Advisory Board & National Associate Coordinators

[Guest guest]

I had a great deal of time to think the past two days (uh, OH) while away

from my PC. I made a couple decisions for the Watch site, I think everyone is

going to like this arrangement.

I find that I need advisors on the Watch site to help me in decision making

matters. This does NOT mean that I do not want the opinions of all the CJD

Watch subscribers/MEMBERS. They are all important to the sites growth.

However, when we have so many differing opinions, we need a committee to make

the final decision on any given opinion/subject.

Also, I need help in coordinating the State Contacts. I have decided that I

will appoint two National Assistant Coordinators (NAC) to help the State

Contacts get started in the right direction. If we find we need more than two,

we can appoint them. I want to definitely be a part of the construction of

the State contacts goals for each state. However, I need help in guidelines

while building the site, and etc... This is going to prevent us from

" flailing " out there........

I have written the Goals we should be striving for in CJD Watch, if anyone can

add to the list, be my guest! I am open to all suggestions:

1. Public Awareness of CJD

2. Mandatory Reporting in each state

3. Contacting/Documenting CJD Victims in each County of each State

4. More Research for CJD

5. A CURE FOR CJD!!!!

I am not playing favorites in choosing this committee, I based the decision

on the fact that I can, if necessary, quickly get in touch with these members

during the day and evening. I must have those who are online checking their

mail several times a day.

This is a tentative list, it will not be conclusive until each person responds

in the positive (or negative) as to whether they will accept the invitation to

be a Committee member, or a NAC. Here are the ones I am now asking to be my

Advisory Committee.

Robin

Lynette (for Australia)

a (for Canada)

Liz

DebbieOney

For the NAC positions, I would like BevAlso, and Dolly..... This is an

important position, and will require working with the State coordnators to

help them set up their guidelines and working very closely with the State

coordinators. If there are problems, I want to know about them, so I would

like a brief on the problems at least once a week... I DO want to be involved

in this and I DO want the State Contacts to contact me if they need my help...

Bev and Dolly will do fine jobs, and I will be waiting for their answers as to

whether they will accept - in the affirmative or negative

I hope they will accept!!!

Thanks everyone!! You all deserve great big hugs for your efforts to fight

for CJD research!!

Barbara