latex allergy

December 22, 1999

,

We are on a latex avoidance. The school and stuff just avoids the obvious like

latex balloons. At hospital and doctors offices, we tell them and they dont use

the gloves and use the latex-free equipment which is just about everywhere now.

I watch out for labels when I buy clothes now and since I do the laundry, that

is everyone's clothes..

For Kody the issue that brought it all to bear was the adhesive in tape and skin

breakdown. we had a terrible time figuring out how to keep a dressing on his

central line until we figured out we would have to manage WIHTOUT adhesive tape

of any kind. So the school also knows band-aids are out for kody. Since we dont

eat out, this isnt a problem but it has been for many people who do eat, cuz the

employees often use latex gloves in food preparation.

Steph.

December 22, 1999

Steph,

I talked to my allergist about the use in food service of latex gloves and he

didn't seem to realize that it is a problem. I looked on the internet and so

far have found no specific articles about ingested Latex. I did find that I

have the inhaled allergies that seem to go along with developing a latex

allergy. I keep seeing food service workers with latex gloves on in Delis etc.

Don't know yet if that is a problem for me, but do have contact dermatitis from

Bras etc, and itchy feet when I wear Tennis shoes. Thanks for that tidbit.

Everyone thought I was crazy because I couldn't stand to wear Tennis shoes.

I was wondering if you have any articles or information about ingested Latex so

I can learn more and have the info when I see the allergist next month. He is

going to do some blood allergy tests and I would also like to know what the test

is that everyone seems to feel gives the best results. I had saved the names of

several test but have misplaced my paper somewhere. I seem to remember Cap Rast

and Elisha?? Help

Judy

Re: [eosinophilic gastroenteritis] Latex allergy

,

We are on a latex avoidance. The school and stuff just avoids the obvious

like latex balloons. At hospital and doctors offices, we tell them and they

dont use the gloves and use the latex-free equipment which is just about

everywhere now. I watch out for labels when I buy clothes now and since I do

the laundry, that is everyone's clothes..

For Kody the issue that brought it all to bear was the adhesive in tape and

skin breakdown. we had a terrible time figuring out how to keep a dressing on

his central line until we figured out we would have to manage WIHTOUT adhesive

tape of any kind. So the school also knows band-aids are out for kody. Since we

dont eat out, this isnt a problem but it has been for many people who do eat,

cuz the employees often use latex gloves in food preparation.

Steph.

December 22, 1999

Thanks,

The page was unavailable, but will try again later. The Latex page that is. I

hope it is just unavailable for now and not gone. I found tons of links on my

search, but like I said none really dealt with the ingestion. Did find the

statute from New York where they are banning it and can't fathom that California

allows it.....

Will have to go back and read more of your links. Have not educated myself

about EE and from what ((((Carlo )))) says that could also be a problem for me

in the future. Hope not, but they are moving upward it seems.

Judy

Re: [eosinophilic gastroenteritis] Latex allergy

,

We are on a latex avoidance. The school and stuff just avoids the obvious

like latex balloons. At hospital and doctors offices, we tell them and they

dont use the gloves and use the latex-free equipment which is just about

everywhere now. I watch out for labels when I buy clothes now and since I do

the laundry, that is everyone's clothes..

For Kody the issue that brought it all to bear was the adhesive in tape

and skin breakdown. we had a terrible time figuring out how to keep a dressing

on his central line until we figured out we would have to manage WIHTOUT

adhesive tape of any kind. So the school also knows band-aids are out for kody.

Since we dont eat out, this isnt a problem but it has been for many people who

do eat, cuz the employees often use latex gloves in food preparation.

Steph.

December 22, 1999

Judy,

Spencer's Eos's count in the blood will be really high and he will have a very

low WBC. Go figure. I really don't think it has anything to do with it.

