Re: eye problems

[Guest guest]

Hi everyone ! I am posting again because I feel like a human being again!

My eyes have been soooo bad for the last month and a half that doing any

extra reading or writing was just too much! My ophthmologist put me on

prednisone whic he usually does not like to do for eye problems, but, he said

my eyes were the worst he has ever seen! The pain finally became unbearable

expecially in the middle of the night.

After two days on the pred I finally had a normal nights sleep!

I hope everyone has been doing well, I have had to delete most of the

messages because they just became too much!

But, I am back-----hooray!

Lillian

[Guest guest]

> I'm just wondering if anyone else has had problems with their eyes

> like this.

Hi Kathy,

At the beginning of chelation, for a few days, I had the sensation that I

have sand in my eyes. It was a very unpleasant sensation. I'm not sure it was

similar to what you describe though.

My sight improved right after that. I don't need glasses anymore.

As for eye contact... I had some kind of problem all my life... I can't

concentrate to understand what people say to me when I look in their eyes.

I've learned how to do it without doing it I mean they think I look at

them but actually I focus my eyes in some point farther... not sure how to

describe this...

Valentina

[Guest guest]

> I'm just wondering if anyone else has had problems with their eyes

> like this.

Hi Kathy,

At the beginning of chelation, for a few days, I had the sensation that I

have sand in my eyes. It was a very unpleasant sensation. I'm not sure it was

similar to what you describe though.

My sight improved right after that. I don't need glasses anymore.

As for eye contact... I had some kind of problem all my life... I can't

concentrate to understand what people say to me when I look in their eyes.

I've learned how to do it without doing it I mean they think I look at

them but actually I focus my eyes in some point farther... not sure how to

describe this...

Valentina

[Guest guest]

These are all common problems of Chronic Fatigue Syndrome patients, many of

whom have mercury poisoning. Dry eyes, eyes go in and out of focus, etc.

Just make sure whatever drops you are using don't have mercury in them

(thermisorol).

Doris

eye problems

> I'm just wondering if anyone else has had problems with their eyes

> like this. I'm not sure if it's chelation/mercury related or not. I

> have not been able to wear my contact lenses for several weeks. My

> eyes feel like I wore my lenses too long (I use extended wear) - like

> the lenses need cleaning or were too dry - except that I haven't been

> wearing them at all. When I wake up in the morning, I reach for my

> eye drops because they feel irritated, but then I realize I don't

> even have my lenses in. I've had that problem before when I wore my

> lenses too long, but it always went away in a day or two. Now they

> still sting, although they are better between rounds, I think. I

> have also had problems with not being able to see clearly - my right

> lens gets very blurry after just a few hours of wear. My optometrist

> thinks I'm imagining things. My eyes aren't visibly irritated, so I

> can't imagine going to a doctor. But I'm sick of wearing my glasses -

> they give me a headache. I have absolutely no idea why this is

> suddenly a problem. I have worn contacts for 25 years with no

> problems. I stopped wearing them this fall when I planned to have

> LASIK surgery, so I wore my glasses for a couple months. I couldn't

> have the surgery because my cornea was too thin, so I went back to

> contacts. I started noticing the blurriness, but it took awhile to

> figure out what was going on. This was before I started chelating,

> so maybe it's not related.

>

> One odd thing, though. A couple weeks ago - I couldn't tell you when

> exactly - I started noticing unusual discomfort making eye contact

> with people. It got better if I backed away. I wasn't sensitive to

> light, but it felt like people's faces were too bright to look at.

> My son (with autism) has always said that it hurt to make eye

> contact. Maybe now I understand what he means? Scary. Anyone else

> experience this?

>

> Kathy

>

[Guest guest]

Hi Valentina,

I've had some grittiness, too - " sandman " stuff, I guess. I wonder

if there is mercury coming out in the tears?

> At the beginning of chelation, for a few days, I had the sensation

that I

> have sand in my eyes. It was a very unpleasant sensation. I'm not

sure it was

> similar to what you describe though.

> My sight improved right after that. I don't need glasses anymore.

WOW! What was your vision like before chelation? Did you always

have vision problems, or do you think it developed due to mercury?

