elimination diet

[Guest guest]

Well after 6 weeks of the elimination diet, Dan was scoped today. Unfortunately

there was no change for the better or worse. Jus thought you'd like to know. Has

anyone had success on an elimination diet?

C4HURT@... wrote:

> In a message dated 1/5/00 8:24:32 AM Mountain Standard Time,

> stephy8ch@... writes:

>

> <

> filling up too fast, never seeming really hungry

> re-swallowing, gulping, drinking after each bite, picking foods that are

> easier to swallow and of softer, mushy, thin consistency (difficulty

> swallowing)

> Diarrhea, cramping or constipation

> putting their hands over their midchest area, sometimes they are completely

> unconscious of this, but they do it when their chest is hurting

> Crankiness that doesnt subside

> irritability particularly at meal times

> avoidance of foods

>

> << Many doctors are not convinced of the direct link and most don't get

> aggressive unless there are serious quality of life issues or Barrett's is

> already there. >>

>

> Steph --

>

> First of all thanks so very much for the wonderful information you put in

> your latest posts. Your vast knowledge on all of this is just so incredible.

> has not officially been diagnosed with EE, EG or anything for that

> matter, just failure to thrive, chronic intestinal inflamation, oral

> aversions and SID. They keep thinking that it is just food allergies that

> she will outgrow. But she has ALL of the symptoms you outlined above. Her

> biopsies that were taken in September showed chronic inflamation throughout

> her entire g-track (top to bottom) and a large ulcer in her stomach. The

> reason that she hasn't been given the clear cut diagnosis for EE or EG is

> that the eosinophil cell counts weren't high enough. I think that's because

> she had been on an elemental formula for six months prior to the biopsies and

> had only been exposed minimally to other foods through the work we do at

> feeding therapy. In all she had only taken in approx. 1 full meal of any and

> all foods up until that time.

>

> Now that we are on a food re-introduction diet the only things that she will

> eat are bananas, rice, pears, terra stix (dried root vegetables), and french

> fries. She is not scheduled to be biopsied again until early next summer,

> possibly late spring. They are now checking her stools for occult blood

> levels to see if they can keep an eye on the inflamation that way. She was

> hospitalized for flu and strep early last month and was vomitting blood

> during that ordeal. No one wanted to scope her again though because they

> felt it would all resolve with the use of Zantac, Carafate and Prevacid. The

> vomitting stopped and we haven't seen blood in her stools but her other

> symptoms have remained virtually the same with an increase in overall

> irritability and fussiness. She also hasn't slept well again in almost a

> week now.

>

> So now for my questions. How do I convince the drs. that needs

> additional intervention? They want to wean her off the g-tube feedings and

> just let her eat whatever she will. I'm afraid that her situation will

> definitely get much worse by doing that. And until her symptoms become

> severe enough for them to warrant aggressive treatment we won't really find

> out what's wrong with her. They just think she'll outgrow all of this. I

> don't want to end up with a kid who is a lot worse off before she finally

> gets a diagnosis and we all learn we knew better.

>

> We have wondered, as you brought up in your post, if we actually needed to

> treat with anything else since she has no outward symptoms. But what

> continues to motivate me is what you've talked about with the irreversible

> damage that has been done even on yourself. I really want to avoid that for

> . I just feel so stuck between this vast array of no outward symptoms

> and therefore no clear cut diagnosis.

>

> Thanks for listening to me ramble. If you've got any suggestions I'd love to

> hear what they are.

>

> Cindy -- mommy to 6, 5 and (21 months, FTT, 100% g-tube

> fed with Neocate, SID, hypotonia, chronic and acute intestinal inflamation,

> stomach ulcers, highly restricted diet, but getting cuter all the time!)

>

> ---------------------------