Online/internet service provider profiles

[Guest guest]

Dear CJD Voice members:

When I first heard of CJD from my dad's neurologists, I later went home and

searched the internet for information--that's probably what many of you did

when you got the news of CJD as a possible diagnosis for your loved one. After

reading articles for a couple of hours I was numb with pain over what I'd

read.

The next thing I did was search the AOL member profiles for " Creutzfeldt

Jakob " and " CJD " . That is how I found Beverly G. in Texas (Bev Also@...).

I contacted Beverly and she told me she'd found Liz, Pat and Dolly and the

small fledgling group which became CJD Voice. That was back in early July,

1997.

I am requesting AOL members--and others of you who have the ability to create

a profile with your online/internet service provider--to mention CJD Voice,

CJD, and/or Creutzfeldt Jakob Disease in your profile. You can do this and

still remain private. Including CJD in your profile is one way we can reach

others who are just beginning their search for information.

I know some of us already have done this. Thanks.

Don in Atlanta

LDD1222@...