> As for eye contact... I had some kind of problem all my life... I

can't

> concentrate to understand what people say to me when I look in

their eyes.

> I've learned how to do it without doing it I mean they think I

look at

> them but actually I focus my eyes in some point farther... not sure

how to

> describe this...

Chelating is supposed to help with eye contact problems, right? Have

you noticed any improvement yet?

Kathy

[Guest guest]

Doris,

Thanks - I guess I need to look for more info on CFS.

> These are all common problems of Chronic Fatigue Syndrome patients,

many of

> whom have mercury poisoning. Dry eyes, eyes go in and out of

focus, etc.

I don't have focus problems if I am not wearing my contact lenses.

Just blurriness with the lens in. It must be a change in the tears,

or some very mild infection making the eye a little " goopy " . But I

don't notice that with my lens out. I hate to go beg a doctor to

give me an antibiotic for something you can't even see. I wish it

would go away! Maybe I AM just a nut case.

> Just make sure whatever drops you are using don't have mercury in

them

> (thermisorol).

I did check - thankfully none of my solutions have had thimerosal for

at least 7 years.

Kathy

[Guest guest]

> I'm just wondering if anyone else has had problems with their eyes

> like this. I'm not sure if it's chelation/mercury related or not.

I

> have not been able to wear my contact lenses for several weeks.

Hi Kathy,

I had " sand in my eyes " pretty much every morning during " on "

(chelation) days for the first few " rounds " of ALA. This was

also a period of time when my vision was changing. My " joke "

was that the " sand " was " mercury coming out my eyes " .

By the way, my vision improvements were in seeing things " move "

relative to each other--- I think it is a PART of 3-dimensionality.

(I knew where things were relative to each other near/far before,

but they now " move " relative to each other differently. It is

impossible for me to explain. I've tried.) This was a radical

change, over a few weeks, and seems stable and permanent (this

was in Jan/Feb of 2001.)

I did not have general eye discomfort -- just the " sand " in the

morning. I did wear contacts during that time (and still do).

Moria

[Guest guest]

> I'm just wondering if anyone else has had problems with their eyes

> like this. I'm not sure if it's chelation/mercury related or not.

Are you using an all in one contact lens solution? Those leave

digestive enzymes in the lens that eat your eye. Using some other

cleaning technique often fixes the problem.

Andy

[Guest guest]

A friend of mine with CFS has an autoimmune disease that affects her eyes,

blocks her tear ducts. She has to have those opened on occasion. Amalgam

toxicity is linked to autoimmune problems. I am spelling this wrong, but she

has Shogren's Syndrome. Someone else might be better at spelling it. SJ

[Guest guest]

I can relate to all of this stuff. My vision is bad when my blood pressure is

very low. Eating more dietary salt, using adrenal extract, licorice extract

and eating licorice will help increase the bp and perhaps get rid of the

blurry vision. Also, deltasone helps my vision, but only at a dose larger

than the one my doctor put me on. Volume loading might help with blurry

vision.

On a trial of fludrocortisone, " florinef " I saw things I never saw before

such as my kid's hair on his head, individual heads, but I became intolerant

of the stuff quickly. That approach helps increase blood volume.

I believe that we are a true bunch of peers. Going to the bathroom to empty

the bladder constantly is not normal, and when that problem goes away

(through getting mercury out) then I think the bp will become normal and the

vision thing will improve.

I too had the front teeth crowns with the " gold " on the back and I had them

redone. All this stuff is expensive. I know I look much better when I yawn.

There is nickel in them there gold crowns! Now I am nickel sensitive, but

then I also have nickel sutures in a pilonidal that probably helped create

that problem, too.

I have always had clearer vision on Xanax, too although this is certainly not

one of the motives causing folks to use benzodiazapenes.

Low blood pressure is probably the cause of blurry vision. Even getting

glasses or contacts fitted can be a nightmare because one day the vision is

one thing, the next day another. I warn the eye doctor so I have not had to

pay twice (since the first time this happened to me) and a doctor took

advantage of me coming back for a re-exam on day two. (She should have been

disciplined.....)

