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,

is feeling great, and is not having any problems

at all right now (that we can see). This is not unusual

for him. He is still taking the ultrase. He is

scheduled for a scope on March 17th. We will know

if it has helped at all then. If no improvement, we

will most likely try the flovent therapy.

Glad to hear that Dan is feeling well. I'll keep

you posted when we find out 's scope/biopsy results.

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  • 4 years later...

Hi Shiloh!

Yes, unfortunately it was my fourth surgery. Surgeries #1 (BSSO of

lower jaw to place distractors which gradually advanced my lower jaw

17 mm) and #2 (removal of distractors and upper jaw moved 5 mm) were

planned. Because I had a long time history of TMJ and already had

some degeneration of the joints, my surgeon decided to do the

surgery in two stages and using distraction to minimize the stress

on the joints. However instead of making the TMJ better (like in the

majority of patients), surgery caused the arthritis to flare up.

Within 6 months, my new perfect bite was no longer. My overbite was

returning and my lower jaw was deviated 6 mm to the left because of

bone loss in the condyles. My first surgeon referred me to a TMJ

specialist. He found that the disc and condyle was gone (basically

disintegrated) on the left and the right was in pretty bad shape

too. Last May, he did a temporalis (scalp) muscle graft on the left

and arthroscopic surgery on the right. He warned us that I would

eventually need more surgery on the joints but we were hoping that

this would hold me at least a few years. I did well for a few months

and then I started to have a lot of pain again. My opening was very

limited and my overbite was back, only 7-8 mm this time but still.

Another CT showed that the right joint was fused and what little of

the condyle was left had avascular necrosis (dead bone). Four weeks

ago, the surgeon removed what was left of the condyles and placed

distractors again ( this time to rebuild the condyles) and did a

muscle graft on the right side to replace the cartilage (the left

muscle graft had held up well). In a few weeks, I will have one last

surgery (I hope) to remove the distractors. Since the new bone is

still soft, my surgeon can mold the bone into the correct position

and again restore my perfect bite. Plates (similar to what we

already have from our previous orthognathic surgeries) will hold the

bone in position until it's fully calcified.

Upper jaw surgery didn't change my upper facial structure too much.

Straightening out my upper jaw did straighten out my nose. When I

sent our family Christmas picture to my college roommate this year,

she said the only way she recognized me was by my eyes. They didn't

change at all.

I don't have a picture file here but if you email me at

minirascal@..., I can send you some of my pictures pre-op and

post-op.

I'm not surprised the ER docs didn't want to do anything with your

mouth other than look at it. In medical school we just learn the

basic anatomy of the the mouth and jaws. We're not trained to do any

treatment of the jaws or teeth - we leave that to the dental people

(dentists, oral surgeons, etc). I've only seen a handful of

orthognathic surgery patients in the ER and that was to treat

dehydration in the first few days post-op. 99% of my knowledge of

orthognathic procedures I learned first-hand as a patient so I don't

know anymore than the rest of you when it comes to orthognathic

surgery.

What was surgery #2 for? Surgery #1 was lower jaw only, right?

> #4???

> Sorry I haven't been too active here, why 4? As someone who's

going

> in for #3 and since you are a doctor yourself....?

>

> I am just feeling around and realised that my cheekbones are close

> to the 'cut' lines. I am also trying to schedual a septoplasty so

I

> am wondering how much the uppers will change my facial bone

> structure...

>

> New bone plates?

>

>

> Shiloh

> do you have a picture file?

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Hi ,

Could you tell more of your personal experience on distraction. Is

it painful compare to normal jaw surgery? Is it hard to manage with

a device in your mouth for weeks?

My OS told me I need distraction cos' my jaw joint is weak. If I

choose normal jaw surgery, the chances of me getting a relapse is

very high and including condyles resorbs and shortens. But again, if

I opt for distraction there is no guarantee that I will not suffer a

relapse but chances is lower. The last option is just to put on

braces but the outcome will be less than ideal. Now I'm in a dilemma

of which one to choose.

