Guest guest Posted October 27, 1999 Report Share Posted October 27, 1999 In a message dated 10/27/99 3:58:11 PM Pacific Daylight Time, Ssrams@... writes: << I remember that on one the post a while back that the discussion was on SSI Alyssa has a hearing on Nov 9 and I wanted to know if any one had any idea about what to say and what not to say. >> I would bring her hooked up to her feeding machine if possible, if not then bring photos. Cathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 1999 Report Share Posted October 27, 1999 We went to BJ's SSI hearing January 98. The judge took one look at him and approved it. We were in court less than 5 minutes. I was glad but it made me mad that they put it off for so long. Hopefully, you will get an understanding judge. I was just prepared to tell him what a basic day of BJ's life was like with all the feedings and meds. Dawn-KS, mommy to Dakota, 7, former 34 weeker and aka BJ, 4, former 32 weeker, (eosinophilic gastroenteritis, Nissen, asthma, reflux), and mommy to Mackenzie Marie (due December 24) [eosinophilic gastroenteritis] Re: update on Alyssa > From: Ssrams@... > > Hello guys, this is Tina mom to Alyssa and I wanted to give an update. Well > she got the g-tube 21\2 wks ago and things had gotten better then she had a > reaction to the formula and they changed it to peptimen jr.(by the way does > any one need any criticare? I have about 7 cases of it left. let me know.) > and she is still getting sick not as bad but it is still there. she will > have the button put in Nov. 3. I remember that on one the post a while back > that the discussion was on SSI Alyssa has a hearing on Nov 9 and I wanted to > know if any one had any idea about what to say and what not to say. thanks on > that note. and does anyone have any suggestions on how to handle the fact > that I have a 3 yr hooked up all the time and she can't go play? we are at 31 > cc a hour and I can't let her off. I have some toys in the living room and > this is just not working. She gets mad I get mad and so on. any one last > thought has any of the kids had their hearing damaged from the prednisone? > The ped thinks Alyssa has been and we haven't done any testing yet. one thing > at a time. what can we expect? thanks REMEMBER I HAVE ALL THAT CRITICARE AND > NEED SOMETHING TO DO WITH IT. Tina mom to Alyssa 3 EE, EG, and seems to be > allergic to every thing. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 1999 Report Share Posted October 27, 1999 Tina, what type of pump does she have? My son is 26 months old & on 24 hour j-tube feeds. He has been tube fed since he was five months old. We have a Zevex entralite pump & love it. He carries the little backpack around w/ him. If you want I'll get the 800# for you. Rhonda, mom to 2, no eos, but gerd, food allergies, sensory integration & gastric duodenal dysmotility [eosinophilic gastroenteritis] Re: update on Alyssa >From: Ssrams@... > >Hello guys, this is Tina mom to Alyssa and I wanted to give an update. Well >she got the g-tube 21\2 wks ago and things had gotten better then she had a >reaction to the formula and they changed it to peptimen jr.(by the way does >any one need any criticare? I have about 7 cases of it left. let me know.) >and she is still getting sick not as bad but it is still there. she will >have the button put in Nov. 3. I remember that on one the post a while back >that the discussion was on SSI Alyssa has a hearing on Nov 9 and I wanted to >know if any one had any idea about what to say and what not to say. thanks on >that note. and does anyone have any suggestions on how to handle the fact >that I have a 3 yr hooked up all the time and she can't go play? we are at 31 >cc a hour and I can't let her off. I have some toys in the living room and >this is just not working. She gets mad I get mad and so on. any one last >thought has any of the kids had their hearing damaged from the prednisone? >The ped thinks Alyssa has been and we haven't done any testing yet. one thing >at a time. what can we expect? thanks REMEMBER I HAVE ALL THAT CRITICARE AND >NEED SOMETHING TO DO WITH IT. Tina mom to Alyssa 3 EE, EG, and seems to be >allergic to every thing. