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Re: Digest Number 304

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I just feel compelled to write that I have a very hard time with doctors who

prescribe prednisone for anything other than short courses. Prednisone is a

wonderful drug, it does decrease inflammation and as such, decreases pain and

associated symptoms. But it doesnt get to the root of the problem. As

parents, we have to strongly advocate for our children that our doctors go

one step beyond just treating the symptoms, and try to get to the cause of

the problem. I understand that getting to the point of achieving some relief

in many cases is almost impossible, but I truly believe that if a doctor is

not challenged or if is insulted when we challenge them to think " outside of

the prednisone box " , then they are not the doctor for me. Prednisone, when

used for long periods of time is very damaging to the body. Inhaled steroids

have not been tested enough to know the complete story about them, but many

doctors do believe that there is some systemic effect. I just needed to

vent.

Patty, (12 yr old ee/eg) mom

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In a message dated 6/9/99 8:50:55 AM Pacific Daylight Time,

KKle837504@... writes:

<< Prednisone is a

wonderful drug, it does decrease inflammation and as such, decreases pain

and

associated symptoms. But it doesnt get to the root of the problem. As

parents, we have to strongly advocate for our children that our doctors go

one step beyond just treating the symptoms, and try to get to the cause of

the problem. >>

Patty

's GI tol me te prednisone would cure the esophagitis if it is caused

by food alergy eosinophils. is this true? What is considred short or long

term? Do you know if it is safe for kids with only one kidney?

Thanks,

Cathy

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Patty,

You are right, prednisone has some horrible and possible deadly side

effects.

However, it has saved Kody's life on more than one occasion. The use of

it at high doses for several months helped turn our entire family around

and help us diagnose and treat our disease.

It has a definite place in treatment, but you have to weight the pros

and cons

steph

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Cathy,

Prednisone was the ONLY thing that worked on all of us (before a

completely elemental diet).. It helped us make the diagnosis of EE in 6

of us.

steph

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