Medical records

[Guest guest]

Hi Everyone:

I DID get my husbands records...finally...from the local hospital.

My husband did have a head injury 2 years ago. But there was evidence

dating back to 1994 of CJD symptoms. One doctor mad the statement that

he could not understand what was wrong with Mr. Wells?

But it was documented by 4 different doctors that they were in agreement

that it was CJD. And that they had ruled out everything else. So I

guess we will see where we go from here.

The Primary doctor who signed the death certificate had his copies

waiting on his Fax mach9ne when he arrived at his office this morning.

One thing for sure you sure do know what patience is by the time you get

through with all these peoplw. But thank the good Lord, I do have the

records and I can answer questions a little better than I could.

Oh! yes before I forget......One doctor wrote in the records that I had

given them information that I got off the internet, which was realy

great and it " helped " to understqand more about the disease. It does

work!!!! Not all doctors will put it in writing, but this one did.

The " blood spill " was not documented, but I do have the date that he

received 3 units of blood. He only received that many...one...time.

Thanks for all your help.

Love,

Betty

[Guest guest]

In a message dated 4/22/02 9:09:44 AM US Eastern Standard Time,

esquare726@... writes:

> Perhaps it's my background as a former executive or my anal retentive

> personality, but I maintain files of my medical records. <<

Ellen,

Can you talk more about this. I am an RN and I even have difficulty getting

copies of my records. Like you I try to keep a copy of every blood sugar

stick, pill given, to major surgical reports and consultations. When I tell

the staff that I would like a " cc, " a carbon copy of the report sent to me

they get weird, defensive, etc. Yes, we all know we have a right to the

record, but what can we do to help the staff feel more comfortable about it.

Do we have to pay to get copies?

Thanks,

Karyn E. , RN

Founder / President

Pancreatitis Association Intl.

KarynWms@.../