Anyway I think that s Hopkins ought to reconsider its tilt testing and

consider the group who have neurally mediated hypotension, to be people

contaminated by mercury. Standing still for long periods, sitting without

moving around, both will cause a fall in pb and blurry vision if you have

NMH. I had the tilt test so I do know what they were looking for, and what

the found. I have the diagnosis but cannot take the drugs. Unfortunately very

little of medicine wants to look at the mercury issue because they are

responsible for getting most of it into us. SJ

[Guest guest]

I was hoping that my vision would improve after the root canals and

metal were removed from my mouth. I'd had surface amalgam removed years

ago, but until recently I still had amalgam under crowns and I had lots

of metal crowns in my mouth. (It's surprising to take a little hand

mirror and see the reverse side of porcelain crowns on top front teeth.)

Anyway, in December everything was removed. I still have cavitations to

do, but my health took a dive after the procedures, even though I was

careful and I want to get a little stronger before cleaning the cavitations.

My vision has gotten even worse, instead of improving. My eyes blur

sometimes when I'm driving. I've had distance glasses for sometime but

never really needed them. Now I have to have them; at least they give me

security. When I eyes blur, I have the sensation that I don't know if

it's my actual eyes or my brain playing tricks on me. Someone here said

it's the brain causing the eyes to blur--which I can full relate to. I

also used to watch TV in bed and now I have to wear my glasses or watch

a blurry screen.

I've worn glasses for about 15 years for reading, and my same glasses

seem to be okay.

I hope that after I chelate my eyes will get better. I also have too

much nickel. I'd like to get new glasses, but I hate to right now

because I'm holding out with hope that my vision will improve. Also,

since I got all metal out of my mouth, I want to get non-metal glasses

as well, as recommended by holistic practitioners.

Marsha

[Guest guest]

In Chinese medicine the eyes relate to the liver and the more toxic the liver is

the worse the vision will be.

Chantal

Re: eye problems

I was hoping that my vision would improve after the root canals and

metal were removed from my mouth. I'd had surface amalgam removed years

ago, but until recently I still had amalgam under crowns and I had lots

of metal crowns in my mouth. (It's surprising to take a little hand

mirror and see the reverse side of porcelain crowns on top front teeth.)

Anyway, in December everything was removed. I still have cavitations to

do, but my health took a dive after the procedures, even though I was

careful and I want to get a little stronger before cleaning the cavitations.

My vision has gotten even worse, instead of improving. My eyes blur

sometimes when I'm driving. I've had distance glasses for sometime but

never really needed them. Now I have to have them; at least they give me

security. When I eyes blur, I have the sensation that I don't know if

it's my actual eyes or my brain playing tricks on me. Someone here said

it's the brain causing the eyes to blur--which I can full relate to. I

also used to watch TV in bed and now I have to wear my glasses or watch

a blurry screen.

I've worn glasses for about 15 years for reading, and my same glasses

seem to be okay.

I hope that after I chelate my eyes will get better. I also have too

much nickel. I'd like to get new glasses, but I hate to right now

because I'm holding out with hope that my vision will improve. Also,

since I got all metal out of my mouth, I want to get non-metal glasses

as well, as recommended by holistic practitioners.

Marsha

[Guest guest]

Chantal,

>>In Chinese medicine the eyes relate to the liver and the more toxic

the liver is the worse the vision will be.<<

I just tested positive for hepatitis, and am getting more testing done

to verify results. Your comment is interesting. Thanks.

Marsha

[Guest guest]

I have NMH but have never noticed an effect between blood pressure and my

vision. But to help your NMH symptoms I would try Catapres. I wear a patch

and it made all the difference. This is a drug that is usually used for

high blood pressure, but it regulates blood pressure and caused mine to go

up. I first heard of it with respect to CFS NMH but haven't seen much

since. But it really works. My NMH also improved from being on blood

thinners for hypercoagulation. It is possible that is really the problem,

and mercury is just a factor that increases the chance of hypercoagulation.

I have not heard anything before this about people with mercury having NMH,

or people with NMH getting cured by removing the mercury, but I will keep my

eyes out.