Re: [eosinophilic gastroenteritis] Latex allergy

,

We are on a latex avoidance. The school and stuff just avoids the

obvious like latex balloons. At hospital and doctors offices, we tell them and

they dont use the gloves and use the latex-free equipment which is just about

everywhere now. I watch out for labels when I buy clothes now and since I do

the laundry, that is everyone's clothes..

For Kody the issue that brought it all to bear was the adhesive in

tape and skin breakdown. we had a terrible time figuring out how to keep a

dressing on his central line until we figured out we would have to manage

WIHTOUT adhesive tape of any kind. So the school also knows band-aids are out

for kody. Since we dont eat out, this isnt a problem but it has been for many

people who do eat, cuz the employees often use latex gloves in food preparation.

Steph.

December 22, 1999

No, I was interpreting what you said he said about it affecting the whole

digestive system. Mine was discovered at the lower end of the small bowel and

then in the lower stomach and upper small intestine. So it seemed to move

upward than, Don't know about now and what it is doing. Still have those high

counts. So maybe I took what you said wrong. Sorry if I misunderstood.

Even so I wanted to understand what you guys were talking about so will read

them one of these days regardless. Also have a 19 yo who is complaining of Ger

and Stomach pain a lot lately. Just don't know what is going on with him.

Another thing I wanted to ask you about was blood counts. When your family has

high Eos, I imagine that their white count rises in proportion. But does the

white count go a lot higher?? I.e. If 10,000 is normal and the eos are 1000,

then a count of 11,000 would be expected, but is the count often Higher??? Is

that clear as mud???

Judy

Re: [eosinophilic gastroenteritis] Latex allergy

,

We are on a latex avoidance. The school and stuff just avoids the

obvious like latex balloons. At hospital and doctors offices, we tell them and

they dont use the gloves and use the latex-free equipment which is just about

everywhere now. I watch out for labels when I buy clothes now and since I do

the laundry, that is everyone's clothes..

For Kody the issue that brought it all to bear was the adhesive in

tape and skin breakdown. we had a terrible time figuring out how to keep a

dressing on his central line until we figured out we would have to manage

WIHTOUT adhesive tape of any kind. So the school also knows band-aids are out

for kody. Since we dont eat out, this isnt a problem but it has been for many

people who do eat, cuz the employees often use latex gloves in food preparation.

Steph.

December 22, 1999

Is there anything consistent about this Disease. I was thinking that pain might

be the only thing and then remembered the kids who have no outward symptoms.

Gosh. It is almost like the harder I look the further it goes away.

, When my eos go up the white count usually does too and sometimes like

now it is way out of proportion. Waiting to hear if things are better from draw

yesterday. I have had a consistently higher that normal white count since

diagnosis, even with 0 eos.

Judy

Re: [eosinophilic gastroenteritis] Latex allergy

Judy,

Spencer's Eos's count in the blood will be really high and he will have a very

low WBC. Go figure. I really don't think it has anything to do with it.

December 22, 1999

Judy,

Are you on Steroids at all? If so how much per Kilo?

Re: [eosinophilic gastroenteritis] Latex allergy

Judy,

Spencer's Eos's count in the blood will be really high and he will have a

very low WBC. Go figure. I really don't think it has anything to do with it.

December 22, 1999

Wow. I cant believe your allergist has never heard of this. It is common

knowledge in most of the latex-sensitive communities.

I learned a LOT from the latex support group I used to belong to... I'll see if

I can dig up the adress for that... on second thought, I'm sure there is a link

to it from Kody's page...

http://www.c4isr.com/harlow/kody Go to this link, then go to his Gtube page.

There is a link there.

Re: [eosinophilic gastroenteritis] Latex allergy

Steph,

I talked to my allergist about the use in food service of latex gloves and

he didn't seem to realize that it is a problem. I looked on the internet and so

far have found no specific articles about ingested Latex. I did find that I

have the inhaled allergies that seem to go along with developing a latex

allergy. I keep seeing food service workers with latex gloves on in Delis etc.