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 1999 Report Share Posted October 27, 1999 Cathy, did not have to have a hearing for his SSI. He was approved the first time. What I did have to describe to them was a " normal " day for him consisted of.. If you can bring her to the hearing hooked up to her feeding pump, I would definitely do that as well as bring all her other equipment to really bring home the point. That might be going overboard, but I've been called the " squeaky wheel " before. My doc told me that the sqeaky wheel always gets the oil first. Just my two cents.... Rhonda, mom to 2, & Haven 5 Re: [eosinophilic gastroenteritis] Re: update on Alyssa >From: Dcjatben@... > >In a message dated 10/27/99 3:58:11 PM Pacific Daylight Time, Ssrams@... >writes: > ><< I remember that on one the post a while back > that the discussion was on SSI Alyssa has a hearing on Nov 9 and I wanted to > know if any one had any idea about what to say and what not to say. >> > > I would bring her hooked up to her feeding machine if possible, if not then >bring photos. > > Cathy > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 1999 Report Share Posted October 28, 1999 The pump we have is on a big IV pole we have a portable pole but we can't get approved for the small portable pump. considering she has one and the small is a not a necessitay. beats me. we can't afford one because the pump is $2400.00 and the supplies are 450.00 a month. we thought about taking a loan out to get it. By the way Alyssa tube is bleeding a little and looks crusty I clean it every day but the doc said no infection what do I do? and on a lower note he wants to send Alyssa to a big Ped hospital in Houston to do more testing he doesn't think That all this is from EG seeming that she is still getting sick on formula. have any one gone though this? do you guys think it is possible it could be more complicated then this? any thoughts ? do the other kids get sick just being on the formula? Tina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 1999 Report Share Posted October 28, 1999 Tina, I dont know anything about SSI. Cody is 100% TPN dependent and we still dont qualify (?). I was really upset by your comment that she couldn't play because she was hooked up. I'll assume that she doesn't have a Revex pump? This pump is very small, very lightweight, has no drip chamber and can run UPSIDE DOWN even. When Cody was on 24-hour feeds, he wore his pump everywhere and it didn't slow him down a bit. This pump is probably more important to her well being than anything else and I'd fight for it if I were you. Steph. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 1999 Report Share Posted October 28, 1999 Can you get Medicaid on income? Or a waiver? Dawn-KS, mommy to Dakota, 7, former 34 weeker and aka BJ, 4, former 32 weeker, (eosinophilic gastroenteritis, Nissen, asthma, reflux), and mommy to Mackenzie Marie (due December 24) Re: [eosinophilic gastroenteritis] Re: update on Alyssa > From: Ssrams@... > > The pump we have is on a big IV pole we have a portable pole but we can't get > approved for the small portable pump. considering she has one and the small > is a not a necessitay. beats me. we can't afford one because the pump is > $2400.00 and the supplies are 450.00 a month. we thought about taking a loan > out to get it. By the way Alyssa tube is bleeding a little and looks crusty > I clean it every day but the doc said no infection what do I do? and on a > lower note he wants to send Alyssa to a big Ped hospital in Houston to do > more testing he doesn't think That all this is from EG seeming that she is > still getting sick on formula. have any one gone though this? do you guys > think it is possible it could be more complicated then this? any thoughts ? > do the other kids get sick just being on the formula? Tina > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 1999 Report Share Posted October 28, 1999 Tina -- It could be the formula. There are several different " elemental " formulas and some kids dont agree with a particular one. You should definitely fight the pump issue. I assume your daughter is " normal " mobile-wise and development-wise. In this case, it is vital to a child's development that their mobility not be hampered. Any pediatrician will attest to this and the insurance company will have a hard time fighting a doc's note specifying the necessity of this type of pump. Several of us have gone through this and the letters work every time. Steph Re: [eosinophilic gastroenteritis] Re: update on Alyssa The pump we have is on a big IV pole we have a portable pole but we can't get approved for the small portable pump. considering she has one and the small is a not a necessitay. beats me. we can't afford one because the pump is $2400.00 and the supplies are 450.00 a month. we thought about taking a loan out to get it. By the way Alyssa tube is bleeding a little and looks crusty I clean it every day but the doc said no infection what do I do? and on a lower note he wants to send Alyssa to a big Ped hospital in Houston to do more testing he doesn't think That all this is from EG seeming that she is still getting sick on formula. have any one gone though this? do you guys think it is possible it could be more complicated then this? any thoughts ? do the other kids