought I 'd add that . Tina mom to Alyssa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 1999 Report Share Posted December 3, 1999 I totally agree with you. I was just wondering do you have any hope of your kid getting better? possible being able to eat food one day with out getting sick or being on sooo many meds? Tim and I were talking about this I don't really think Alyssa will completely grow out of this. I know that the skin test are accurate but with Alyssa they just tested her for the foods that we were feeding her and that is how we knew she was allergic to the stuff, Also We forgot to mention if you have been takeing prednisone it will mask your diag. It even covers up the EOS in biopies. Just thought I 'd add that . Tina mom to Alyssa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 1999 Report Share Posted December 3, 1999 I just wanted to tell you that it was difficult to begin with now ALyssa is handleing it really good. she knows that food makes her sick, so she sticks to her water. It may take a little getting used to but it is worth it. I was curious Is the prednisone all your GI has done? Tina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 1999 Report Share Posted December 3, 1999 I just wanted to tell you that it was difficult to begin with now ALyssa is handleing it really good. she knows that food makes her sick, so she sticks to her water. It may take a little getting used to but it is worth it. I was curious Is the prednisone all your GI has done? Tina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 1999 Report Share Posted December 3, 1999 I just wanted to tell you that it was difficult to begin with now ALyssa is handleing it really good. she knows that food makes her sick, so she sticks to her water. It may take a little getting used to but it is worth it. I was curious Is the prednisone all your GI has done? Tina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 1999 Report Share Posted December 3, 1999 My son is not on any type of diet at this time, I feel like this will be next. I do not know how we will be able to deal with a certain diet. Trey attends nursery school full time--8:00 to 4:00. I feel like this will be a big challenge for us to get him to stay on a strict diet, when he sees the other children eating normal food. Any suggestions, just in case we have to do this. How did you all do it? sjh wrote: > Some kids do outgrow it. I'm told a LOT of them outgrow it. > However, I have not and none of my kids are expected to. It takes days > for our kids to show reactions to foods. We also have figured out > that it is more the AMOUNT they eat of anything or any combination as > opposed to WHAT (although there are a few specific foods we know cause > symptoms). It sounds like that may be what you are going through > too. It seems like they " build up " reaction to the protein until it > " explodes " , or they react. Is your son on an elemental diet yet, i.e. > one of the formula amino-acid based formulas? > You may try smaller amounts of a small variety of foods, but again, I > suspect it is an intolerance to food proteins period in a lot of > cases. There was a gentleman on this list with EG who is able to > control his disease by a severely limited diet. Steph. > > Re: [eosinophilic gastroenteritis] okies > > We have not done the skin testing, Trey's doctor > feel that > > is not necessary. We > > are still awaiting a call from the doctror 3 days > later. I > > think I am go to > > insist that the test be done. I live in Goliad, > Texas which > > is about 3 hours from > > Houston. I will keep you informed. > > > > Ssrams@... wrote: > > > > > From: Ssrams@... > > > > > > In a message dated 12/2/99 11:36:23 AM Central > Standard > > Time, > > > mmoya@... writes: > > > > > > << From: mmoya@... ( Moya) > > > Reply-to: eosinophilic gastroenteritis (AT) onelist (DOT) com > > > To: eosinophilic gastroenteritis (AT) onelist (DOT) com > > > > > > > > > > > > We have been taking my son to Houston-Texas > Children's > > Hospital to a GI > > > there and > > > so far have been pretty satisfied with him, but as > I > > speak I am waiting for a > > > phone call from his since yesterday afternoon. My > son > > (4yrs. old) was > > > diagnosed > > > with Eosiopholic Gastr., we are trying to figure > out was > > is causing the > > > spontaneous vomiting. We have tried prednisone > and as > > long as he is on it > > > he is > > > fine. We just weaned him off slowly after 7wks. > and > > three days later he > > > threw > > > up. He has only thrown up 2 times in one week. > But I am > > so worried it is > > > going > > > to lead up to the way it was before we put him on > > prednisone, he was > > > throwing up > > > once, twice a day or every day or even every other > day. > > He has no other > > > symtoms > > > but the vomiting. His doctor in Houston did the > blood > > work for food > > > allergies > > > and said there were no signs of any allergies. I > am just > > a basket case, not > > > knowing if it will every get better. This has > been going > > on since Feb. 99, > > > almost one year. I am so ready for some anwers. > It has > > made me feel good to > > > know that