Don't know yet if that is a problem for me, but do have contact dermatitis from

Bras etc, and itchy feet when I wear Tennis shoes. Thanks for that tidbit.

Everyone thought I was crazy because I couldn't stand to wear Tennis shoes.

I was wondering if you have any articles or information about ingested Latex

so I can learn more and have the info when I see the allergist next month. He

is going to do some blood allergy tests and I would also like to know what the

test is that everyone seems to feel gives the best results. I had saved the

names of several test but have misplaced my paper somewhere. I seem to remember

Cap Rast and Elisha?? Help

Judy

Re: [eosinophilic gastroenteritis] Latex allergy

,

We are on a latex avoidance. The school and stuff just avoids the

obvious like latex balloons. At hospital and doctors offices, we tell them and

they dont use the gloves and use the latex-free equipment which is just about

everywhere now. I watch out for labels when I buy clothes now and since I do

the laundry, that is everyone's clothes..

For Kody the issue that brought it all to bear was the adhesive in tape

and skin breakdown. we had a terrible time figuring out how to keep a dressing

on his central line until we figured out we would have to manage WIHTOUT

adhesive tape of any kind. So the school also knows band-aids are out for kody.

Since we dont eat out, this isnt a problem but it has been for many people who

do eat, cuz the employees often use latex gloves in food preparation.

Steph.

December 22, 1999

Judy,

DId you talk to {{{{ carlo }}}}}}.???/ I wasnt aware he was doing adults???/

EWWWW OHHHHHH Would love to have that " stallion " on the other end of my

scopes! LOL

I'm not aware of any evidence that the eos move from one part to the other...

that WOULD be disturbing.. Geez. DOnt want to think about dealing with EG on

top of all of this.

Re: [eosinophilic gastroenteritis] Latex allergy

Thanks,

The page was unavailable, but will try again later. The Latex page that is.

I hope it is just unavailable for now and not gone. I found tons of links on my

search, but like I said none really dealt with the ingestion. Did find the

statute from New York where they are banning it and can't fathom that California

allows it.....

Will have to go back and read more of your links. Have not educated myself

about EE and from what ((((Carlo )))) says that could also be a problem for me

in the future. Hope not, but they are moving upward it seems.

Judy

Re: [eosinophilic gastroenteritis] Latex allergy

,

We are on a latex avoidance. The school and stuff just avoids

the obvious like latex balloons. At hospital and doctors offices, we tell them

and they dont use the gloves and use the latex-free equipment which is just

about everywhere now. I watch out for labels when I buy clothes now and since I

do the laundry, that is everyone's clothes..

For Kody the issue that brought it all to bear was the adhesive

in tape and skin breakdown. we had a terrible time figuring out how to keep a

dressing on his central line until we figured out we would have to manage

WIHTOUT adhesive tape of any kind. So the school also knows band-aids are out

for kody. Since we dont eat out, this isnt a problem but it has been for many

people who do eat, cuz the employees often use latex gloves in food preparation.

Steph.

December 22, 1999

At the time Remi was tested for Latex allergy, it was NOT Elisa testing. There

was only one lab in the country who tested for this, but now it is a much more

recongized allergy. Probably more are testing for this.

There are so many products with latex-it is unreal. From bras, underwear,

socks, sweatpants, diapers (except Huggies) bathing suits to the rubber mats in

the bathtub. Pencil erasers, koosh balls, paint....Balloons are a biggie for

us. Remi reacts to those from inhaling the latex, but will react to touching

the tires on her wheelchair. I found this site very helpful for us and Remi's

teachers. It lists most know products with Latex.

http://www.latexallergyhelp.com/

It lists products by either home or medical use. Good luck. Phyllis

December 22, 1999

Re: [eosinophilic gastroenteritis] Latex allergy

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December 22, 1999

I would also be interested in which tests are more specific as is

scheduled for surgery on January 6th. He has reacted to something after his

last surgery, but we weren't sure if it was the adhesive or latex? Rhonda