get sick just being on the formula? Tina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 1999 Report Share Posted October 28, 1999 we have medicaid but they wont approve for the small pump that is like a back pack reason being that it can not be used 24 hours a day. and the pump that we have is stable for 24 hours. do you know a way around that? Tina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 1999 Report Share Posted October 28, 1999 Steph, how do we do this? Alyssa is on medicaid. Help, Tina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 1999 Report Share Posted October 28, 1999 In a message dated 10/28/99 5:52:51 PM Central Daylight Time, JSTKID@... writes: Rhonda << .. Also how old is she.... Alyssa is 3 and 1/2 About the tube bleeding, is the balloon still inflated properly, I have no idea I guess it is it isn't leaking a lot there is some seepage but not to much. Is Alyssa's tube a mic-key tube or a foley catheter type tube. it is a catheter type next wk she has the button put in. Could you get the numbers for me I would like to talk to them it can't hurt. Thanks Tina , dysmotility, & sensory integration disoder, & Haven 5 -----Original Message----- To: eosinophilic gastroenteritis (AT) onelist (DOT) com eosinophilic gastroenteritis (AT) onelist (DOT) com> Date: Thursday, October 28, 1999 9:37 AM >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 1999 Report Share Posted October 28, 1999 This is Tina again and we spent the afternoon in the dr. office again Alyssa had a lot of lab work and urerine test done appartly there were some problems with some test they took last month, okay I simply lost it today, I have been telling Alyssa that she was going to get better after she had the tube in, well she's not and she said to me as they held herdown Momma you said I was gonna be better you lied to me, you lied to me. she is only three what am I supposed to tell her? I don't even know what to say to myself. I too thought things were going to be 100% better I feel let down and now I have let her down too. I feel like my world is falling a part and I don't know how to control this rage. It is simple not fair, she is supposed to go back in the hospital Sunday and she had aready bought a costume for halloween how am I going to tell her that is out too? she has been looking forward to this for months in fact before she had the tube put in we used this to brightn her up. now what? I know I shoud be happy that is alive and other wise a normal kid but this is getting to be to much and I don't have a clue to handle this. any advice?Tina mom to Alyssa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 1999 Report Share Posted October 28, 1999 Alyssa gets home health service I am not sure how many prn visits she gets I know that when she had the gtube put in there were different orders. I guess that we have a case manager for medicaid what do I do? try to find out who this person is and explain to them what she goes through? or do I have the home health nurse do it? please advice. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 1999 Report Share Posted October 28, 1999 I would get the pediatrician & the Gi doc & surgeon to write letters as to why the pump is important in her development & that without it she will be further delayed costing the insurance company more $$$ in the long run with physical and occupational therapy. Also how old is she.... The Zevex pump is the only ambulatory pump approved for children one & under even premies (spelling). I'm not sure about the Kangaroo pump, but when I fought the insurance company for 's pump. That was the deciding factor that the home health agency sent me a pump not approved for infants. Just a thought... About the tube bleeding, is the balloon still inflated properly, When 's starts getting loose, then I know that the balloon is leaking or getting ready to go. also wears a hollister anchor on his tube. Is Alyssa's tube a mic-key tube or a foley catheter type tube. 's is the foley catheter type as he is fed in his jejunum. Sorry I'm rambling, but Zevex has a program where you can try out the pump for 2 weeks. It might be worth contacting them & getting the literature on which pump is approved & asking them to help you fight for it. Just my 2 cents worth... Rhonda, mom to , 2, no eos or eg, but food allergies, dysmotility, & sensory integration disoder, & Haven 5 Re: [eosinophilic gastroenteritis] Re: update on Alyssa >From: Ssrams@... > >The pump we have is on a big IV pole we have a portable pole but we can't get >approved for the small portable pump. considering she has one and the small >is a not a necessitay. beats me. we can't afford one because the pump is >$2400.00 and the supplies are 450.00 a month. we thought