there are other people out there with > the same > > problems. It is so > > > nice > > > to communicate with other people that can relate. > Help, > > any > > > suggestions???????? >> > > > > > > Hi my name is Tina and welcome to the club. > my > > daughter is 3 1/2 and > > > we have the same problem. she now has the button > and is > > formula fed. after a > > > trial run with prednisone 9 months she she was > taken off > > and put back on > > > after being off for 6 wks. she too can't function > with > > out so here we are. > > > you talked about testing for allergies did they do > the > > skin test? that is > > > how we found out about Alyssa's allergies and hers > just > > kept getting worse. > > > Do you live in Texas we live in Sherman that is > about 5 > > 1/2 hrs from houston. > > > Good luck and let me know what happens. Tina > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 1999 Report Share Posted December 3, 1999 My son is not on any type of diet at this time, I feel like this will be next. I do not know how we will be able to deal with a certain diet. Trey attends nursery school full time--8:00 to 4:00. I feel like this will be a big challenge for us to get him to stay on a strict diet, when he sees the other children eating normal food. Any suggestions, just in case we have to do this. How did you all do it? sjh wrote: > Some kids do outgrow it. I'm told a LOT of them outgrow it. > However, I have not and none of my kids are expected to. It takes days > for our kids to show reactions to foods. We also have figured out > that it is more the AMOUNT they eat of anything or any combination as > opposed to WHAT (although there are a few specific foods we know cause > symptoms). It sounds like that may be what you are going through > too. It seems like they " build up " reaction to the protein until it > " explodes " , or they react. Is your son on an elemental diet yet, i.e. > one of the formula amino-acid based formulas? > You may try smaller amounts of a small variety of foods, but again, I > suspect it is an intolerance to food proteins period in a lot of > cases. There was a gentleman on this list with EG who is able to > control his disease by a severely limited diet. Steph. > > Re: [eosinophilic gastroenteritis] okies > > We have not done the skin testing, Trey's doctor > feel that > > is not necessary. We > > are still awaiting a call from the doctror 3 days > later. I > > think I am go to > > insist that the test be done. I live in Goliad, > Texas which > > is about 3 hours from > > Houston. I will keep you informed. > > > > Ssrams@... wrote: > > > > > From: Ssrams@... > > > > > > In a message dated 12/2/99 11:36:23 AM Central > Standard > > Time, > > > mmoya@... writes: > > > > > > << From: mmoya@... ( Moya) > > > Reply-to: eosinophilic gastroenteritis (AT) onelist (DOT) com > > > To: eosinophilic gastroenteritis (AT) onelist (DOT) com > > > > > > > > > > > > We have been taking my son to Houston-Texas > Children's > > Hospital to a GI > > > there and > > > so far have been pretty satisfied with him, but as > I > > speak I am waiting for a > > > phone call from his since yesterday afternoon. My > son > > (4yrs. old) was > > > diagnosed > > > with Eosiopholic Gastr., we are trying to figure > out was > > is causing the > > > spontaneous vomiting. We have tried prednisone > and as > > long as he is on it > > > he is > > > fine. We just weaned him off slowly after 7wks. > and > > three days later he > > > threw > > > up. He has only thrown up 2 times in one week. > But I am > > so worried it is > > > going > > > to lead up to the way it was before we put him on > > prednisone, he was > > > throwing up > > > once, twice a day or every day or even every other > day. > > He has no other > > > symtoms > > > but the vomiting. His doctor in Houston did the > blood > > work for food > > > allergies > > > and said there were no signs of any allergies. I > am just > > a basket case, not > > > knowing if it will every get better. This has > been going > > on since Feb. 99, > > > almost one year. I am so ready for some anwers. > It has > > made me feel good to > > > know that there are other people out there with > the same > > problems. It is so > > > nice > > > to communicate with other people that can relate. > Help, > > any > > > suggestions???????? >> > > > > > > Hi my name is Tina and welcome to the club. > my > > daughter is 3 1/2 and > > > we have the same problem. she now has the button > and is > > formula fed. after a > > > trial run with prednisone 9 months she she was > taken off > > and put back on > > > after being off for 6 wks. she too can't function > with > > out so here we are. > > > you talked about testing for allergies did they do > the > > skin test? that is > > > how we found out about Alyssa's allergies and hers > just > > kept getting worse. > > > Do you live in Texas we live in Sherman that is > about 5 > > 1/2 hrs from houston. > > > Good luck and let me know what happens. Tina > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 1999 Report Share Posted December 3, 1999 My son is not on any type of diet at this time, I feel like this will be next. I do not know how we