Re: EE EG EC EEGC????

December 10, 1999

Thanks Judy for your empathy toward my struggle with something as simple as

eating.

For Spencer, they believe that his disease of the Colon (I can't remember

the specific Eos's name) but I promise I will ask.....was present at birth

and that as soon as formula was introduced his stomach, esophagus, and small

bowel started to have trouble.

It's just all so confusing and frustrating b/c there are so many different

severity's and forms of the disease!

P.S. I was just joking about the E.C. thing, but I think that Spencer is

the only one on the list that has it severally SOMEONE CORRECT ME IF I AM

WRONG PLEASE. I do like the EEGC! Perfect! Let's use it!

[eosinophilic gastroenteritis] EE EG EC EEGC????

>

> ,

> I certainly didn't mean to discount EC. Just get tired of switching from

> caps to periods. LOL....... We need some initials that will include all

> three unless we are specifically speaking on just one. maybe EEGC??

>

> About it not always being an allergic disease. I have to wonder if it

isn't

> kind of self generating. I.E.. once it starts, it just keeps going. I

know

> when I had My first major attack, they diagnosed it in the small intestine

> and Illiosecal area with a colonoscopy. I was not having any stomach

> symptoms. Then within two months the stomach problems were so bad that

they

> did an upper endoscopy and guess what I had eos in my stomach and upper

> small intestine. I guess they could have been there all along and not

> caused symptoms. Now my major medication is for the stomach pain that is

> always there without it. I have never been on steroids. I so know that

> being NPO in the hospital helps alleviate my pain. They always give

massive

> Antibiotics too because my WBC count goes through the roof with a major

> attack. Eos too.

>

> I have a great deal of empathy for you not being able to let Spencer eat.

I

> have thought about that a lot. It has got to be so difficult for those of

> you who can't eat or let your kids eat to hear about others who have it

and

> can. Glad I can, sorry he can't...........

> Judy

>

December 10, 1999

That makes sense. Now just when do we get to see a picture of

[[[[[[[[[Carlo]]]]]]]]]]]????? You guys are sending too many enticing messages

about this doc. Maybe more people develop motility issues in the future....LOL

Judy

[eosinophilic gastroenteritis] EE EG EC EEGC????

,

I certainly didn't mean to discount EC. Just get tired of switching from

caps to periods. LOL....... We need some initials that will include all

three unless we are specifically speaking on just one. maybe EEGC??

About it not always being an allergic disease. I have to wonder if it isn't

kind of self generating. I.E.. once it starts, it just keeps going. I know

when I had My first major attack, they diagnosed it in the small intestine

and Illiosecal area with a colonoscopy. I was not having any stomach

symptoms. Then within two months the stomach problems were so bad that they

did an upper endoscopy and guess what I had eos in my stomach and upper

small intestine. I guess they could have been there all along and not

caused symptoms. Now my major medication is for the stomach pain that is

always there without it. I have never been on steroids. I so know that

being NPO in the hospital helps alleviate my pain. They always give massive

Antibiotics too because my WBC count goes through the roof with a major

attack. Eos too.

I have a great deal of empathy for you not being able to let Spencer eat. I

have thought about that a lot. It has got to be so difficult for those of

you who can't eat or let your kids eat to hear about others who have it and

can. Glad I can, sorry he can't...........

Judy

December 10, 1999

Judy,

I want him to do my endoscopy........oh dang....he's a ped's doc FORGOT! Oh

well, I can just enjoy him for 15 more years while Spencer is a child. LOL

[eosinophilic gastroenteritis] EE EG EC EEGC????

,

I certainly didn't mean to discount EC. Just get tired of switching from

caps to periods. LOL....... We need some initials that will include all

three unless we are specifically speaking on just one. maybe EEGC??

About it not always being an allergic disease. I have to wonder if it

isn't

kind of self generating. I.E.. once it starts, it just keeps going. I

know

when I had My first major attack, they diagnosed it in the small intestine

and Illiosecal area with a colonoscopy. I was not having any stomach

symptoms. Then within two months the stomach problems were so bad that

they

did an upper endoscopy and guess what I had eos in my stomach and upper

small intestine. I guess they could have been there all along and not

caused symptoms. Now my major medication is for the stomach pain that is

always there without it. I have never been on steroids. I so know that

being NPO in the hospital helps alleviate my pain. They always give

massive

Antibiotics too because my WBC count goes through the roof with a major

attack. Eos too.

I have a great deal of empathy for you not being able to let Spencer eat.

I

have thought about that a lot. It has got to be so difficult for those of

you who can't eat or let your kids eat to hear about others who have it

and

can. Glad I can, sorry he can't...........

Judy

December 10, 1999

Hey Steph,

When I was there last, he had a Pediatrician from Italy doing an internship with

him and she said that he doesn't have a life.......he's at the hospital almost

24/7! Maybe someone should try to give him a life! haha!

[eosinophilic gastroenteritis] EE EG EC EEGC????

,

I certainly didn't mean to discount EC. Just get tired of switching

from

caps to periods. LOL....... We need some initials that will include

all

three unless we are specifically speaking on just one. maybe EEGC??

About it not always being an allergic disease. I have to wonder if it

isn't

kind of self generating. I.E.. once it starts, it just keeps going. I

know

when I had My first major attack, they diagnosed it in the small

intestine

and Illiosecal area with a colonoscopy. I was not having any stomach

symptoms. Then within two months the stomach problems were so bad that

they

did an upper endoscopy and guess what I had eos in my stomach and upper

small intestine. I guess they could have been there all along and not

caused symptoms. Now my major medication is for the stomach pain that

is

always there without it. I have never been on steroids. I so know that

being NPO in the hospital helps alleviate my pain. They always give

massive

Antibiotics too because my WBC count goes through the roof with a major

attack. Eos too.

I have a great deal of empathy for you not being able to let Spencer

eat. I

have thought about that a lot. It has got to be so difficult for those

of

you who can't eat or let your kids eat to hear about others who have it

and

can. Glad I can, sorry he can't...........

Judy

December 10, 1999

Just thought I should mentoin here that [[[[[carlo]]]] told me that the GI tract

is all connected in many ways... that anything that effects one part, effects

the whole thing...

Steph