Guest guest Posted September 17, 1999 Report Share Posted September 17, 1999 O.k. I'm confused. First let me say that I am totally exhausted and therefore not thinking ( my kids have been really sick all week so no sleep). If my son's inflamation is due to something other than allergies flovent won't reduce inflamation? I guess I assumed that the reason we were trying a short course of prednisone is to determine if his problem stems from allergies and therefore needed to supress the immune system since allergies are an immune response. Then we will be able to finally say " yes this is due to allergies " . How can flovent do the same thing without supressing the immune system? I understand it does reduce inflamation, but only if it is caused by allergies, or does it just reduce inflamation in general? If flovent does not supress the immune system how does it work? If my sons probs were due to gerd are you saying flovent won't reduce the inflamation? confused in california, laura Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 1999 Report Share Posted September 17, 1999 , My exact opinion as well. The immunosuppentcy IS the huge side effect of prednisone. Spencer has been on a dose of 35 mg per day and a Steroid drip on top of that. There are so many side effects. Bone decay, cataract's to name a few. The medication is from the devil. But Spencer needs it Big time! On top of TPN and A bit of Vivonex through his J tube. Has he been put on Vivonex or Neocate 1+ yet? This is what I would do have him scoped and biopsied now......go for an Ng tube, put him on either Viv or neo and start the flovent. It is so much safer. BUT like Steph said, flovent won't work on E.G. or EC. Have they made a definite diagnosis yet of his Eos's? Love, [eosinophilic gastroenteritis] flovent > > > From: garyarm@... > > Steph, > The reason we are trying prednisone instead of > flovent is so that we can rule in (or out) allergies > (or any other immune related problem). It is my > understanding that with the prednisone, his immune > system will be supressed and if he is better after > the treatment then we will know if his problem > is due to his immune system. > If we treat with flovent, doesn't that just treat > the inflamation? I don't think that would give the > information we are trying to find at this point. > > Please let me know your point of view on this issue. > Thanks, > > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 1999 Report Share Posted September 17, 1999 , FLovent and prednisone are both steroids. The only difference is prednisone treats systemically and Flovent treats topically. If the problem is EG, flovent will not make a difference. However, I was under the impression you were dealing with EE, in which case Flovent is a safe steroid alternative. Prednisone taken systemically will suppress the immune system, that is actually a side effect. Immunoglobulin status is a separate issue from eosinophilia. I suspect they are actually trying to " prove " a diagnosis of EE instead of other reasons for the inflammation. If this is the case, prednisone will give you the answer, but it is a harsh treatment option long term for EE. If FLOVENT were given and worked you would have the same answer (if it worked, you know you are dealing with EE). If FLovent were given and did not work, you would not have an answer and may have to go to prednisone anyway, but what have you lost? Nothing. Also, Flovent works in many, many kids with EE. Just my thoughts of course, more to make your mind mushy. Steph [eosinophilic gastroenteritis] flovent From: garyarm@... Steph, The reason we are trying prednisone instead of flovent is so that we can rule in (or out) allergies (or any other immune related problem). It is my understanding that with the prednisone, his immune system will be supressed and if he is better after the treatment then we will know if his problem is due to his immune system. If we treat with flovent, doesn't that just treat the inflamation? I don't think that would give the information we are trying to find at this point. Please let me know your point of view on this issue. Thanks, --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2000 Report Share Posted January 16, 2000 We tried twice both with swallowing the puffs. It did not work for us very well. There was only a slight improvement on the upper esophagus. pagemaster@... wrote: > From: pagemaster@... > > , I was just wondering: When Dan tried the flovent > did he swallow the puffs, or did you ever try it mixed > with oil? > > > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2000 Report Share Posted January 16, 2000 , There seems to be a difference in many patients using the FloVENT as opposed to FloNASE. Obviously, the aerosolized version (Flovent) was meant for hte lungs. FloNASE is the same drug (fluticasone) originally meant for the nose, but it is a liquid and you can squirt it into the back of the mouth. It is easier to control the administration and get the medicine actually down the esophagus. Tastes nasty, but it might be worth a try. Steph. Re: [eosinophilic gastroenteritis] flovent > > > >We tried twice both with swallowing the puffs. It did not work for us very >well. There was only a slight improvement on the upper esophagus. > > > >pagemaster@... wrote: > >> From: pagemaster@... >> >> , I was just wondering: When Dan tried the flovent >> did he swallow the puffs, or did you ever try it mixed >> with oil? >> >> >> >> --------------------------- Quote Link to comment Share on other sites More sharing options...
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