will be able to deal with a certain diet. Trey attends nursery school full time--8:00 to 4:00. I feel like this will be a big challenge for us to get him to stay on a strict diet, when he sees the other children eating normal food. Any suggestions, just in case we have to do this. How did you all do it? sjh wrote: > Some kids do outgrow it. I'm told a LOT of them outgrow it. > However, I have not and none of my kids are expected to. It takes days > for our kids to show reactions to foods. We also have figured out > that it is more the AMOUNT they eat of anything or any combination as > opposed to WHAT (although there are a few specific foods we know cause > symptoms). It sounds like that may be what you are going through > too. It seems like they " build up " reaction to the protein until it > " explodes " , or they react. Is your son on an elemental diet yet, i.e. > one of the formula amino-acid based formulas? > You may try smaller amounts of a small variety of foods, but again, I > suspect it is an intolerance to food proteins period in a lot of > cases. There was a gentleman on this list with EG who is able to > control his disease by a severely limited diet. Steph. > > Re: [eosinophilic gastroenteritis] okies > > We have not done the skin testing, Trey's doctor > feel that > > is not necessary. We > > are still awaiting a call from the doctror 3 days > later. I > > think I am go to > > insist that the test be done. I live in Goliad, > Texas which > > is about 3 hours from > > Houston. I will keep you informed. > > > > Ssrams@... wrote: > > > > > From: Ssrams@... > > > > > > In a message dated 12/2/99 11:36:23 AM Central > Standard > > Time, > > > mmoya@... writes: > > > > > > << From: mmoya@... ( Moya) > > > Reply-to: eosinophilic gastroenteritis (AT) onelist (DOT) com > > > To: eosinophilic gastroenteritis (AT) onelist (DOT) com > > > > > > > > > > > > We have been taking my son to Houston-Texas > Children's > > Hospital to a GI > > > there and > > > so far have been pretty satisfied with him, but as > I > > speak I am waiting for a > > > phone call from his since yesterday afternoon. My > son > > (4yrs. old) was > > > diagnosed > > > with Eosiopholic Gastr., we are trying to figure > out was > > is causing the > > > spontaneous vomiting. We have tried prednisone > and as > > long as he is on it > > > he is > > > fine. We just weaned him off slowly after 7wks. > and > > three days later he > > > threw > > > up. He has only thrown up 2 times in one week. > But I am > > so worried it is > > > going > > > to lead up to the way it was before we put him on > > prednisone, he was > > > throwing up > > > once, twice a day or every day or even every other > day. > > He has no other > > > symtoms > > > but the vomiting. His doctor in Houston did the > blood > > work for food > > > allergies > > > and said there were no signs of any allergies. I > am just > > a basket case, not > > > knowing if it will every get better. This has > been going > > on since Feb. 99, > > > almost one year. I am so ready for some anwers. > It has > > made me feel good to > > > know that there are other people out there with > the same > > problems. It is so > > > nice > > > to communicate with other people that can relate. > Help, > > any > > > suggestions???????? >> > > > > > > Hi my name is Tina and welcome to the club. > my > > daughter is 3 1/2 and > > > we have the same problem. she now has the button > and is > > formula fed. after a > > > trial run with prednisone 9 months she she was > taken off > > and put back on > > > after being off for 6 wks. she too can't function > with > > out so here we are. > > > you talked about testing for allergies did they do > the > > skin test? that is > > > how we found out about Alyssa's allergies and hers > just > > kept getting worse. > > > Do you live in Texas we live in Sherman that is > about 5 > > 1/2 hrs from houston. > > > Good luck and let me know what happens. Tina > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 1999 Report Share Posted December 6, 1999 I mean complete proteins... once they are broken down, the eos can't attach to them.. there is protein in the elemental formulas, they are just already broken down into a more simple form. S. There is a growing sense that kids with EG/EE/EC kids it is an actual protein intolerance period... having less to do with a specific food protein, just the complete protein in general. >> so does that mean the kids can't have any protien? don't youi need protien to live? Cathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2000 Report Share Posted March 28, 2000 Remi is highly allergic to shellfish-breathes in the fumes and has a reaction. She just went thru testing with no problem. AJ did skin testing in November-ish and was fine. With AJ we did tons of tests. She is very cooperative and we didn't know what we were looking for. Remi was very specific-a few tests, both enviornmental and foods and she was off the wall. AJ's were done on her arms. Remi on her back. We are going tomorrow and Remi is having a challange to eggs. We never did a challange. Does this help? Hope so. Phyllis Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.