Re: Education about 14-3-3 Spinal Fluid Test Can Increase Numb...

[Guest guest]

Gloria,

Thanks and tell them to feel free to make other people aware of it. If any

want detailed information on CJD I'd be happy to provide it.

Debbie

<<

From: GlowUSA@...

I am printing this and will bring it to a Rabbi of a temple not far from me

and will (now that I'm writing and thinking) will bring this to the Jewish

Home for the Aged klhere in Reseda... I haven't ever eaten " tongue " due to

the name as a child and haven't eaten meat for years and years, but I do

believe it is called tongue but is not the tongue of an animal but a piece of

meat like a roast. I kwill find out though.

Gloria >>

[Guest guest]

I stand corrected! Tongue is tongue. Yuk! The Rabbi will call me as he's

off today. I left it with the secratary and talked and talked. Then I went

to a senior day treatment center and gave the paper to one of the directers

and talked and talked!

Monday I will go to the home for the aged.

Gloria

[Guest guest]

I just wrote you but don't think I sent it. I found out that tounge is

tongue is tongue!

Yuk!!!! The rabbi is to call me. I also went to a day treatment center for

seniors and spoke to the director and talked and talked. She had heard little

of cjd!

I'll hit the Jewish Home for the Aged Monday.

Gloria

[Guest guest]

In a message dated 10/23/98 2:55:06 PM Central Daylight Time, GlowUSA@...

writes:

<< I am printing this and will bring it to a Rabbi of a temple not far from me

and will (now that I'm writing and thinking) will bring this to the Jewish

Home for the Aged klhere in Reseda... I haven't ever eaten " tongue " due to

the name as a child and haven't eaten meat for years and years, but I do

believe it is called tongue but is not the tongue of an animal but a piece of

meat like a roast. I kwill find out though.

Gloria

>>

Gloria,

My grandmother used to cook tongue regularly when I was a little girl. (And

we're not Jewish.) It was actually a favorite of mine until I went to her

house one day when she was preparing it and saw how it looked before she cut

it up. It really was the great big tongue of a cow - awful! After seeing

that I never ate it again. But take my word for it, it really is the cow's

tongue. Unfortunately, this doesn't provide a clue to my mother-in-law's CJD.

We don't know if she ever ate this or not.

Yvette

[Guest guest]

The tongue being mentioned just hit a nerve in me. My mom used to prepare it

on a regular basis. It was very easy to make, boil it in water and its done.

She was the worst cook in the county. We all still joke about it to this day.

Needless to say when our maid was off we all ate tongue. I actually loved

it. Sorry guys and gals but put mustard on the rye bread with the tongue and

it was great. Since I have been off all meats for 5 years I now pass on that

meal. God how the hell could I ever have eaten that let alone a steak.

Carol

[Guest guest]

Vicki,

I know it is not 100% but I guess it's the best we have now short of a biopsy

which is also not 100% accurate either since you may not biopsy the affected

area. I can understand your father-in-law's hesitation after all they've been

through.

Debbie

<< Debbie,

My mother in law had the 14-3-3 Assay done by Dr. Gibbs. He told us that the

14-3-3 test was not absolute, but would help point to the diagnosis if the

clinical diagnosis fit. My mother in laws assay was negative for the

markers,

but he says that they don't know at what point in the disease the markers

appear. He wants to do another spinal tap in 4 weeks, but it was such an

ordeal (general anesthesia etc) that I doubt my father in law will allow it.

We'll have wait for autopsy. Her neurologist still believes she has CJD and

Dr. Gibbs agrees.

Vicki >>