Guest guest Posted November 29, 1998 Report Share Posted November 29, 1998 Frances: We each understand the frustration you feel after constantly being dismissed. Initially we were only a handful of people scattered over the world... now we are CJD Voice and one way or another, we WILL be heard!! The name CJD Voice is now recognized among not only NIH but the CDC and other government entities. There is strength in numbers and they can keep trying to knock us down because we will keep getting up and getting in their face until something is done. Keep the faith Frances, I know sometimes it is discouraging but you just can't let the jerks get you down... after all that's what they are hoping for. Take care and hang in there. Liz Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.