about taking a loan >out to get it. By the way Alyssa tube is bleeding a little and looks crusty >I clean it every day but the doc said no infection what do I do? and on a >lower note he wants to send Alyssa to a big Ped hospital in Houston to do >more testing he doesn't think That all this is from EG seeming that she is >still getting sick on formula. have any one gone though this? do you guys >think it is possible it could be more complicated then this? any thoughts ? >do the other kids get sick just being on the formula? Tina > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 1999 Report Share Posted October 28, 1999 Dear Tina, I feel so bad for all of you. Wish I had some answers for you. I do have a couple of suggestions on how to make her Halloween come true. I don't know what area you are in but here a lot of churches will be having Halloween celebrations on Saturday night. Your Local paper might have a list. If you don't find any you could contact the Mormon church in your area. The one here does what they call " trunk or treat " and members line up and decorate their cars, then the kids trick or treat car to car. They would welcome non members, so that would not be a problem. (I know they don't allow masks, but face paint is okay.) If none of those work you might ask your friends and neighbors if you could bring your kids around on Saturday instead of Sunday. I bet they would be happy to oblige. I would also let her wear her costume to the hospital.. You might want to call and find out if the hospital is doing anything special for the kids that night. Right now she is probably feeling let down and so are you, but I think you should tell her the truth, that you did believe this would make her better and you are doing the best you can to help her get better. It doesn't sound like much and may not comfort her now but she will remember when she is older that you were trying hard for her. I am sending you both big hugs and lots of good wishes. JUDY (ADULT GE) Re: [eosinophilic gastroenteritis] Re: update on Alyssa > From: Ssrams@... > > This is Tina again and we spent the afternoon in the dr. office again Alyssa > had a lot of lab work and urerine test done appartly there were some > problems with some test they took last month, okay I simply lost it today, I > have been telling Alyssa that she was going to get better after she had the > tube in, well she's not and she said to me as they held herdown Momma you > said I was gonna be better you lied to me, you lied to me. she is only three > what am I supposed to tell her? I don't even know what to say to myself. I > too thought things were going to be 100% better I feel let down and now I > have let her down too. I feel like my world is falling a part and I don't > know how to control this rage. It is simple not fair, she is supposed to go > back in the hospital Sunday and she had aready bought a costume for halloween > how am I going to tell her that is out too? she has been looking forward to > this for months in fact before she had the tube put in we used this to > brightn her up. now what? I know I shoud be happy that is alive and other > wise a normal kid but this is getting to be to much and I don't have a clue > to handle this. any advice?Tina mom to Alyssa > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 1999 Report Share Posted October 28, 1999 Try getting a case manager with Medicaid. Do you get nursing services through Medicaid? We did as long as BJ was tube fed. They won't tell you anything if you don't specifically ask for it. Dawn-KS, mommy to Dakota, 7, former 34 weeker and aka BJ, 4, former 32 weeker, (eosinophilic gastroenteritis, Nissen, asthma, reflux), and mommy to Mackenzie Marie (due December 24) Re: [eosinophilic gastroenteritis] Re: update on Alyssa > From: Ssrams@... > > we have medicaid but they wont approve for the small pump that is like a back > pack reason being that it can not be used 24 hours a day. and the pump that > we have is stable for 24 hours. do you know a way around that? Tina > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 1999 Report Share Posted October 28, 1999 BJ has spent 2 out of 4 Halloweens in the hospital and the hospital has always had really cool parties for Halloween. See if the hospital is having one. Dawn-KS, mommy to Dakota, 7, former 34 weeker and aka BJ, 4, former 32 weeker, (eosinophilic gastroenteritis, Nissen, asthma, reflux), and mommy to Mackenzie Marie (due December 24) Re: [eosinophilic gastroenteritis] Re: update on Alyssa > From: Ssrams@... > > This is Tina again and we spent the afternoon in the dr. office again Alyssa > had a lot of lab work and urerine test done appartly there were some > problems with some test they took last month, okay I simply