I'm new and need your insight

March 16, 2000

Hi! I have just registered with this group and am looking forward to

getting your insight on my son 's condition. will be a year

old on the 29th and is unable to eat anything except potatoes, rice,

bananas, apples and Neocate formula. Ever since he was born he has had a

problem having bowel movements and digesting food. Breastmilk, milkbased

formula, soy formula and alimentum did not work. When he was four months

old and drinking Alimentum he ended up in the hospital with dehydration

from profuse vomiting and diaherra The doctors said it was a virus, but

every time we would give him even a 1/2 oz of the formula he would scream

and vomit. Finally a GI doctor said he was allergic to the alimentum and

prescribed Neocate (which our insurance will not cover, but that is another

issue). The Neocate has allowed him to grow and develop normally however,

anytime we try a new food the fussiness, vomiting, etc. starts again. On

top of the food issue, he is on Raglan for reflux and has severe asthma.

Maybe these are all the same issues, no one seems to be able to tell me.

After he developed pneumonia in January, an allergist did allergy (scratch)

testing, a celiac disease test, and a cystic fibrosis test. All of these

tests came back negative. Our GI has never mentioned the possibility of

eosinophil gastroenteritis to us but is going to perform an endoscopy and

colonoscopy on Tuesday at my urging. is a very happy and loving

child. It tears me apart to see him in pain when a food does not agree

with him, but it also tears me apart when he wants to eat the same things

as his three year old sister, and I have to give him another piece of

banana. Any advice, wisdom or words of encouragement would be greatly

appreciated Thank you, Tracey

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