Guest guest Posted March 9, 2000 Report Share Posted March 9, 2000 Hi everyone - this is Beth - adult with EG... I was just wondering how any of you deal with the psychological affects of EG, or help your kids deal with it...any advice, tips, tricks to get through depressing times... I'm down to only being able to eat potatoes without getting very sick...i have an appoint with a new GI on Monday (I changed jobs and had to wait for new insurance) and I'm assuming he'll put me back on prednisone - the only drug that's ever helped me. I'm just feeling so depressed though...choosing between a life of potatoes and a life of prednisone just doesn't seem like much of a choice...sometimes I just want to scream or hit walls or something i get so angry and frustrated... Anyway - I'm assuming you all can understand how I feel. My family and friends can't - i know they try, but they can't... Any help for mentally dealing with this would be so appreciated... thank you - Beth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2000 Report Share Posted March 9, 2000 This is a tough one Beth and I'M RIGHT THERE WITH YOU I'm back on prednisone just so I can tolerate the FORMULA. WHAT THE HECK IS THAT. I can stand the disease, but not the 'roids. The thing that gets me on an even-keel is looking around for those that are worse off. There are people with Crohn's and some forms of arthritis, some asthmatics who NEVER get off high dose prednisone, as well as organ transplant recipients. Some of these people have to take it just to live whatever life they have left. When I start thinking about that, I get a little more accepting of what I hope is the short term prednisone use. I really try hard not to concentrate on all the people who can 'eat " and be " normal " , and instead think of how fortunate I am to be better than those who are much worse off. I also keep telling myself that things will get better. It doesnt always work. It's those times that I allow myself to SCREAM, CRY, POUND A PILLOW or take a really brisk walk. Treating myself to a movie, or a new sweater sometimes helps. Sometimes just a good long bath and a good book works too. Good luck, Beth. Things WILL get better. Steph. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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