lost it today, I > have been telling Alyssa that she was going to get better after she had the > tube in, well she's not and she said to me as they held herdown Momma you > said I was gonna be better you lied to me, you lied to me. she is only three > what am I supposed to tell her? I don't even know what to say to myself. I > too thought things were going to be 100% better I feel let down and now I > have let her down too. I feel like my world is falling a part and I don't > know how to control this rage. It is simple not fair, she is supposed to go > back in the hospital Sunday and she had aready bought a costume for halloween > how am I going to tell her that is out too? she has been looking forward to > this for months in fact before she had the tube put in we used this to > brightn her up. now what? I know I shoud be happy that is alive and other > wise a normal kid but this is getting to be to much and I don't have a clue > to handle this. any advice?Tina mom to Alyssa > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 1999 Report Share Posted October 28, 1999 Also, you might ask if they would wait till late Sunday night or Monday morning. 24 hours is really not going to make that much difference. Dawn-KS, mommy to Dakota, 7, former 34 weeker and aka BJ, 4, former 32 weeker, (eosinophilic gastroenteritis, Nissen, asthma, reflux), and mommy to Mackenzie Marie (due December 24) Re: [eosinophilic gastroenteritis] Re: update on Alyssa > > > Tina- > The malls around here have the kids trick or treat on Saturday night, so > they can still go out in the neighborhood Sunday. There should be a list in > your papers somewhere of happenings for the weekend in the different areas. > Good Luck.Phyllis--mom to > > AJ (12/22/95) EG, GERD, Asthma, Allergies, speech delay and hearing loss > Remi (8/3/92) Spina Bifida, LATEX, peanuts, shellfish, & nut allergies > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 1999 Report Share Posted October 28, 1999 Tina- The malls around here have the kids trick or treat on Saturday night, so they can still go out in the neighborhood Sunday. There should be a list in your papers somewhere of happenings for the weekend in the different areas. Good Luck.Phyllis--mom to AJ (12/22/95) EG, GERD, Asthma, Allergies, speech delay and hearing loss Remi (8/3/92) Spina Bifida, LATEX, peanuts, shellfish, & nut allergies Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 1999 Report Share Posted October 28, 1999 tina, The website for Zevex is http://www.zevex.com Steph Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 1999 Report Share Posted October 28, 1999 Tina, the Zevex is the pump that is in the backpack. It has a 24 hour battery that only has to be charged for 4-5 hours to keep a full days charge. We plug 's pump in overnight each night & it runs all day until he goes to bed again that night. It comes with a pole clamp that can be used in any position. I would definitely fight for this one. If the pump you have is the Ross Companion then it only has an 8 hour battery & it has to be charged for lots longer & if you don't run the battery completely down then the battery will get a memory. The Zevex battery does not have a memory. I would bring up all these points w/ the insurance company & send a picture w/ your daughter trying to play to the suit behind the desk that is only looking at the numbers & not your daughter's well-being. Sorry to sound so harsh, I just get so tired of having to fight the system. Rhonda, mom to 2, & Haven 5 Re: [eosinophilic gastroenteritis] Re: update on Alyssa >From: Ssrams@... > >we have medicaid but they wont approve for the small pump that is like a back >pack reason being that it can not be used 24 hours a day. and the pump that >we have is stable for 24 hours. do you know a way around that? Tina > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 1999 Report Share Posted October 28, 1999 Tina, the company's full name is Zevex Incorporated. Their address is 4314 South 670 West, Salt Lake City, UT 84123 Their toll free # 1-. Their fax # is . The full name of the pump is EnteraLite Ambulatory Enteral Feeding Pump. is also on medicaid. We are in Oklahoma. He has been tube fed since he was 5 months old. The state recently bought the pump for him. Yea! I will try to help in any way I can. Just let me know. Rhonda, mom to 2, & Haven 5 Re: [eosinophilic gastroenteritis] Re: update on Alyssa >From: Ssrams@... > >In a message dated 10/28/99 5:52:51 PM Central Daylight Time, >JSTKID@... writes: >Rhonda ><< >. Also how old is she.... Alyssa is 3 and 1/2 > > About the tube bleeding, is the balloon still inflated properly, I have no >idea I guess it is it isn't leaking a lot there is some seepage but not to >much. > Is Alyssa's tube a