Important Information

[Guest guest]

Good Morning Everyone:

I was just reading Mel Steiger's latest email concerning the new case of CJD

in Miami, OKLAHOMA ... the people's names are & Jay.

Mel is giving us all important information to help others in the future.

Please carefully read his emails and you may want to keep them. It isn't a

pleasant thought, but we all know there will be future CJD cases needing our

help with answers to their questions.

To Mel:

Thank you for reaching out and helping others ... the McEwens, /Jay ...

and to others. You have given me an excellent lesson in what I need to be

doing. You are dedicated to helping our CJD efforts.

To Dorothy:

Thanks for extending a helping hand to ('s sister) and to

Jay/. Please let me know what I can do to help you in your efforts.

To Everyone:

Please keep , /Jay, Dorothy and Mel in your prayers. Ask God to

guide them as they walk this pathway.

Thanks ... and I hope you have a great day...

Dolly

=========================================

Subj: Re: 27yr old

Date: 3/2/99 1:42:21 AM Eastern Standard Time

From: melsteiger@... (melsteiger)

Reply-to: cjdvoice (AT) onelist (DOT) com

To: cjdvoice (AT) onelist (DOT) com (CJD Voice), Chedpep@..., VSe@...

(Vickie e), nrugs.SHAMRE@... (SHARON HAMRE)

Diane, regarding the trust, just call a bank near you. You may want to

administer that for as she will have her hands full. Let the

contributions be sent directly to the

bank, and see if they will send back receipts. You should need only to go

review the account periodically. May have to go to the bank where she banks,

or a branch of the same

one near you. Maybe a credit union where Jay, , or one of your family

banks would do the same.

We have a lady named Dorothy Kraemer who I think lives near Tulsa, that has

been trying to get some news coverage. See if she responds to this and maybe

you can work the press

together.

Am sure the attorney will try to work the estate problems. My prayers are

with all of you. Mel in SLC

=================================================

Chedpep@... wrote:

> From: Chedpep@...

>

> Hi,

>

> My sister checked into hospice. The closest center is 4hrs away. There is

a

> skilled facility in Miami. He needs to be on Medicaid to go there. What do

you

> all think about a nursing home? hates to think of putting him there,

but

> he doesn't even remember he is in St. Louis right now.

>

> If any of you have any information about setting up a trust account at a

bank

> for expenses, please let me know. Mel suggested that. agreed that

would

> be okay.

>

> Should I call any of the news stations in Tulsa and see if they are

interested

> in Jay's story? Or wait?

>

> Did any of you all get Guardianship of your CJD relative? Since has

had

> trouble with Jay's parents, she thinks she had better do something. She has

an

> appt. with an attny tomorrow.

>

> Thank you all for your e-mail's,

>

>