Re: Digest Number 248

[Guest guest]

Does anyone have a way to help your child deal with the pain assoicated with

ee/eg? We are desperate. (12 Yrs. old - ee/eg) is on Lortab elixir

(Vicodin syrup-750 mg of codeine) at least 3 to 4 times a day with minimal

relief. He is allergic to morphine and demerol. He cries constantly. Thank

you.

Patty

[Guest guest]

Dear ,

As I understand you continue read the RLS digest, I am sending this to you

through RLS for all other RLS readers to read. I will report you to the AMA

for an unsolicited harassing and extremely assumptive letter to me if you

continue to be so bold. I did reply privately yesterday, but it appears the

following has occurred:

---- The following addresses had transient non-fatal errors -----

drmead@...>

----- Transcript of session follows -----

drmead@...>... Deferred: Connection refused by lig.bellsouth.net.

Warning: message still undelivered after 4 hours

Will keep trying until message is 5 days old

In a message dated 5/4/99 11:10:30 AM Eastern Daylight Time,

drmead@... writes:

<< drmead@... >>

Dear ,

I am not sure why you sent me this email. Would you please let me know what

it was you were trying to " say. " Thanks.

a

Subj: Re: RLS

Date: 5/4/99

To: drmead@...

In a message dated 5/4/99 11:10:30 AM Eastern Daylight Time,

drmead@... writes:

<< drmead@... >>

Dear ,

I again read your letter. You appear to assume that I am " grasping for

straws on the Internet. " What has given you that idea?

a K. MSW LICSW

------------------------------------------------------------------------------

--------------------------

Subj: RLS

Date: 5/4/99 11:10:30 AM Eastern Daylight Time

From: drmead@... ( Meadows)

To: KAHAN1234@...

............To know more about restless legs, read the book " In Dread of

Night " .

Stop grasping for straws on the internet. It is necessary to have a

basic knowledge of muscle function to understand the numerous medical

conditions and diseases with which RLS is associated.

We as an RLS group have no need to put up with this! Anyone if so inclined

can speak to their local medical association to report unethical practices

which includes email such as the above.

a

[Guest guest]

Hi all

Jeanie thanks for the info.....I will talk to my Doctor about the lung

capacity test and see what he tells me. Gretchen count me in on the

book deal....May be one way to get a lot more Doctors to listen to us.

I don't know about the rest of you but at one time I had a couple of

Doctors telling me that some of my symptoms were all in my

head......well for awhile I thought maybe I was losing my mind...come to

find out they were the ones that were just " blowing me off " . This list

has been the best thing that has happened to me since I was diagnosed

and I owe what sanity..LOL!! I have left to all of you!!

Cathy

CSCluv**

http://community.webtv.net/cat926/CATHYSCOOLCATCORNER

[Guest guest]

Hi all

Jeanie thanks for the info.....I will talk to my Doctor about the lung

capacity test and see what he tells me. Gretchen count me in on the

book deal....May be one way to get a lot more Doctors to listen to us.

I don't know about the rest of you but at one time I had a couple of

Doctors telling me that some of my symptoms were all in my

head......well for awhile I thought maybe I was losing my mind...come to

find out they were the ones that were just " blowing me off " . This list

has been the best thing that has happened to me since I was diagnosed

and I owe what sanity..LOL!! I have left to all of you!!

Cathy

CSCluv**

http://community.webtv.net/cat926/CATHYSCOOLCATCORNER

[Guest guest]

Hi all

Jeanie thanks for the info.....I will talk to my Doctor about the lung

capacity test and see what he tells me. Gretchen count me in on the

book deal....May be one way to get a lot more Doctors to listen to us.

I don't know about the rest of you but at one time I had a couple of

Doctors telling me that some of my symptoms were all in my

head......well for awhile I thought maybe I was losing my mind...come to

find out they were the ones that were just " blowing me off " . This list

has been the best thing that has happened to me since I was diagnosed

and I owe what sanity..LOL!! I have left to all of you!!

Cathy

CSCluv**

http://community.webtv.net/cat926/CATHYSCOOLCATCORNER

[Guest guest]

I feel exactly the same way! I was getting so depressed with being told I

was just lazy and uncoordinated and making up excuses. I am so grateful to

be able to 'talk' to all of you. I have learned so much and I have a much

more positive outlook on life - living with the symptoms is not the worst

part, the worst is when nobody believes you.

Thank you all!

> ----------

> From: cat926@...

> Reply To: CMTUS (AT) e

> Sent: Sunday, April 16, 2000 3:43 PM

> To: CMTUS (AT) e

> Subject: Re: Digest Number 248

>

> Hi all

> Jeanie thanks for the info.....I will talk to my Doctor about the lung

> capacity test and see what he tells me. Gretchen count me in on the

> book deal....May be one way to get a lot more Doctors to listen to us.

> I don't know about the rest of you but at one time I had a couple of

> Doctors telling me that some of my symptoms were all in my

> head......well for awhile I thought maybe I was losing my mind...come to

> find out they were the ones that were just " blowing me off " . This list

> has been the best thing that has happened to me since I was diagnosed

> and I owe what sanity..LOL!! I have left to all of you!!

> Cathy

>

>

>

> CSCluv**

>

>

>

>

>

> http://community.webtv.net/cat926/CATHYSCOOLCATCORNER

>

>

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