Re: Betty -- Infomercial??

[Guest guest]

What do we need to do to get an Infomercial posted, what do they want - a

story, lead in ad, or maybe a data sheet? Mel in SLC

BETTY WELLS wrote:

> From: BBWELLS@... (BETTY WELLS)

>

> Hi Everyone:

>

> I sent the information on my usband who passd away De. 5,1998, diagnosed

> 1ith CJD, 10 days prior to death. No autopsy.

>

> I have enjoyed reading about all that you folks are doing to make people

> aware of the disease.

>

> I work with television on a very small sacale, but I do have some

> knowledge that may be helpful to you. I " m sure each of you are familiar

> with an Infomercial. With an infomercial on CJD manythousands of people

> can be reached at a ver minimal cost.

>

> If there i anyone who would like more information, please let me know.

> I will be glad to give you more details and I will help all that I can.

> It is totally awesome the power of television. This can surely stir up

> a lot of bee's in the HIVE.

>

> Thanks for being there. Let's turn our negative into

> POSITIVE,

>

> Betty Wells

>

> ------------------------------------------------------------------------

>

[Guest guest]

Mel,

" Infomercials " are paid advertising of approximately 1/2 hour in length.

Remember the " spray-on hair " ? That was a classic infomercial.

I don't think we need to pay to get publicity at this point. Such things as

Letters to the Editor and what we have been doing so far will continue to

increase visibility at not cost to everyone.

Maybe someone will write their family's story and submit it to Reader's Digest

or Good Housekeeping or any one of a number of magazines that accept

contributions.

Please let's not go down the " infomercial " path. We would need a professional

director, set, writers and lots of $$$$. Then you pay for each airing and

more for select time periods--that's why most of them are Sunday morning or

late at night which is also when people are most vulnerable with their credit

cards (how about those Ginsu Knives for only $19.95 plus shipping and handling

($6.95). They are very profitable for RONCO Appliances such as the potato

peeler, dehydrator (to make " turkey jerky or beef jerky " ) or the Vegematic

(remember the Vegematic--it dices, slices and makes French Fries and was the

classic infomercial).

Additionally, infomercials have little credibility because they are paid

advertising. Having a news organization or magazine with a piece on CJD is

much more powerful.

Hope everyone understands that I appreciate this unique suggestion, but feel

that it is not appropriate for us. Keep on thinking out the of box as we

progress--and we are progressing!

Vicki