wanting some info

[Guest guest]

I would just like to know a little about eg.

My nephew was diagnosed with this

yesterday.(9/16/99), after several weeks

of testing. It all started with swelling in

the feet and legs, they kept telling he was

loosing protein somewhere in the gi tract.

cat scans, upper gi, and several tests showed

nothing, this past monday they did the light

down into the stomach and found this cluster

of grapes was how it was descrebed to us by

the doctor, it was biopsied and the results were

in yesterday. We were just proud to know that

it was not cancer, which he thought it might have

been. They will be doing allergy test on him in the

next few weeks, then probably start him on a high

dose of prednisone (6months). Do you think this

will take care of the problem? They also told us

that his protein was being absorbed through this

cluster before it went through the digestive system

which was causing the swelling. Could you send me

a little more info on this? Is this a reoccuring problem?

[Guest guest]

Predision can be a great drug, but it has many

terrible side effects. It causes puffiness in the

face, weight gain, acne, moodiness - which in me was

pretty bad. I could be crying one minute, smiling the

next! LEts see, if hes not done growing it may stunt

his growth. it did me. It causes premature closure of

the growth plates. You will either eat alot or eat

very little. Its got some crazy stuff with it. It has

always helped me though. I have never been on it 6

mths stright. More like 2 months off and on. There

should be alot on the internet on predision and what

it does. Some people swear to never take it again, I

on the other hand will take it in a minute. Hey, I

can't get any taller!

ashley

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