Doris

Re: eye problems

>

> Anyway I think that s Hopkins ought to reconsider its tilt testing and

> consider the group who have neurally mediated hypotension, to be people

> contaminated by mercury. Standing still for long periods, sitting without

> moving around, both will cause a fall in pb and blurry vision if you have

> NMH. I had the tilt test so I do know what they were looking for, and what

> the found. I have the diagnosis but cannot take the drugs. Unfortunately

very

> little of medicine wants to look at the mercury issue because they are

> responsible for getting most of it into us. SJ

[Guest guest]

Thanks everyone!

I have been using basically the same contact lens solutions for about

10 years, only changing as Alcon's product line has changed.

Currently, I am using Alcon's Opti-Free Express No Rub. I don't see

anything listed that looks like an enzyme, but maybe I should just

try another brand for awhile to see what happens.

I also use toric lenses (for astigmatism), so I went through a few

weeks of trying to figure out if the lenses were cloudy or just not

turning properly somehow. I'm still not really sure. Sometimes

blinking helps, but I can't tell why.

I looked into CFS, and I suppose I have a lot of the symptoms, but I

don't think that explains the blurry lens, unfortunately. My vision

is fine with glasses.

I guess I'll have to add liver problems to my list of things to worry

about. My vision has always been awful.

Does chelating improve vision gradually? That could be a real

challenge to keep up with.

My optometrist goes crazy over my inconsistent eye exams. Looks like

another reason to do something about my low blood pressure.

Just thinking - the doctors said I could never have LASIK surgery

because taking so much off an already thin cornea would leave my

vision erratic. I suggested that maybe the thin cornea was why I

already had erratic vision. Do you think there is hope that

correcting the blood pressure problems (chelating) would actually be

making clarity more stable by increasing the thickness of the

cornea? Maybe I can get rid of these contacts yet!

I wonder if having most of my mercury exposure through contact lens

solutions means I'm more likely to see eye problems?

BTW, , I found it - Sjogren syndrome!

Definitely looks like another mercury problem, but doesn't fit me.

Kathy

[Guest guest]

I have low blood volume and when it is bad I get very blurry eyes.

I am sure that mercury is involved in NMH.

The reason I think this is before I took the cilantro,when we were having a

storm I would feel like something pulling on my head on the left side where

I had all the numbness and it would make me very fatigued but it would

release when the weather moderated. This does not happen now but my body is

shutting down now because of the extra mercury that I dumped from my brain.

I was going to the bathroom a lot and now I do not do that.

I think that I dumped the mercury from that area where I had so much.

I am sure my organs are soaked now and I hope I can get it out.

I can relate to you being able to see things you never saw before because

this happened to me when I took the Mannatech products.

I am sure that it improved my HPA axis and that is why I had the clear

brain.

This happens when I get saline too.

I feel all these problems are definately mercury related and I do not know

if we can get enough mercury out to function the way we should again.

Time will tell.

I hope so. It may take a long time to do it.

I sure have got one wack of mercury in my body and I hope I can get it out

safely.

Re: eye problems

> I can relate to all of this stuff. My vision is bad when my blood pressure

is

> very low. Eating more dietary salt, using adrenal extract, licorice

extract

> and eating licorice will help increase the bp and perhaps get rid of the

> blurry vision. Also, deltasone helps my vision, but only at a dose larger

> than the one my doctor put me on. Volume loading might help with blurry

> vision.

>

> On a trial of fludrocortisone, " florinef " I saw things I never saw before

> such as my kid's hair on his head, individual heads, but I became

intolerant

> of the stuff quickly. That approach helps increase blood volume.

>

> I believe that we are a true bunch of peers. Going to the bathroom to

empty

> the bladder constantly is not normal, and when that problem goes away

> (through getting mercury out) then I think the bp will become normal and

the

> vision thing will improve.

>

> I too had the front teeth crowns with the " gold " on the back and I had

them

> redone. All this stuff is expensive. I know I look much better when I

yawn.

> There is nickel in them there gold crowns! Now I am nickel sensitive, but

> then I also have nickel sutures in a pilonidal that probably helped create

> that problem, too.

