Guest guest Posted September 3, 1999 Report Share Posted September 3, 1999 Hi Guys this is Tina Mom to Alyssa (1ST my email address has changed to timmyandtina@...) Guys can you help me (I am 's Friend). Alyssa has gotten worse, the flare ups started to come about every 2 wks and the kept upping the prednisone until she was on 25mg (more then she started out on) we went to see a Allergist and he wants to put her on a drug called ketetifen I got the med from mexico seeing that it is not fda approved here my gi says nope!!! I have taken her off the gastrocrom she wasn't getting anywhere on it and she has been on it since jan. her asmtha has gotten worse and everything in between. so when she was in the hospital we put the ng tube back in and started her on a nother formula and she is dothing so much better. with out FOOD. now the gi wants to start her back on food again, I don't understand this the is the 3rd time she has been on the elemental diet and she isn't getting better, they went ahead and tested her for metobolic disorders and scoped her the metobolic was neg and the scopes looked better then ever, however she has been on prednisone for 9 mon. so that could be the reason, has anyone gone through this? our allergist wants to tpn her GI says no way at this moment she is off the pred she was taken off in 9 days and she went through !%$#. seh went through sweats and shakes and so on she is finally starting to stop having withdrawls. we have been home 3 wks and already she has aear infection, sinus infection and strep throat. they may have to admit her to give her mega doses of antibotics. does any one have advice? I need some help At this point I don't know what to do and on. thanks tina mother to alyssa with EG Quote Link to comment Share on other sites More sharing options...
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