Re: Eosinophilgastoenteritis

[Guest guest]

ANdrew:

I have forwarded your letter to the list and have also approved your

subscription. THis is a great group of people - all either with kids with

EG/EE or having it themselves.

Does anyone have any suggestions for ANdrew.

BTW -have you seen Dr. Hugh Sampson in New York City at Mt. Sinai - he is an

allergist with lots of EE/EG expereince. We drive Clayton up to see him from

Cherry Hill, NJ.

Love,

Sharon

In a message dated 5/10/99 12:47:39 PM Eastern Daylight Time,

.Herenstein@... writes:

<< Subj: Eosinophilgastoenteritis

Date: 5/10/99 12:47:39 PM Eastern Daylight Time

From: .Herenstein@... ( Herenstein)

To: eosinophilic gastroenteritis-owner (AT) onelist (DOT) com

I would like to be able to send and receive message on the eosinophilic gastroenteritis

list.

My 7 daughter was diagnosed a year ago with Eosinopilgastroenteritis and put

on Chrmolin. She was better for a while but a few months ago started

vomiting daily. We recently took her to Chicago (we live in NY) for a second

opinion which confirmed the original diagnosis. My daughter has constant

stomach pains and throws up daily.

She has been allergic to milk products since birth. She has gone on various

food jags through her life. At one point she would eat nothing but chicken

and only drink ice tea. Now she barely will touch either. Over time she

jagged on sweet potatoes, cabbage soup, and hamburgers. French fries have

been a staple for several years. She often will eat a meat stew with

potatoes for breakfast, lunch and dinner.

One other interesting note. About eighteen months ago, before we knew she

had EG, my daughter awoke with horrible stomach pains. At the hospital they

quickly determined that she had pancreatitis. As a result she was NPO (no

food allowed at all) for six weeks (she was fed intravenously). When she

recovered we found that her eosinophil levels had fallen to normal levels.

However, within six months they have bounced back and she has constant

stomach pain and vomiting. Our GIs say that the two are unrelated but I have

my suspicions. Anyone with relevant experience?

My wife and I would love to correspond with parent with young children

suffering from EG. My daughter is actually going in for a scoping later this

week to determine whether she also has EE. I suspect she does. I can be

contacted at andrewjh@....

>>

[Guest guest]

In a message dated 5/10/99, 10:19:12 PM, eosinophilic gastroenteritis (AT) onelist (DOT) com writes:

<< When she

recovered we found that her eosinophil levels had fallen to normal levels.

However, within six months they have bounced back and she has constant

stomach pain and vomiting. Our GIs say that the two are unrelated but I have

my suspicions. Anyone with relevant experience?

>>

This suprises me. My son has EE and his eoisinophils are definitely

triggered by food. He used to vomit 10 to 12 times a day. He started doing

much better when we took him off all food and gave him Neocate 1+ through an

ng tube. By doing this we were able to slowly introduce new foods and find

the ones that were causing problems. This had worked well for us for over a

year. His health greatly improved.

Unfortunately, he is currently starting to have sypmtoms again. We are

awaiting endoscopy results. He had one last Thursday. I have to wonder if I

am missing something that he should not be eating.

Don't let the docs overlook the food issue, it is an important one.

I would second Sharon's suggestion that you see Hugh Sampson. Also, there

are two GI's in Philadelphia who deal with this alot. Several people on this

list see at St. s and speak highly of him. I take

to see Liacouras at Childrens Hospital of Philadelphia and have

been extremely happy with his treatment of .

Jen

( 11/7/95, EE, food allergies, asthma)