>

> I have always had clearer vision on Xanax, too although this is certainly

not

> one of the motives causing folks to use benzodiazapenes.

>

> Low blood pressure is probably the cause of blurry vision. Even getting

> glasses or contacts fitted can be a nightmare because one day the vision

is

> one thing, the next day another. I warn the eye doctor so I have not had

to

> pay twice (since the first time this happened to me) and a doctor took

> advantage of me coming back for a re-exam on day two. (She should have

been

> disciplined.....)

>

> Anyway I think that s Hopkins ought to reconsider its tilt testing and

> consider the group who have neurally mediated hypotension, to be people

> contaminated by mercury. Standing still for long periods, sitting without

> moving around, both will cause a fall in pb and blurry vision if you have

> NMH. I had the tilt test so I do know what they were looking for, and what

> the found. I have the diagnosis but cannot take the drugs. Unfortunately

very

> little of medicine wants to look at the mercury issue because they are

> responsible for getting most of it into us. SJ

>

>

>

[Guest guest]

> Some people cannot wear contact lenses; don't know why doctor

wouldn't have

> told you that.

Because I wore contacts for 25 years with no problems. It was only

after I stopped for those 2 months that I started having problems.

The doctor said the lenses are fine and my eye is fine. She just

thinks I've lost my mind, I guess. Maybe I have. (I'm beginning to

think this is just my punishment for thinking that I could have my

vision corrected and get rid of the contacts for good.)

The blurriness is only with my contacts in, and only the right eye.

The discomfort was for weeks after I stopped wearing them again, but

it seems to be getting better now. The erratic vision has been for

many years, at least.

I appreciate all the support!

Kathy

[Guest guest]

I think this is the thing to remember, especially for newbies. Even though

most of us have some eye involvement from the Graves', it is still a very

small percentage that develop lid lag, exopthalmus and/or diplopia. It's a

scary thing, but it's good to be in a forum like this where you can see that

others are having the same symptoms and don't necessarily progress to more

serious TED.

However, most doctors will tell you that you don't have TED, but the truth

of the matter is that these symptoms are symptoms of TED. There are varying

degrees. Doctors don't seem to want to call it TED unless you do have the

lid lag, etc. And I think that's probably a good thing. It's reassuring to

someone who has mild symptoms to be told they do not have TED. But, that

doesn't mean we don't need to do anything to help prevent the eye disease

from developing further. EFA's (Omega 3/6/9) are a good thing to use. Also,

by being on ATDs, we're suppressing the antibodies that are attacking our

eyes as well as our thyroids. Another thing is to not smoke. Cigarette

smoking greatly increases the risk of developing serious TED and it also

increase the risk of relapse for someone who has gone into remission.

Holly

eye problems

I'm certianly experiencing eye problems like blurry vision (hard to focus

at times) burning, itching and iritated. I'll get twitches peridodically

too. I was sure I had the start of TED but the Dr yesterday assures me I'm

not. He did take some measurements as a baseline for change. I also

bought Omega Oil (3/6/9 all in one) and have been having it on my salads at

night, it's not bad.

[Guest guest]

I think this is the thing to remember, especially for newbies. Even though

most of us have some eye involvement from the Graves', it is still a very

small percentage that develop lid lag, exopthalmus and/or diplopia. It's a

scary thing, but it's good to be in a forum like this where you can see that

others are having the same symptoms and don't necessarily progress to more

serious TED.

However, most doctors will tell you that you don't have TED, but the truth

of the matter is that these symptoms are symptoms of TED. There are varying

degrees. Doctors don't seem to want to call it TED unless you do have the

lid lag, etc. And I think that's probably a good thing. It's reassuring to

someone who has mild symptoms to be told they do not have TED. But, that

doesn't mean we don't need to do anything to help prevent the eye disease

from developing further. EFA's (Omega 3/6/9) are a good thing to use. Also,

by being on ATDs, we're suppressing the antibodies that are attacking our

eyes as well as our thyroids. Another thing is to not smoke. Cigarette

smoking greatly increases the risk of developing serious TED and it also

increase the risk of relapse for someone who has gone into remission.