mic-key tube or a foley catheter type tube. it is a >catheter type next wk she has the button put in. >Could you get the numbers for me I would like to talk to them it can't hurt. >Thanks Tina > , > dysmotility, & sensory integration disoder, & Haven 5 > -----Original Message----- > > To: eosinophilic gastroenteritis (AT) onelist (DOT) com eosinophilic gastroenteritis (AT) onelist (DOT) com> > Date: Thursday, October 28, 1999 9:37 AM >> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 1999 Report Share Posted October 28, 1999 Tina, bless your heart & Alyssa's. What about letting her wear her costume to the hospital on Sunday? You could tell her that the nurses want her to give them a Halloween parade. It's just a thought... Maybe the group can come up w/ more creative ideas than me. LOL As far as your rage goes.... try to get some time by yourself even it is just to drive around the block w/ the radio booming loud & scream to the music. I know it sound strange, but it really releases the anger. There are days when Haven & I have untangled the tubing for the 100th time & dealt w/ several alarms that we both count to 10 & then scream, then laugh, laughs right along w/ us. Tina, as far as Alyssa telling you that you lied to her, ouch that is a tough one. Just try to reassure her & let her know that you are doing your best & that sometimes it might take a little bit for it to get better. You are doing the best you can for your child & that is the most important thing. Give her lots of hugs & kisses & let her know that it is ok for her to be upset too... What about going out Saturday night for trick or treat? I'm in Okla. & we are doing our Halloween on Saturday. Hope I have helped even a little, Rhonda Re: [eosinophilic gastroenteritis] Re: update on Alyssa >From: Ssrams@... > >This is Tina again and we spent the afternoon in the dr. office again Alyssa >had a lot of lab work and urerine test done appartly there were some >problems with some test they took last month, okay I simply lost it today, I >have been telling Alyssa that she was going to get better after she had the >tube in, well she's not and she said to me as they held herdown Momma you >said I was gonna be better you lied to me, you lied to me. she is only three >what am I supposed to tell her? I don't even know what to say to myself. I >too thought things were going to be 100% better I feel let down and now I >have let her down too. I feel like my world is falling a part and I don't >know how to control this rage. It is simple not fair, she is supposed to go >back in the hospital Sunday and she had aready bought a costume for halloween >how am I going to tell her that is out too? she has been looking forward to >this for months in fact before she had the tube put in we used this to >brightn her up. now what? I know I shoud be happy that is alive and other >wise a normal kid but this is getting to be to much and I don't have a clue >to handle this. any advice?Tina mom to Alyssa > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 1999 Report Share Posted October 28, 1999 Tina, what about videotaping her during the day & w/ her activities? I would also have the home health document it. They might not want to get the pump if it is not what is in their stock, but if medicaid tells them to then they have to. Re: [eosinophilic gastroenteritis] Re: update on Alyssa >From: Ssrams@... > >Alyssa gets home health service I am not sure how many prn visits she gets I >know that when she had the gtube put in there were different orders. I guess >that we have a case manager for medicaid what do I do? try to find out who >this person is and explain to them what she goes through? or do I have the >home health nurse do it? please advice. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 1999 Report Share Posted October 28, 1999 I would do it myself. You have more sympathy for what your daughter goes through. I will call and talk nice and if that doesn't work, start raising HELL. She should be able to be mobile. Dawn-KS, mommy to Dakota, 7, former 34 weeker and aka BJ, 4, former 32 weeker, (eosinophilic gastroenteritis, Nissen, asthma, reflux), and mommy to Mackenzie Marie (due December 24) Re: [eosinophilic gastroenteritis] Re: update on Alyssa > From: Ssrams@... > > Alyssa gets home health service I am not sure how many prn visits she gets I > know that when she had the gtube put in there were different orders. I guess > that we have a case manager for medicaid what do I do? try to find out who > this person is and explain to them what she goes through? or do I have the > home health nurse do it? please advice. > > > Quote Link to comment Share on other sites More sharing options...
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