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Steph -

I would like a copy of the article!! If you scan the article, you can email

me a copy. I have a cable modem, so size doesn't matter.

If you don't have a scanner, you can send me a copy of the article, and I

can scan it for you. (If you want me to :-)

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MIchelle,

My scanner isnt working so that might be a really good idea. I wonder how

you would scan something as large as an entire page of the paper? It's much

bigger than 81/2 x 11.

S.

Re: [eosinophilic gastroenteritis] story

>

>

>Steph -

>

>I would like a copy of the article!! If you scan the article, you can

email

>me a copy. I have a cable modem, so size doesn't matter.

>

>If you don't have a scanner, you can send me a copy of the article, and I

>can scan it for you. (If you want me to :-)

>

>

>

>

>---------------------------

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Wow, Steph - that's quite an article! I can't imaging going through all you

have! I'd like to put a link to your website on my EE/EG/EC webpage - is

that ok with you?

Thanks,

-Joy

______________________________________________________

Get Your Private, Free Email at http://www.hotmail.com

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feel free

Re: [eosinophilic gastroenteritis] story

>

>

>Wow, Steph - that's quite an article! I can't imaging going through all

you

>have! I'd like to put a link to your website on my EE/EG/EC webpage - is

>that ok with you?

>

>Thanks,

>

>-Joy

>______________________________________________________

>Get Your Private, Free Email at http://www.hotmail.com

>

>

>---------------------------

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Hi Steph,

I enjoyed the article very much and would love to have a copy to give to people

that don't really quite understand EE.

I have a couple of questions... Do you ever wonder why the severity of the

disease is so different from kid to kid? Even within your own household. Any

explanations?

Has anyone ever taken a very low dose of steroids, say 5mg a day every other day

without

starting at the super high dose and weaning down from there.

We have decided to not subject Dan to any further treatment until after

graduation if we can. The last 6 months have been very tough for him. I am

allowing him to eat anything he wants for the time being. NO outward symptoms at

the present time.

Mom to Dan 18 yrs old EE and a heck of a baseball pitcher.

>

> __________________________________________________

>

>

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,

We all had symptoms as the prednisone dose is lowered. we've tried just

starting a lower doses too to no avail.

I also haven't posted to this list, what is happening with me, at least I

dont think i have... i've become intolerant to the Elecare even ON

prednisone, cramping, diarrhea, etc...

I had an appt with several doctors, nutritionist, stoma nurse, pharmacist at

Univ of Virginia Hospital this morning. The decision being made now along

with my allergist and Ross Pharmaceuticals is whether to put me on TPN while

we try to figure out some other way to feed me. They drew a huge amount of

labs today looking at every mineral and vitamin my body still has.. the

outcome of those tests will determine just how quickly we have to make up

our minds.

a very disappointing day, all in all, but certainly not completely

unexpected.

Also, Killian has been having some trouble too. He's going to be scoped

next week.

Steph.

__________________________________________________

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Steph, You are under SOOOOOOOOOO much stress! Your body is bound to

still react to that, right? This is probably SOOO STUPID of me to ask,

but is there any chance that the cramping and diarrhea has anything to

do with that? You must have other symptoms that tell you it isn't the

stress because you've been through this before, but stress is SO hard on

one's body. Just a thought. I don't know anything about anything where

this stuff is concerned. It seems the more I find out the more

confused I get. Just praying everyday that Luke outgrows it! His

problem, far more minor at this point than yours, has really taken it's

toll on me!

Kathy

Steph wrote:

>

>

>

> ,

>

> We all had symptoms as the prednisone dose is lowered. we've tried just

> starting a lower doses too to no avail.

>

> I also haven't posted to this list, what is happening with me, at least I

> dont think i have... i've become intolerant to the Elecare even ON

> prednisone, cramping, diarrhea, etc...

>

> I had an appt with several doctors, nutritionist, stoma nurse, pharmacist at

> Univ of Virginia Hospital this morning. The decision being made now along

> with my allergist and Ross Pharmaceuticals is whether to put me on TPN while

> we try to figure out some other way to feed me. They drew a huge amount of

> labs today looking at every mineral and vitamin my body still has.. the

> outcome of those tests will determine just how quickly we have to make up

> our minds.

>

> a very disappointing day, all in all, but certainly not completely

> unexpected.

>

> Also, Killian has been having some trouble too. He's going to be scoped

> next week.

>

> Steph.

>

> __________________________________________________

>

>

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Kathy,

I'm sure we have much different perspectives on what a lot of stress is..

STRESS to me was when my entire family was suffering simultaneously. Having

them all tube-fed and most of them feeling better is wonderful to me.

My problems only occur with feeds, if I dont take formula, I dont have

problems. The timing is consistently only with feeds.

Steph.

Re: [eosinophilic gastroenteritis] story

>

>

>Steph, You are under SOOOOOOOOOO much stress! Your body is bound to

>still react to that, right? This is probably SOOO STUPID of me to ask,

>but is there any chance that the cramping and diarrhea has anything to

>do with that? You must have other symptoms that tell you it isn't the

>stress because you've been through this before, but stress is SO hard on

>one's body. Just a thought. I don't know anything about anything where

>this stuff is concerned. It seems the more I find out the more

>confused I get. Just praying everyday that Luke outgrows it! His

>problem, far more minor at this point than yours, has really taken it's

>toll on me!

>

>Kathy

>

>Steph wrote:

>>

>>

>>

>> ,

>>

>> We all had symptoms as the prednisone dose is lowered. we've tried just

>> starting a lower doses too to no avail.

>>

>> I also haven't posted to this list, what is happening with me, at least I

>> dont think i have... i've become intolerant to the Elecare even ON

>> prednisone, cramping, diarrhea, etc...

>>

>> I had an appt with several doctors, nutritionist, stoma nurse, pharmacist

at

>> Univ of Virginia Hospital this morning. The decision being made now

along

>> with my allergist and Ross Pharmaceuticals is whether to put me on TPN

while

>> we try to figure out some other way to feed me. They drew a huge amount

of

>> labs today looking at every mineral and vitamin my body still has.. the

>> outcome of those tests will determine just how quickly we have to make up

>> our minds.

>>

>> a very disappointing day, all in all, but certainly not completely

>> unexpected.

>>

>> Also, Killian has been having some trouble too. He's going to be scoped

>> next week.

>>

>> Steph.

>>

>> __________________________________________________

>>

>>

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Miriam got down to 2.5 mg everyother day. We just took her off the

prednisone and she is starting up with allergic symptoms none of the doctors

here have any expereince with EG so all they tell me is put her back on

prednisone . I very much don't want to.

Shana (mom to Miriam 4 EG, Yisroel 2 1/2 possible EG, language delays,

Tehilla 8 ADHD)

Re: [eosinophilic gastroenteritis] story

>

>

> Hi Steph,

> I enjoyed the article very much and would love to have a copy to give to

people

> that don't really quite understand EE.

>

> I have a couple of questions... Do you ever wonder why the severity of the

> disease is so different from kid to kid? Even within your own household.

Any

> explanations?

>

> Has anyone ever taken a very low dose of steroids, say 5mg a day every

other day

> without

> starting at the super high dose and weaning down from there.

>

> We have decided to not subject Dan to any further treatment until after

> graduation if we can. The last 6 months have been very tough for him. I am

> allowing him to eat anything he wants for the time being. NO outward

symptoms at

> the present time.

>

> Mom to Dan 18 yrs old EE and a heck of a baseball pitcher.

>

> >

> > __________________________________________________

> >

> >

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