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Patient Timelines

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I was just wondering how many of us have put together

a timeline of our loved one's illness. My mother

died in December and since then my father and my

sisters and I have been working together to get an

accurate story of my mother's illness, from her first

symptoms months before, down to her last days. My

father typed up the initial timeline, which we have

all read and revised.

Dolly, is there a place to post timelines on the

Voice? Also, are there any doctors who would be

interested in a copy? I was also thinking everyone

who is coming to the conference in June should bring

copies of their timeline to give to the speakers.

I'm sure they'd have an interest.

I know writing a timeline is very hard, but the

benefits outweighs the pain. we gave a copy of our

timeline to a newspaper doing an article on CJD. I

think it helped the reporter get a better grasp of

the disease. For those of you having a hard time, I

suggest a starting point of trying to get your loved

one's medical records.

Also, for those of you who asked about the flyer that

we had out at our mother, I will email you a copy

this weekend. I have the file at home and I'm at

work now.

===

It's never too late to be what you might have been -

Elliott

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