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OH MY GOD!

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Well I don't even know where to begin. We got to the hospital on Wednesday and

they put BJ on TPN. The GI doctor on call came in and went through the plan

with me which was to give him a few days of bowel rest with TPN and then to

figure out which formula to put him on and place an ng tube.

Well this is what we found out Friday morning. In August when we had BJ scoped,

they gave us the wrong results. His results were completely normal and clean of

eosinophils. We were told that the results were bad and that they showed

eosinophils all over hence our GI doctor (who was not the one on call this time)

prescribing Gastrocrom, Prednisone and the Neocate. Never mind the fact that we

hadn't fed our son in 3 weeks, only letting him drink the Neocate when it wasn't

necessary. So, we ruined his teeth for no reason. The doctors there agreed

with our dentist that the Neocate had done this to BJ's teeth mostly because of

the fact that every time he takes a drink, he holds it in his mouth for minutes

before swallowing it.

I just can't even describe how MAD I was. The hospital is launching an

investigation into what happened. I signed BJ out of the hospital. NOW, not

only do we not know what is wrong with BJ now (The on call GI doctor was very

concerned by his stools and undigested food in them) but we put our kid through

HELL for no reason. His eos count in his blood is still very high. What does

that mean if there are no eosinophils in his scope?

Dawn-KS, mommy to Dakota, 7 and aka BJ, 3 (eosinophilic gastroenteritis,

Nissen, asthma, reflux), and mommy to Mackenzie Marie (due December 24)

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