Utah No. 7 in 98. Third TV story on CJD

November 29, 1998

Mel:

Has anyone thought about sending this young man's biopsy sample to an

independent lab in the UK? I have pretty much lost faith in our government

and the powers that be. I don't believe for one millisecond that if we had a

case of nvCJD here in the US, that we would be told the truth. The

cattlemen's lobby and other special interest groups that relate to the beef

industry will make darn sure that pressure is applied in the right places to

keep us in the dark.

Has he been tested for familial CJD? What about his medical history -- are

you aware of any surgeries?

Also, I would like very much to purchase copies of the 3 television shows.

Can you let me know how to do this? Thanks and congratulations for getting

such incredible publicity for CJD in Utah!!

Beverly G.

November 29, 1998

Channel 2, CBS, had a brief on a new CJD victim in Utah, Doug, just turned 30

years old, with wife Tracie, and father of an 8 and a near 3 year old. He has

been showing symptoms for about 4 months, and was just verified by biopsy. Two

different samples of the spinal fluid have been sent to Clarence Gibbs, second

one at his request.

Doug can still walk, talk, and eat, although his speech on the TV show was

affected. He is showing many of the signs that we have discussed her on CJD

Voice.

Has also been at the U of U hospital and that is at least the third case they

have seen this year. I asked about nvCJD and was told that the biopsy confirmed

it as CJD, not nvCJD.

Prior publicity, our Sep TV show and newspaper article have helped to stimulate

her actions to get her legal affairs in order. She also viewed the one earlier

this week. His inability to perform has cost him his job and they have no

insurance. Spoke with Tracie and his Mother this pm. They are devastated as

they recieved the news on Wed., 11/25. My prayers are with them.

With two 44 year olds in Utah, a 39 year old in Denver, and a 38 year old in

Fallon, NV, do we have a different strain of the disease?? Does anyone have

the email address of the daughter in Fallon, NV? Mel in SLC, UT., 29 Nov 98.

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