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Re: CONGRESSMAN

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Pat,

I would be very willing to testify before Congress; however, affording the

trip from Washington state is an obstacle. I would be willing to produce a

video tape telling my Mother's story. Not as effective but something to

think about. Please let me know how I can help.

Sincerely,

Sherri

>From: APE826@...

>Reply-To: cjdvoice (AT) onelist (DOT) com

>To: cjdvoice (AT) onelist (DOT) com

>Subject: Congressman

>Date: Tue, 4 May 1999 12:05:52 EDT

>

>From: APE826@...

>

>I contacted my new congressman last week via letter and email and received

>a

>call today from his District Director. I will meet with him next week with

>a

>list of directives on what I want him to do.

>

>I am going to tell him to support the legal petitions.

>To increase the funding to the NIH Lab.

>To support H.R. 306, S.543 and H.R. 1144

>I am going to propose a " centralized " area where ALL CJD statistics are

>sent

>and to follow up with surveillance.

>I am going to request that he push for a hearing before the " Committee On

>Government Reform & Oversight " for family members to appear and tell their

>stories.

>

>Would anybody be interested in testifying before Congress in Washington, if

>this hearing is held?

>

>If you have any other suggestions, please let me know.................Pat

>

>

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>If you have any questions, problems, concerns, etc... please contact Liz at

>LArmstr853@..., Pat at Ape826@..., Dolly at DBC006@... or

>Beverly G at Bevalso@....

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  • 2 weeks later...
Guest guest

,

Here is the address I have. I wrote to him August 1998 concerning holding a

hearing -- didn't get a reply. The suggestion was that if a number of people

write to him, his committee might consider it.

Shays, Chairman

Subcommittee on Human Resources

Committee on Government Reform and Oversight

2157 Rayburn House Office Building - Room B-372

Washington, DC 20515-6143

His office address is:

The Honorable Shays

1502 Longworth Building

Washington, D.C. 20515-0704

..............Pat

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