I still have not put on braces yet. Cos' I've to make up my mind

which of the above I will choose. Right now, I'm approx. 12mm over

bite and accordingly to my OS, braces can move back approx. 5mm.

As oral distraction is quite a new technology, not mamy pple can

share their personal experience to me. Even my OS only have done 4

cases on distraction before, So I'm really worried about distraction.

I would really appreciate if you could share your expreience with

me.

Anyone out there can feel free to comment on it too.

Thanks!

Rgds,

Maggie

> > #4???

> > Sorry I haven't been too active here, why 4? As someone who's

> going

> > in for #3 and since you are a doctor yourself....?

> >

> > I am just feeling around and realised that my cheekbones are

close

> > to the 'cut' lines. I am also trying to schedual a septoplasty

so

> I

> > am wondering how much the uppers will change my facial bone

> > structure...

> >

> > New bone plates?

> >

> >

> > Shiloh

> > do you have a picture file?

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Hi ,

Could you tell more of your personal experience on distraction. Is

it painful compare to normal jaw surgery? Is it hard to manage with

a device in your mouth for weeks?

My OS told me I need distraction cos' my jaw joint is weak. If I

choose normal jaw surgery, the chances of me getting a relapse is

very high and including condyles resorbs and shortens. But again, if

I opt for distraction there is no guarantee that I will not suffer a

relapse but chances is lower. The last option is just to put on

braces but the outcome will be less than ideal. Now I'm in a dilemma

of which one to choose.

I still have not put on braces yet. Cos' I've to make up my mind

which of the above I will choose. Right now, I'm approx. 12mm over

bite and accordingly to my OS, braces can move back approx. 5mm.

As oral distraction is quite a new technology, not mamy pple can

share their personal experience to me. Even my OS only have done 4

cases on distraction before, So I'm really worried about distraction.

I would really appreciate if you could share your expreience with

me.

Anyone out there can feel free to comment on it too.

Thanks!

Rgds,

Maggie

> > #4???

> > Sorry I haven't been too active here, why 4? As someone who's

> going

> > in for #3 and since you are a doctor yourself....?

> >

> > I am just feeling around and realised that my cheekbones are

close

> > to the 'cut' lines. I am also trying to schedual a septoplasty

so

> I

> > am wondering how much the uppers will change my facial bone

> > structure...

> >

> > New bone plates?

> >

> >

> > Shiloh

> > do you have a picture file?

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Share on other sites

Hi ,

Could you tell more of your personal experience on distraction. Is

it painful compare to normal jaw surgery? Is it hard to manage with

a device in your mouth for weeks?

My OS told me I need distraction cos' my jaw joint is weak. If I

choose normal jaw surgery, the chances of me getting a relapse is

very high and including condyles resorbs and shortens. But again, if

I opt for distraction there is no guarantee that I will not suffer a

relapse but chances is lower. The last option is just to put on

braces but the outcome will be less than ideal. Now I'm in a dilemma

of which one to choose.

I still have not put on braces yet. Cos' I've to make up my mind

which of the above I will choose. Right now, I'm approx. 12mm over

bite and accordingly to my OS, braces can move back approx. 5mm.

As oral distraction is quite a new technology, not mamy pple can

share their personal experience to me. Even my OS only have done 4

cases on distraction before, So I'm really worried about distraction.

I would really appreciate if you could share your expreience with

me.

Anyone out there can feel free to comment on it too.

Thanks!

Rgds,

Maggie

> > #4???

> > Sorry I haven't been too active here, why 4? As someone who's

> going

> > in for #3 and since you are a doctor yourself....?

> >

> > I am just feeling around and realised that my cheekbones are

close

> > to the 'cut' lines. I am also trying to schedual a septoplasty

so

> I

> > am wondering how much the uppers will change my facial bone

> > structure...

> >

> > New bone plates?

> >

> >

> > Shiloh

> > do you have a picture file?

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