Holly

eye problems

I'm certianly experiencing eye problems like blurry vision (hard to focus

at times) burning, itching and iritated. I'll get twitches peridodically

too. I was sure I had the start of TED but the Dr yesterday assures me I'm

not. He did take some measurements as a baseline for change. I also

bought Omega Oil (3/6/9 all in one) and have been having it on my salads at

night, it's not bad.

[Guest guest]

Holly -

This is a very good point!

I've been to an eye doc twice now and fortunately don't have any exopthalmus

or problems with the actual vision. I do have some realtively minor symptoms

(eye muscle pain, gritty feeling, twitching) which I have to believe are

thyroid/TED related since I never had them before Graves' and there's no

other explanation for them. So the varying degrees of TED and doing things

to prevent TED is a point well made.

I did have very mild lid lag and the Omega 3's did seem to make that go

away.

eye problems

>

>

> I'm certianly experiencing eye problems like blurry vision (hard to focus

> at times) burning, itching and iritated. I'll get twitches peridodically

> too. I was sure I had the start of TED but the Dr yesterday assures me

I'm

> not. He did take some measurements as a baseline for change. I also

> bought Omega Oil (3/6/9 all in one) and have been having it on my salads

at

> night, it's not bad.

>

>

>

>

>

[Guest guest]

Holly -

This is a very good point!

I've been to an eye doc twice now and fortunately don't have any exopthalmus

or problems with the actual vision. I do have some realtively minor symptoms

(eye muscle pain, gritty feeling, twitching) which I have to believe are

thyroid/TED related since I never had them before Graves' and there's no

other explanation for them. So the varying degrees of TED and doing things

to prevent TED is a point well made.

I did have very mild lid lag and the Omega 3's did seem to make that go

away.

eye problems

>

>

> I'm certianly experiencing eye problems like blurry vision (hard to focus

> at times) burning, itching and iritated. I'll get twitches peridodically

> too. I was sure I had the start of TED but the Dr yesterday assures me

I'm

> not. He did take some measurements as a baseline for change. I also

> bought Omega Oil (3/6/9 all in one) and have been having it on my salads

at

> night, it's not bad.

>

>

>

>

>

[Guest guest]

>>>> Another thing is to not smoke. Cigarette

smoking greatly increases the risk of developing serious TED and it also

increase the risk of relapse for someone who has gone into remission. <<<<

I wonder how much a history of secondhand smoke plays into this - anyone

know? My mother is a big smoker, she now lives 3000 miles away so her smoke

no longer affects me more than once or twice a year... but at one time in my

early 20s a doctor accused me of lying about smoking - she was sure I did

based on listening to my lungs - and I have never smoked a day in my life...

that was the end of that doc for one, but it has bothered me ever since

wondering what kind of damage was done and how long that damage lasts...

Pam B.

[Guest guest]

>>>> Another thing is to not smoke. Cigarette

smoking greatly increases the risk of developing serious TED and it also

increase the risk of relapse for someone who has gone into remission. <<<<

I wonder how much a history of secondhand smoke plays into this - anyone

know? My mother is a big smoker, she now lives 3000 miles away so her smoke

no longer affects me more than once or twice a year... but at one time in my

early 20s a doctor accused me of lying about smoking - she was sure I did

based on listening to my lungs - and I have never smoked a day in my life...

that was the end of that doc for one, but it has bothered me ever since

wondering what kind of damage was done and how long that damage lasts...

Pam B.

[Guest guest]

> Hi my dear eds friends

>

> i am in need of some help please, i have eds iii, this morning i

woke up

> with severe rhs eye problems,

paul is out today at work and then giving

> a talk in the south of the country, so he won't be back until early

> tomorrow

Lorraine, is there any way at all you can get to an eye doctor?? I

would suggest you go.

Love Lana

[Guest guest]

> Hi my dear eds friends

>

> i am in need of some help please, i have eds iii, this morning i

woke up

> with severe rhs eye problems,

paul is out today at work and then giving

> a talk in the south of the country, so he won't be back until early

> tomorrow

Lorraine, is there any way at all you can get to an eye doctor?? I

would suggest you go.

Love Lana