What are our goals?

[Guest guest]

I am sitting here, ready to explode with questions about the dissension going

on around us within the group. I have read and re read the emails of the day

in question, and I cannot for the life of me find a reason for the dissension

displayed - for all to view.

We are all adults, we all have been through a great deal of pain, and are

still in the healing process - most of us are at any rate.

To insult another is the epitome of lack of self-control, and the height of

insult to all attempting to receive comfort from a group proclaiming that is

their motive for existence. Public humiliation, in the guise of an opinion,

in my opinion has no place in a support group.

I thought we were all working for the same things: help during the grieving

process, public awareness, and hopefully a cure for the horrid disease that

kills those whom we love. I hope this is still the goal for CJD Voice. It

would be so terrible for CJD Voice to gain the reputation of being an " attack

dog " on members, especially when one is actually attempting to help others.

My only reason for being associated with CJD Voice is to help in building

public awareness RE: to HELP in getting more attention to this disease.

If the CJD Faces project or the CJD Watch project in any way has contributed

to the dissension, I will unsubscribe to CJD Voice in a flat second, as I do

not want to be the cause of any problems. HOWEVER, I will continue to work

on those projects, as I believe they are great forums for public awareness and

more research.

Regards,

Barbara Mathews