Guest guest Posted August 10, 1999 Report Share Posted August 10, 1999 In a message dated 8/10/99 1:43:09 PM Pacific Daylight Time, snoodledoo@... writes: << i all, Has anyone on this list taken Baclomethasone Diproprionate? It's a topical steroid normally used for asthma (via inhaler) but I'm just wondering about the side-effects and if they'd be different for me since I'd be taking it orally (mixed in corn oil) instead of via inhaler. >> I think that is what the GI will put on if the food elimination dosn't work. Cathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 1999 Report Share Posted August 10, 1999 , I was prescribed the medicine by a Gastroenterologist at the University of Washington Medical Center (UWMC). I was referred there after my regular Gastroenterologist tried to get me off Prednisone & on Pentasa (a maintainance medicine for Crohn's Disease) to which I had a severe reaction, and my symptoms returned once I decreased the Prednisone below 10mg/day on two separate attempts at getting me off the Prednisone. The doctor at the university thinks the Crohn's is causing inflammation in my stomach. If I were you, I'd try contacting a university or teaching hospital GI clinic to find out if they would be willing to try you on some topical steroids. I was very impressed with the way the nurse, student assistant and GI doctor interacted with me at the UWMC. Best of luck, -Joy >-Dear Joy: > >I'd be interested to know about who is prescribing that for you. Although I >attempted to research that on my own, and asked for help on this list, I >found out nothing, and did not get any help. So I contacted the National >Jewish Hospital in Colo. They told me that they are not presribing Flonase >or Flovent taken orally, although they have heard of in anecdotally. Not >much use to me, but I am still looking. Good luck. > >Pete > >--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 1999 Report Share Posted August 10, 1999 JOy, this sounds like a drug very similar to fluticasone, a topical steroid inhaled. the beauty of these drugs is that they have minimal first past metabolism, the liver doesn't get it like with systemic steroids. It's interesting that they're using it now for your group of diagnoses. They've been using them lately for eosinophilic enteropathies and have had much success with the eosinophilic esophagitis. The patients take HUGE doses of it and there have been NO reported systemic side effects. What an enormous improvement over those side effects of prednisone use! Good Luck! I hope it works for you. Obviously, these patients swallowed the medicine instead of inhaling it and it worked great for many of them. Steph [eosinophilic gastroenteritis] Beclomethasone Diproprionate > > >Hi all, > >Has anyone on this list taken Baclomethasone Diproprionate? It's a topical >steroid normally used for asthma (via inhaler) but I'm just wondering about >the side-effects and if they'd be different for me since I'd be taking it >orally (mixed in corn oil) instead of via inhaler. > >Thanks, > >-Joy >(allergies, Crohn's Disease, RSD, FMS; husband has EG, allergies & >asthma) > > >--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 1999 Report Share Posted August 10, 1999 >Has anyone on this list taken Baclomethasone Diproprionate? It's a topical >steroid normally used for asthma (via inhaler) but I'm just wondering about >the side-effects and if they'd be different for me since I'd be taking it >orally (mixed in corn oil) instead of via inhaler. > -Dear Joy: I'd be interested to know about who is prescribing that for you. Although I attempted to research that on my own, and asked for help on this list, I found out nothing, and did not get any help. So I contacted the National Jewish Hospital in Colo. They told me that they are not presribing Flonase or Flovent taken orally, although they have heard of in anecdotally. Not much use to me, but I am still looking. Good luck. Pete Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 1999 Report Share Posted August 11, 1999 Pete, I found the abstract on one of the studies on Fluticasone. Do you have a fax number? Steph Re: [eosinophilic gastroenteritis] Beclomethasone Diproprionate > > >>Has anyone on this list taken Baclomethasone Diproprionate? It's a topical >>steroid normally used for asthma (via inhaler) but I'm just wondering about >>the side-effects and if they'd be different for me since I'd be taking it >>orally (mixed in corn oil) instead of via inhaler. >> >-Dear Joy: > >I'd be interested to know about who is prescribing that for you. Although I >attempted to research that on my own, and asked for help on this list, I >found out nothing, and did not get any help. So I contacted the National >Jewish Hospital in Colo. They told me that they are not presribing Flonase >or Flovent taken orally, although they have heard of in anecdotally. Not >much use to me, but I am still looking. Good luck. > >Pete > >--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 1999 Report Share Posted August 12, 1999 Dear Steph: I would love to have that abstract. My fax is . If I find out any information I will share it of course. Thanks you. Pete Quote Link to comment Share on other sites More sharing options...
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